After Rotator Cuff Surgery-when will the pain end?
Posted , 94 users are following.
I am a 56 year old female who usually has a high tolerance for pain. I had rotator cuff surgery on 12/15/16. I had one anchor placed during arthroscopic surgery for a full rotator cuff tear and bone spur removal. I'm having lots of pain, especially at night. I slept in a recliner for one week. Now I'm sleeping in the guest room propped up on pillows. And by "sleeping" I mean a few hours here and there. I miss my real bed and my real life. I'm weaning myself off Demerol, because I don't want to become an addict living in a van down by the river! No offense to drug addicts; I just don't want to join them.
Physical therapy is very painful, but I'm doing my exercises daily....well, not as many reps as I should because it hurts so much afterwards. About a week ago a "therapist" we'll call Hitler just about yanked my arm from my body. Things have been going downhill since, and it isn't me on skis!😣
I'm really over this whole experience!
I want my right arm back...the one I use for everything!
I'm hoping to return to school to teach 95 seventh graders in four days. Too ambitious? I did practice driving left-handed for a month before my surgery,
Thoughts? Advice?
5 likes, 413 replies
martin83324 TNteacher
Posted
It's been a long while since I posted.
Thought I'd follow up for anyone new discovering this post in search of reassurance.
Had my right shoulder operated on April 2018. Thinking I may never get a nights sleep again I discovered this post.
For me the inability to be able to get sleep was the worst part of the whole experience. I had a good recliner but invested in another (which was awful) then a futon type thing but nothing was really the cure except time.
Second worst was the immobilizer. I had a ceremonial burning of that evil thing once I was cleared to escape its grasp.
I found the PT initially caused those waves of anxiety "Have I damaged it?" but it was just the process. By the end I wanted them to push me to the limit.
Thanks to the insane medical system and having incurred huge out of pocket expense for the fun of this I opted to have my left shoulder operated on in October. Kind of a 'buy 1 get 1 free' deal. Having just gone through it was a blessing and a curse. The good news is I knew what to expect. The bad news was I knew what to expect.
Quick side note. First time they messed up with the nerve blocker and I awoke in agony. I guess they (nor I) wanted a repeat so this time I got an extra dose. 24hours later I couldn't move my fingers. I was beginning to panic when sensation began to return. This actually helped in a bizzarre way as having begun to fear paralysis the road to recovery suddenly looked like something to cherish.
I actually slept (only about 10 Netflix binges this time) and coped better 2nd time around. I remained careful not to over extend until the dreaded immobilizer joined its brothers ashes. Physio was nowhere near as scary as I knew what to expect.
So, right shoulder 15 months on is fantastic. Full range of motion and feels stronger than it has in years. Left has had some trapped nerve issues but overall still a vast improvement and of course 6 months behind on the healing process.
My best advice is not to fear the pain. Be careful (especially first 6 weeks) not to over push but your body will protect you buy letting you know if over doing it. When the true recovery starts push through that pain if you want it to fully recover. Better some soreness for a while than forever if you don't.
Good luck everyone.
jaycee1956 martin83324
Posted
It's good to read a reassuring post whilst in the early rehab stages. I am three and a half weeks post op for SAD procedure and yes, I have forgotten what a decent night's sleep feels like. I also had a slight set back when I overdid the exercises given to me by the physio but hopefully back on track now.
Thanks for the update and the reminder that it really is only time that effects a good outcome.
gwen46045 jaycee1956
Posted
Time and faithfulness to your rehab routine!
ky196812 martin83324
Posted
Funny how these things go. I'm back to work now, and I'm still feeling my way around how much I can do. The good doctor, wanted me to take more time off, but March 5 was quite some time ago, and I'm not getting any thinner from lack of work. I'm a USPS letter carrier and most of the weight is carried by my left arm and the surgery was on my right. I stopped going to PT once I went back to work 2 weeks ago. I'm finally sleeping now that I've gotten a script for zolpidem from my internal medicine doctor. Has a little hangover that a couple of cups of coffee takes care off. My biggest problem at this point is the ability to reach behind my back and sudden movements with my right arm can be painful also. That said, I have most of the other range of motion back and I'm certain that the behind the back ability will return in time. Like you though, I have a bad tear in my left shoulder also, and it was found before I had the right shoulder diagnosed and repaired. So next year, I'm seriously considering what you have done. I'm 59 and planning to be able to do things without pain when I do retire.
rannap ky196812
Posted
I am post surgery 15 months and the behind the back thing takes the longest. I am just now being able to reach behind my back, although not fully. I say this not to discourage you, but to know that this particular motion seems to take the longest to regain. wishing you success in returning to work. ð
gwen46045 rannap
Posted
My surgeon and my physical therapist said the behind the back/internal rotation is hardest to regain. I'm almost 10 months post op and have about the same back reach on the surgical and "good" side. There's still some mild-moderate pain involved.
christine_61665 rannap
Posted
I am over two years and behind the back is fine but I do feel tightness. I do have a tip that might help someone. Right handed, right shoulder repaired. I confess to the bad habit of playing cards on my tablet whenever I watch TV, or sometimes just sitting. Which means I hunch my shoulder. My bicep was very achy, even when it wasn't cold and damp. I think I made the connection and made an effort to break that habit. Then I had a deep tissue massage which hurt and bruised but my bicep is much improved. Now we'll see what happens in the winter. I'll keep my trusty heating pad handy! Thanks for listening.
Guest TNteacher
Posted
I know it was two years ago, but I'm so sorry. I really relate to your story, it made me tear up a little. I'm a 42 year old male and like you, I can usually deal with pain pretty well. But ever since my shoulder surgery on the last week of June 2019 I have been in so much pain. I had a torn rotator cuff, bone spurs, and a detached biceps tendon. My surgeon was able to perform the surgery arthroscopically as well, so no major incisions. I'm also right handed so having my dominate arm incapacitated has been frustrating and annoying to say the least. The pain radiates from my shoulder down my entire arm and also across my chest, neck, and back. I sleep maybe three hours a night and I have to be to the point of exhaustion before I can even fall asleep. While sleeping my arm goes numb and gets pins and needles and it wakes me up, which has never happened before. I had oxycodone/acetaminophen for the first week, then they told me to just take Tylenol as needed. The oxycodone never really relieved my pain it just made me tired and nauseated. the Tylenol does absolutely nothing for my pain so I started taking Advil which I felt like it helped a little. During my two week post op appointment I was told to stop the Advil because it will slow the healing process and to only take Tylenol, well I already know Tylenol does nothing for me. I called the doctor to tell them about my pain and he gave me a prescription for tramadol, but sadly all that does is make me sleepy, no pain relief. I am 6 weeks out from surgery now and still experiencing more pain than I bargained for. I have another post op appointment next week and supposed to be able to remove my sling, but with my pain I just don't see that happening. I really fear I've done something that caused the surgery to fail, but I've been diligent about keeping my elbow to my side and protecting my shoulder. I'm getting really depressed about the whole thing and starting to regret doing the surgery. I had almost no strength in my arm before and only a little pain, but at least I could live with it. I just pray my shoulder actually is healing correctly. I can't imagine going through this again. Anyways, I just want you to know you're not alone, and I hope you healed quickly and I hope you are back to a normal life now.
lisa70118 Guest
Posted
It's also been awhile since I posted but I've been receiving several notices in my email from others talking about pain after rotator cuff surgery. I wanted to just quickly summarize my progress which might alleviate your fears and anxiety.
I had my arthroscopic surgery for two full tears on my right shoulder (dominant side) on March 6th. Honestly, I have never experienced such intense pain in my life---with the exception of childbirth. I was given Percocet that I made last for the first couple of weeks. Agony. I cannot take motrin because I also take Warfarin, so I was told to take Tylenol. Useless. I "slept" sitting up in bed propped up on pillows with my arm in a sling for 6 weeks. I first posted to this site because I had become desperate emotionally with the intensity and never-ending nature of the pain. I started rehab after two weeks and the early exercises seemed ridiculous---they were so simple and painful, I couldn't believe anything would ever help. Several times the discomfort was so intense I too thought I had re-injured myself. My surgeon gave me a very conservative, and slow protocol for rehab because the tears were complicated and difficult to repair. He emphasized that it could easily take up to a full year before I regained maximum movement. For the most part, I performed the exercises daily, but sometimes I slacked off. During this time the pain continued at a level 7--I just hurt all the time. I was finally able to turn partially onto my left side to get a few hours of rest after about 10 weeks.
It's now been 5 months since the surgery and in general the pain is 85- 90% gone. This didn't even begin to happen until the fourth month, literally over 16 weeks. It was a long, slow, depressing time. I too, was afraid that I'd made a mistake to have the surgery and thought more times than I can count that the whole experience was total BS from beginning to end--including arguing with the doctor for a second prescription for pain relief AND going to physical therapy. But, now at 20+ weeks I just want to encourage anyone reading to remain patient and persevere. I still have discomfort (some days more than others), lack full range of motion, have to be very careful holding/carrying anything heavy (which I do more than I should, groceries, grandbaby, etc.) but the worst of it seems to have passed. I think for most people, this surgery does work, but it's so hard to remain positive when the pain is constant and wears you down psychologically.
I hope my own story encourages anyone reading who is hurting and scared that along with the pt exercises, patience is really the key. It does get better. Best of luck to all.
jaycee1956 lisa70118
Posted
Lisa - I also just read DMN's post and empathise completely having spent a very restless night once more following shoulder surgery. Although mine was nowhere near as extensive as either of yours this time (SAD procedure although four years ago RT tear) the night time pain is just as bad as previously. You are so correct that time does make the difference - no medication seemed to help at all as it just threw up different problems. It is very comforting to read positive posts. When you are lacking in sleep it has a knock on effect on your whole life and you go through the day zombie like. Thank you for posting and reminding us that it IS going to get better. I can't offer any better comfort to DMN than you have, except to say that I agree with you and although we do go through a period of wondering what we have done, we have to play the long game. I am a couple of weeks behind DMN and still using ice packs on a regular basis even though at the moment they are not helping as much as I would like. I hope everyone going through this continues to improve, albeit slowly.
Guest lisa70118
Posted
Thank you. I appreciate the encouragement!
Guest jaycee1956
Posted
Thank you!
gwen46045 lisa70118
Posted
In reading the various posts about post op pain and difficulty sleeping, I'm reminded of my almost opposite experience. I never had the level of pain I expected! I was prescribed percocet which i took around the clock as directed. After about 3 days I switched to tylenol during the day and the percocet at bedtime which would get me through the night. If I woke up it wasn't pain, it was being uncomfortable in that recliner! I started PT a week post op. I took a pain pill before the sessions, as directed, but I was able to cut it down to half before and tylenol after about two weeks and just tylenol after about a month.
My surgeon was very emphatic about sleep! He believes sleep/rest is necessary for healing and that you should get it however you can. Icing before bedtime as well as medication was the primary recommendation. I used an ice machine 24/7!
I'm almost 10 months out. I have an almost constant dull achiness in my shoulder and upper arm. I use ice, a percussion massager and sometimes my TENS unit. I rarely take anything for pain. I sleep well but am careful about positioning.
Regardless of where you are in the process, I'm sure it's better than last month, last week or even yesterday. I saw a post by a ortho surgeon on the subject of the length of recovery. He tells his patients that recovery is when you can use your shoulder without thinking about it..:
gwen46045
Posted
I hope I didn't sound like this has been easy because it certainly has not been and is not now. There have been "I can't do this/why did I do this days". Days when it seems my whole life revolves around my shoulder: if I do a full exercise routine, percussion massage, then ice and TENS, then another 10-15 minutes of ice, that's pretty much my morning; with no guarantee what I'll be able to get done the rest of the day. Frustration runs high over not being able to do small things without causing pain/discomfort. Actually considered putting a hole in the milk carton because it was too hard getting that plastic cap off. Forget cutting into a melon. Grocery shopping still takes planning: how am I going to get it inside? Dressing still takes planning: do I try for the back zipper? Cooking still takes planning: can I lift the pot/pan?
I have decided to reclaim as much of my life as I safely can knowing that everyday I am a day further in the journey. It is hard so cry when you feel you need to. I have and do. Whatever it takes to get you through the roughest patches.
Dragonink64 TNteacher
Posted
Hi, I am new here, I found this forum searching for how long post op pain lasts from rotator cuff surgery. I am 6 weeks post op and still struggling, especially where the biceps tendon was re-attached with open surgery. My PT is twice a week and I must take pain meds afterwards. However, the ROM is improving rapidly. I Just need to vent a little to people who understand that no one said--hey in addition to a nine to twelve month recovery you are going to be in a lot of pain for months!!! Why don't they prepare us up front?
christine_61665 Dragonink64
Posted
Good question. Maybe because they don't want to scare us, or because everyone is different and they don't know. I really think they don't know. How ignorant I was, I didn't know what a nerve block was, and no shared that it would wear off. So I thought this isn't so bad and didn't take the meds they gave me until about 16 hrs later when all wore off. Ow!!. Then after 3 mos I was told no more meds because that's our protocol. I didn't take all the time but occassionally when my patience wore down. This forum cheered me up, I wasn't crazy. I'm still replying 2 years later. Keep at it, don't try and be tough. My neighbor just had this surgery and he's doing way too much.
It will improve. Best!