After effects of covid 19
Posted , 5 users are following.
I have a question maybe someone can answer?
I have moderate COPD, which, as we all know, there is essentially no 'cure' for.
But it can be managed, and I have managed it quite well since I was diagnosed around 7 years ago. I'm still border-line mild/moderate.
However, I think I read somewhere, that each successive exacerbation (flare up) leaves it's mark on the lungs for good .. thus reducing lung capacity little by little .. and permanently.
Hence, managing COPD is crucially about PREVENTING infections taking hold in the first place.
Is this correct?
If it is, will an exacerbation on the epic scale of covid 19 - if I DO catch it .. and manage to survive it - permanently and massively reduce my lung capacity, no matter how well I 'manage' my COPD it thereafter?
Thanks
Jo
0 likes, 15 replies
larry49033 josephine_30311
Edited
Josephine,
I can't say if exacerbations do further lung damage, I suggest you remember to ask your specialist when you see them. From my own COPD point of view, while exacerbations are certainly no fun, breaking up and expelling mucus from the lungs is always a good thing. Additionally, if your not taking anything to help limit/control mucus buildup, you should.
Some years ago, before I quit smoking, I began taking over the counter Mueslix to help control my already worsening mucus problem. I continued after quitting smoking 4 years ago. When I began to see a Pulmonary Specialist, I told him about taking the Mueslix and he had no objections. Today, along with the Anoro, and Ventolin, and a nebulizer, I take a generic form of Mueslix called Guaifenesin. Each 400 mg. dose last 4 hours, but is markedly less expensive than the 12 hour Mueslix. It is also a non- prescription medicine and can be purchased at Costco or through Amazon online. For me, if I fail to take my Guaifenesin, I can really feel the mucus buildup and the decreased air supply.
As for contracting COVID-19, I'm convinced that it would be a sure death sentence for me. Personally, I don't recommend tempting the chance of getting this virus no matter the severity of ones COPD.
I do recommend Social distancing at home. Regular visits to your Pulmonary Specialist and following/taking any/all prescribed medicines and any physical treatments.
All the Best
aitarg35939 larry49033
Posted
Larry, auto-correct struck again, in a hilarious way this time. Every time you went for Mucinex, your computer went for the cereal muesli, adding an X on the end.
All the Costcos in Texas & US online Costco have quit selling the Mucus Relief. I took 1200 mg twice daily per my pulmonologist, which made it $5.50/month. Now they've got a 1200 mg timed-release mucinex at $58/mo for me, and the timed release part means it doesn't work as well. I have another condition which makes my mucus extra dry & thick, and in just 1 week on the expensive stuff, I am s-c-r-e-w-e-d.
aitarg35939 josephine_30311
Posted
Yes, you want to avoid infections as much as possible and treat them as early as possible when you get them. With this virus, that means wash your hands, mask up, and stay away from people in an attempt to avoid exposure. If you get sick, call your lung doctor/consultant immediately.
There are all sorts of exacerbations. Himself experienced exacerbations from drinking liquids that were too cold, or from cold air blowing in his face, but these exacerbations did not diminish lung function beyond a few hours before or even after he was on 24/7 oxy setting of 6 or 6.5. He lived more than 22 yrs with diagnosed lung disease & died of something else. (began smoking 2 packs a day at age 9 til 36, & installed fiberglass insulation for 20 years)
i, on the other hand, have suffered permanent damage from a 6-month long exacerbation caused by spending exactly 2.5 hrs in a friend's cheaply built, brand-new house. All the glues, paints, fiberboard, fake wood flooring, and all the polyester & new petroleum-based fabric with chemical stain treatment = killer off-gasing. My only comfort is that living in that situation brought on a nightmarish autoimmune disorder, pemphigus vulgaris, in my now-former friend.
In other words, there are all kinds of exacerbations. Some have long-term effects and some don't. Ask your lung doc.
COVID-19 is a very serious thing but it does not afflict everyone who gets exposed, not even everyone with lung disease. Nobody knows the long term effects on people who recover. We'll only know that with time. Patient.info set up a COVID-19 or coronavirus info page and maybe that will have helpfil info. I have bronchiectasis as a result of an unnamed respiratory virus in '85, and it took more than 5 years to begin to know that something was wrong.
larry49033 aitarg35939
Edited
I agree with several of your points. The Mucinex misspelling occured as I was fatigued and not at 100% concentration, but the message still remains. The generic form of Mucinex may not be available at your local Costco, but can be ordered online for delivery through Amazon. Guaifenesin 400 mg may require some extended delivery time, but good planning should suffice until it's delivered. I too must plan way ahead to ensure I don't run out waiting for a delivery.
With COVID-19 more aggressively affecting those with pre-existing conditions, discussing recovery from this Pandemic virus is mostly moot. It has been repeatedly reported that Covid-19 is brutal on the elderly and those with preexisting conditions like COPD. I can understand how the "Stay at Home" and "Social Distancing rules" are wearing on some, but hang in there.
There are those that are campaigning to open up our stores, restaurants, and other businesses to the public . I hope we are not throwing gasoline on a fires embers before we are sure it won't flash back. As it will be a delayed explosion, only time will provide the answers. I just hope that economic desperation does not result in greater infections/death.
hypercat josephine_30311
Edited
I am on another lung site and someone with a lung function of just 22% is recovering from the virus. He was very ill but has survived. With such a low lung function he can't have had much permanent damage done.
larry49033 hypercat
Posted
I celebrate anyone that survives Covid-19. That said we must not allow a rare case to over shadow the confirmed facts that the elderly and those with preexisting medical conditions are at a greater risk. Far too little is understood about this virus other than it is highly contagious.
You mentioned another "lung site". Would you care to share that site with this forum?
hypercat larry49033
Posted
I have never said they aren't at greater risk as that would be untrue. It's worth remembering though that the survival rate even for those at the greatest risk is around 80% or more if they get treatment. I don't believe he is a 'rare' case.
The site is The British Lung Foundation. It is an excellent site with lots of very knowledgeable members.
larry49033 hypercat
Posted
The British are not the only posters to this site and not the only knowledgeable members. I read from posters around the world on this site and they too were knowledgeable.
A side note: As a history buff I enjoy viewing films about WWII. Films on this subject produced by UK filmmakers have a great tendency to promote how the British won the war and America/France/and others helped out a bit. You don't sound all that different.
aitarg35939 larry49033
Posted
Oh goodness, Larry, I can't believe you said that, any of that. You and I are very much guests here on this UK site. The reason I stick to this forum is because of the different attitude toward lung health within their health care system, namely that exercise is very important in maintaining lung health, plus all the practical suggestions. In my American city of 1M, you will not find a single lung doctor who ever suggests exercise, nor will you receive any suggestions for postural drainage since the one pulmo who pushed it moved to HI 20 yrs ago. In other words, I come here because the Brits seem much smarter about lung health than American lung docs. So when the British Lung Foundation says something, I am much more inclined to believe it than i would be with the American Lung Foundation.
As to WWII history, surely you are aware that England was the country that did not wave a white flag in the Blitz? Surely you know that the war started for them IN THE '30s? Surely you know that but for Pearl Harbor TWO YEARS LATER, our country probably would never have lifted a hand to head for Europe?
There is a paragraph in one of Herman Wouk's WWII series. It is set in Russia but apropos to your highly inflammatory and wrong statement. Pug Henry sits with a Russian military commander in a mess hall, I think. Pug points out that all the Russian soldiers are wearing uniforms made by the US for them. The Russian looks at him and says yes, American uniforms on Russian bodies, with Russian bodies that will stop bullets that American uniforms won't.
Whatever history books you've been reading are rubbish. If the UK hadn't stood up to Hitler, he would've sped right on over here where our government is conveniently located on the east coast. THE ENTIRE WORLD WILL ALWAYS OWE A HUGE DEBT TO THE UK BECAUSE THEY REFUSED TO ROLL OVER FOR HITLER.
larry49033 aitarg35939
Posted
First, not all pulmonary patients can exercise as some extol. Some like myself have additional medical conditions that preclude strenuous exercise. For me my daily chores are quit all I can handle, thank you.
Regarding WWII films, I can understand the British wishing to present themselves in a favorable light. That said, let's look a the facts themselves.
Yes, many brave acts were preformed during that war, but if one watches British war films/documentaries, little credit is given to all the other countries that came to the aid of the UK and France and all of the other countries affected. The British for sure bore the sting of Germany heroically, but along with the French they were soundly defeated by Hitler.
Finally, I celebrate an/all that recover from Covid-19. I too hear of the stories of the extreme elderly and those with preexisting medical conditions that have heroic survival stories, but I also know that many similar patients have not survived. I say don't play Russian Roulette with your's or others lives. Respect how highly contagious this virus is and stand fast to the stay at home protocols until those more qualified say it's safe. I'm prepared to do my part for as long as it requires.
aitarg35939 larry49033
Posted
Larry, whatever you're smoking...
Ever heard of The Blitz? Hitler had every right to expect England to roll over as other countries had. The Brits chose to hang tough. Sure, lend/lease was used with both the UK and the Soviet Union. Americans tend to gloss over D-Day as if it were solely our doing. It was not. The Brits and some French were there, too, fighting & dying on nearby beaches. While you say that the Brits couldn't have done D-Day without us, guess what: We couldn't have done it without them. Further, we couldn't have done it at all if they had given up during the Blitz. Smoke on that.
What you have said is highly offensive, almost as bad as saying what so many American armchair "historians" say, namely that the Holocaust didn't happen. If you want to say this stuff, say it on American sites with all the other wackos.
larry49033 aitarg35939
Posted
You have totally missed my point. History is not being challenged, I said that many British films and documentaries focus solely on how the UK fought and won WWII. Little credit of the others involved is normally offered. I never discounted the heroic deeds that many British displayed. I won't however place false praise upon those that earned no praise.
hypercat larry49033
Edited
..Er where did I say that British is best? You asked me what forum I was on and I told you. As for the war bits, where on earth do they come from and what relevance are they to lung issues?
I disagreed with you - that's allowed isn't it? It seems to me that you dislike the British for some reason and you are taking it out on me! You know nothing about me.
hypercat aitarg35939
Edited
Oh don't bother debating it with him airtag but thanks for saying that. It has nothing to do with lung issues so let's not get side tracked into other areas. One thing that life has taught me is that people often 'blame' others for their own issues and love stirring it up. I am too old to play mind games as my c r a p bucket is already full 😏
We all have enough on our plates at the moment with this virus and should be supporting each other. Stay safe and well my friend. x
Vee2 josephine_30311
Posted
Yes a very important aspect of managing COPD is to try and avoid infections wherever possible, and yes there is a risk of repeated lung infections causing further lung damage depending on severity of the infection, if left untreated, delayed treatment and how often these are experienced throughout the year. Its also possible if at first signs of infecftion treatment is started that the lung infection may not cause added permanent damage.
COVID-19 could indeed leave someone with more permanent lung damage, this is far more likely if the need arose to put the patient on a respirator in ICU. Also likely with severe symptoms.
We can only do all that we can in order to protect ourselves.