Posted , 1 user is following.
I have had and still experiencing pmr for just over two years, I have read nearly all the experiences on this site and masses of literature about this condition, But what I really want to know is - when I come off steroids will my FAT face and over developed snack eating habit making me put on weight return to normal. Honest answers only please!!!!!!!!
0 likes, 4 replies
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Guest
Posted
I would love to be able to answer your question but am not off steroids yet. And sadly most people on this site are not in that happy position either. But presumably, in theory, your face should return to a normal shape and if you try and snack on carrots, celery and apples - which don't have the same charisma as biscuits, cheese and chocolate, but are definitely less calorific - then perhaps - perhaps - a new you will emerge!
However, losing weight is a dismal occupation even without PMR side effects. I was weighed recently at the surgery and the nurse was most sympathetic and said steroids were the very devil for weight gain (as the scales whizzed ever upwards).
Well done for being steroidless and the best of luck.
Margaret Moonface
Guest
Posted
I'm sorry - I misread your message and realise that you are not off steroids yet. The only thing I know is that once you get to below 7 mg per day the side effects should be fairly minimal.
Margaret
Guest
Posted
I don't know what dose you are on at present but, yes, you will lose the 'fat' as you call it as you reduce the dose.
Margaret has said she feels that the side effects are reduced when you get below 7mgs, and certainly from my experience I started losing a little whilst on 4mgs for several months from both my face and my waist (steroid stomach!), and reduced to 3mgs. BUT, hey-ho, pain worsened, increased back up to 4mgs however have just heard that ESR and CRP are raised and am awaiting a call back from the hospital as to what dose to further increase back up to!
I try my best not to snack at all (nigh on impossible when you start on the high doses, I know) but can't (wont!) give up my 3 little squares of Green & Black's raisin and nut dark chocolate after my lunch! We have to fill up these hamster cheeks somehow!!
As Margaret says, we don't know much about what happens to the weight after you stop the steroids, as those people are probably not submitting to the forum, but this is a plea to all of those who are reading this, PLEASE DO LET US ALL KNOW HOW YOU ARE WHEN YOU DO COME OFF THE STEROIDS - a good moral boost for all of us.
Meanwhile, Pym, enjoy the celery!!
MrsO
Guest
Posted
I know at least 5 people who started to drop weight once they on 5mg and below.
I myself lost half a stone, and then had to up the steroids. But I did not put that half a stone back on.
Two other sites that I visit also have people who have said they lost some most but not all of the weight.
So hang on in there.
I am sad, I got the 'moonface and peach fuzz' and they left rather quickly, quite fancy Hamster cheeks, but got 'chicken neck' instead.
Its the oak tree effect I dislike - but I console myself with the song, oh the oak and the ash and the bonny ivy tree ................
mrs K