1. Community
  2. Gut, bowel and stomach
  3. Crohn's Disease

After some advise...

Posted , 3 users are following.

anni_04141
anni_04141

I'm a 27 year old female. Since the age of 24 I have been unwell... joint pain fatigue serve asthma.. firstly diagnoised with rheumatoid arthritis. After some failed treatment and a change In consultants fibromyalgia was the diagnosis. A bit of background below

After various more tests .. ultra scans ct scans blood tests .. all negative. ( note currently on 4.5mg prednisolne). No doctor really knows what is wrong and said there sure that something is but may take time to manifest. In July I was referred to opthlamogoloy as having problems with soar eyes where they will inflame and water for no apparent reason. Just had an MRI of brain and optic nerve waiting results. 

I have suffered badly with IBS ( which I believed to be) I didn't ever follow it up as I didnt want to go to the GP with yet another problem. I have sufffered with quite a few suspected UTI in last few years. The doctor this time as diarrhoeawas present to do a stool sample. It came back abnormal with high levels of calopreactin. Rang test again to make sure it wasn't an infection. Once again same result. Doctor now wants me to have a camera to see what's going on. I am extremely anxious person getting me into an MRI scanner was a job and a half. Any advise or experiences would be great.

is there any other less invasive test I can have to determine if I do have an inflammatory bowel disease

can anyone relate to any of my symptoms. I havnt had any blood but do have mucus. My father also has ulcerated colitis. I have been referred onto consultant what can I expect. 

Any info advise or experince would be great to hear 

thank you excuse my lack of grammar my keyboard has decided to stop working and can't use question marks 

1 like, 2 replies

2 Replies

  • joel_57234
    joel_57234 anni_04141

    Posted

    Hi anni 04141,

    Most of the tests are invasive,

    You may need to get a CT scan, Colonoscopy which are the main tests to make a dignoases. In a colonoscopy they take biopsies from the bowel and can examine it under a microscope. A stool test isn’t a dignoases of IBD as anything can cause High CRP. 

    I was admitted to hospital and spent a few days as my CRP was very high. I was then put on drips and fluids to help decease the inflammation. They did a CT which revealed sereve swelling/ thickening along the Large Bowel and the most in the Terminal ileum. The colonoscopy which found things. Now I’m waiting to get a dignoases.

    Hope you get tests and find out what’s wrong with you,

    Good Luck Joel

  • Hollaka79
    Hollaka79 anni_04141

    Posted

    I find the capsule test the best of the “crappy” tests but only shows small bowel I believe. Colonoscopies aren’t too bad & if you’re really worried ask for enhanced sedation.. Good luck & hope u feel better x 

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.