Advise on ovarian cyst

Hi Gemma

I had a TV ultra sound scan on Thursday which has showed a Ecton of cysts on left ovary largest being 9.5 x 8.5 cm and on the right side possibly in my fallopian tube there is an 8.5 X 8cm and evidence of a haemorrhage. My CA 125 level was slightly high, this all happened over Christmas with pain in pelvis, needing to wee urgently. My GP received the scan report back the same day and I have been referred for a 2week wait rapid access gynaecology appointment. I am really anxious about it all and hardly sleeping with worry.

I suppose worst case scenario it is cancer, I think if I was offered I would go for a full hysterectomy as I do not want any more children. I*am 35 and my husband has had a vasectomy so hopefully they will let me. I don't want to have to have multiple operations if the histology shows up anything.

I have always suffered with heavy and painful periods and for 8 years lower back pain, I have this now and I just know that it is all linked.

Keep me posted how things go for you. It is good to know that these forums are here.

Xx

hi gemma, 

i think your cyst is called a septated cyst, have you been offered any blood tests? my cyst was/is different, it was described as more complex, solid and liquid and measured 48 mm. i'm 32 and my ca125 was normal at 17 and even though i didn't fulfil the fast track criteria, my gp urgently referred me anyway due to my high anxiety. I saw a gynaecologist / oncologist in mid Dec and she measured my cyst 38 mm. I'm back for another appointment this friday after a course of antibiotics. 

I can totally relate, waiting around is very hard when you don't know what's going on.

nicola - please don't pay much attention to the ca125 blood test, it is VERY unreliable as a diagnostic tool and actually, should not be used as a diagnostic tool at all. it can rise for all sorts of benign conditions, endometriosis, infections ect... so if you get a high result it may not mean anything, same for a normal result. the odds are definitely on your side as the chance of it being cancer is low, even with complex or large cysts. 

it's easier said than done, but try not to worry. best of luck with your appointment!

I feel your pain and anxiety. I have a 17cm complex cyst with septations and nodules. The gynecologist yesterday became visibly concerned when she read the radiology report that said nodules and immediately sent me to get a CA-125 test. Im 24. The cyst has grown rapidly and she said it is most likely germ cell cancer that is borderline which means that once its taken out, I should be fine. It is terrifying to say the least, I feel sick to my stomach. If anyone has had anything like this, please let me know.