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I typed a detailed entry on my history and current problem on another forum, but cannot copy the text to paste it here.
Emis Moderator comment: I have copied and pasted the post referred to above rather than link to a competitor's website.
Short story- history of paroxysmal atrial fibrillation, now wasting away to nothing and having extremely debilitating tachycardia episodes. I have written everything below that I could possibly think of because I am so desperate for any help.
Very long story.....
I am a 32 y/o female with family history of fib in both parents. My father died before he could lose enough weight to get a valve replacement and my mother only has very minor episodes of irregular rhythm. My only other illness is polycystic ovarian syndrome. I have only had two surgeries in my life, one was a c-section, and one was when I was 6 weeks pregnant to remove my left ovary and tube due to a 5 inch diameter ovary cyst that had torted several times. I had very random symptoms spread across my 22-28 y/o life. None of the episodes lasted long enough to be caught and I was left undiagnosed and untreated. At this time I weighed approx 320 lbs (and 6ft tall) When I was 28 the episodes started coming on more frequently and for longer each time. Longest at that point was about 20 minutes, they caught it on an ekg and I was put on 5mg bisoprolol which seemed to keep symptoms at bay until I became pregnant at which time I began having palpitations again, so they upped my dosage to 10mg. After the birth of my son all symptoms subsided and I was eventually weened off of all meds within a year of having him. (2yrs ago)
I gained weight and was up to 355lbs, and decided to turn my life around a few months ago. I was a heavy smoker, ate horribly, drank a lot of caffienated things just to keep up with life. I started having a random palpatation or two each day. I worked really hard at changing my eating habits, started drinking shakeology shakes once or twice a day, and began exercising on a very regular basis. As a few weeks went by I noticed the palpatations were getting more frequent but still didn't bother me at all, and I knew the best way to resolve the issue long term was to focus on my weight loss. I was doing FANTASTICALLY until a month and a half ago. My heart went into afib, I was rushed to ER and didn't convert back to sinus until 24 hours later. The cardiologist put me on metoprolol (can't remember dosage 25mg I think?) a few days later had another episode so he Switched me to bisoprolol since it had worked in the past. Both times of which I was a little tired and groggy afterwards but nothing major and felt like my normal self in a day or two. At this time I stopped smoking, I stopped drinking any caffeine and really refined my already pretty well balanced diet. At this point I was down to 325lbs.
A week or two later my heart went into tachycardia which I had never experienced before, it had always just been an irregular rhythm in the past. My heart skyrocketed while I was completely relaxed, and hit 180 at the only point I could manage to take my own pulse. Everything from my chest up went tingly then numb and my muscles began to clench. After about 15 minutes or so my heart rate started to go down. The ambulance arrived, and they gave me cardizem which brought me further back to normalcy. The cardiologist said it sounded like I had a bad reaction to the bisoprolol and began me on a low dose of cardizem. Over the next few weeks I had a few more episodes of tachythat lasted a minute or two then subsided but with very nasty after effects. So he upped my dosage to 3 60mg cardizem a day and put me on 2 .25mg xanax a day. Then it happened again. Back into the ER. For the fifth time in a month and now I am on 240mg extended release cardizem.
When these episodes happen I can feel them coming on. I remain calm, focused, take calm breaths, and think happy thoughts. After they begin to subside OR as soon as they go above a heart rate of 130, I become extremely dizzy and nauseous, begin throwing up, I become very disoriented, and my face feels like it's on fire. I remain nauseous and disoriented for quite a while afterwards and begin somewhat violently shaking (kind of from the pit of my stomach outward) for a couple of minutes.
My first day out of hospital yesterday I had only a few very minor palpitations and dizzy spells, but today I couldn't walk 20 feet with out my heart feeling like it was going to explode out of my chest. It would only get to 110-125 ish but it felt like it was going to beat right out of my chest and I had a few palpitations in a row. I have absolutely no appetite, get dizzy everytime I just adjust myself where I'm sitting, crazy hot face flushing.....
Everytime I go into the ER due to one of these episodes I feel like I'm taking ten steps backwards then crawl forward one or two feet before getting thrown back another ten steps. There are several cardiologists that are overseeing my case, but none of them have any answers. One of which has been rated the second best in this whole area.
I seem to be EXTREMELY sensitive to any type of stimulation. Even talking to someone makes my heart rate start to go up. Especially if it's anything slightly emotional, and even more especially when it is something stressful. For instance discussing my heart problems and how I'm doing with friends and family, trying to get insurance sorted, and bills payed. But sometimes it's somethig as simple as someone walking into the room. I have been under severe stress the last year or so, but have never let it get to me. Trying to get my husbands visa sorted so he can come live with us, raising an extremely hyperactive toddler, renovating a house on my own while living with my mother, her boyfriend, and my grandmother. I could go on for hours, but the point being that I reached my stress level limit I suppose.
I currently weigh 296lbs, a lot of which was due to these episodes, the nausea, the vomiting.....and when I could eat I chose very very carefully to try and get the best nutrients possible in me because I didn't know when I could eat again. Today I ate a collective 1/3 of a normal meal in tiny little bites across the day. I'm finding hard to drink, and I loooooove drinking icy water.
I'm sure there's a lot more to this that could be useful, but I don't know what else to say right now.
What do I do? Where do I go? I can no longer travel since I can't even walk twenty feet..... I'm completely at a loss and feel like I'm losing a grip on everything....
Please help me. I'm begging.
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