After reading through these stories I am very sad that I...

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After reading through these stories I am very sad that I am addicted too to dihydrocodiene, I was perscribed them in 2001 for my m.s symptoms and can't go a day without them, my body really hurts and my nerves feel like they are being pulled out and every week is a constant worry if the doctors havent done my repeat perscription, I am up for a review again on wed (7th March) and am dreading it incase they stop them.

I should oly have between 4-6 a day but take upto 8 and also paracetamol plus (2) every time, I am also on prozac and amatryptiline and stemetol as my m.s has gotten worse again, I really wish that I could wake up and not be in so much pain, due to the m.s and not have to rely on all this medication to make me feel 'normal'. I also have four young children to look after as my husband left in 2000 and I am only 34, feeling like 94!

One day I am hoping for a cure and not wanting to be here to be in this much pain anymore.:headhurts:

[i:47fc3b800a]This message was automatically imported from the original Patient Experience[/i:47fc3b800a]

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  • Posted

    sorry and all that but i think you should have an award for the best and most brave person in your country you are brilliant you have m.s and you still look after 4 children it seems to me you do life no matter what it throws at you you are a insperation you should be proud of yourself take good care of yourself all the best for in the future love from val:ok:

    [i:c211f293d6]This message was automatically imported from the original Patient Experience[/i:c211f293d6]

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  • Posted

    Hi,

    I was prescribed codeine while in hospital with a kidney problem a few years ago and ended up struggling for a couple of years with addiction to them...I moved to India during that time and found myself, without access to my UK doctor's precsriptions, hustling around every bloody chemist in Bangalore to buy codeine in any form I could get it (even cough syrup). I am a recovering alcoholic so I know a bit about addiction but all I seemed able to do was to watch myself get more and more entangled in the stickiness of addiction. I did finally manage, through 12 step work, to get off it but it was hard...and if I had all the pain and difficulty of MS I don't know that I'd have even tried. But I do know that, even if your in pain and so on, the fear and loss of control that comes with addiction is deeply corrosive. Please, please remember that addiction IS NOT A MORAL FAILING.

    I don't know what to suggest for your MS but for the addiction you may find NA helps....please don't be put off by the idea of down and outs and so on...you'd be surprised at the cross section of society there!

    Also, try reading a book called \"Addiction and Grace\" by Gerald G May (Harper San Francisco). It is a beautiful and brilliant book.

    You are an astonishing person with a bloody tough life. I wish you all the benevolence of the universe. Take care, Dave x

    Please

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  • Posted

    so sorry to hear you have m.s. and a b------ of a ex husband I have Adhesive Aracnoiditius --servere so they tell me so I can relate to your pain as m.s. is simular keep the faith up and belive in your self I have a wonderfull wife who looks after me through thick and thin I can relate to DHC as I have been on them for 30 years along with all side efects but i have been offered morphine I said no because funny enough i like to keep a clear head this I can do with DHC and not with morphine

    but I did leave them of for a week because I went into hostpital for test to see what they could do for me

    i did go back on them but I could leave them off if need be and it is not so bad as you imagine

    all the best

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  • Posted

    You have my full sympathy. I know what that dreadful feeling of waiting for the doctor to refuse you any more of the tablets you need to function is like. I have 3 children, and, I suspect, like yourself, was determined that they wouldn't be my 'carers', but have a normal life. I came off DHC last February due to my doctor refusing to prescribe any more for me, cue nearly 1 year of hell. The withdrawals weren't at all bad, mainly spasms in the legs and various cramps, but then I was being used, I felt, like a human guinea pig, as I was the only patient that doctor had with Fibromyalgia Syndrome. I was in constant agony and, apart from appointments with this doctor, spent most of my time in bed with the curtains drawn, trying to escape the pain through sleep, very depressed. He tried Tramadol, then Tramacet among other things, because he didn't want me 'addicted' to my meds. Bear in mind that I don't drink alcohol and during this time gave up a 50 a day cigarette habit, and I would say that I don't have a particularly addictive personality. He finally ended up giving me Butrans patches (slow release), and saying that he couldn't do any more, that I had 'chronic pain' which was most likely psychosomatic and referred me to the pain clinic at the hospital who couldn't understand why he'd taken me off a painkiller that worked as well as DHC in the 1st place!!!! That is when I blew my stack and changed doctors. I was prescribed DHC again on 24th December last year by a wonderful doc who realised that, yes, I would get addicted to these, but I have to take them for the rest of my life as they are the only painkiller that work for me. I'm sensible with them and don't up the dose as they do what they are supposed to. Apparently, I have been told that there is more risk of addiction when the meds aren't used for pain relief, but for recreational purposes, which isn't the case for folk like you and I. Don't let your doctor dictate your meds completely. They don't always know what is best and should be, in part, guided by you. They also aren't mind readers, so you need to make your needs and wants known, too. You really need these meds and if need be, you may have to change doctors. That doesn't necessarily mean changing practices. I simply changed to another one within the same practice who listened to me and what I needed. I'm now on a 'raft' of meds that work very well for me. DHC, of course, 8x30mg a day, Baclofen (for muscle spasms), Celecoxib (anti inflammatory which doesn't irritate the stomach lining), Diazepam (5mg daily, again only for muscle spasms) an antihistamine to combat the itching that any opiate causes, Lansoprazole to protect my stomach anyway, Migard for the migraines I suffer with, too, and stemetil for any nausea caused by the other stuff. I also take one of the older anti-depressants called Imipramine for its mild sedative effects. If I take them 3 hours before sleep time, I can get a good nights sleep without feeling like I've run a marathon in my sleep. Another good tip for muscle cramps in the legs is tonic water. The quinine in it really helps to ease them. I also take massive amounts of vitamins (RDA, apart from Vit C which you can't have too much of!) and fish oils. If the pain is unbearable, I have 10mg tablets of Sevredol (morphine sulphate), but they actually scare the hell out of me, so are very rarely used. No, I don't feel like a zombie on these meds, and, even though nothing will give me a pain-free life, this way I do have a good quality of life where I control my pain, not the other way around.

    I hope you get the help you need, and will be thinking of you, I promise. You need to be able to go to your doctor and work together with him/her to find the best treatment for you, not be frightened that the only relief you have from pain is going to be taken away from you? You also need to ask about maybe getting help with day to day care from your local Social care services? That's if you need it. You ma

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  • Posted

    To Guest (medusascade), read your post with a lot of interest. Here is someone who has followed the steps needed to bring their suffering into the world of non-sufferers and has went the proper way about it. For the childrens sake as well as your own you now find yourself in less pain and mental turmoil; giving you a pat on the back for taking full responsibility for your well being. It's a pity we're not all geared in the same way.

    Pleasure to have read your post..

    Take care, Ron.

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