After two years of PMR with nineteen months on pred, I can say I'm pretty stable but not who I am.
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I now realize that bilateral knee pain on stairs etc, is one of the last hurtles. I still have no diagnosis for the knees. Last X-ray did not show significant loss of cartilage. Regular walking is not deterred by the knees but thigh muscles limit the distance. I can understand the thighs being affected by PMR, but I question the knees. I have a Ruemy appt. On the 25th before reducing to 6.5 mg. what can I ask be done to sort out the knees as related to PMR? What are the symtoms of PMR when it gets to the knees?
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Kdemers paul45653
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If it all went down to my calves, feet, etc. it could go to your knees. I did go in for some physical therapy and got some relief.
I wish you luck.
paul45653 Kdemers
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nick67069 paul45653
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This is my best guess. I would find a doctor that deals with lots of sports injuries and ask for opinion, after explaining that you suffered from PMR and muscle weakness.
LayneTX nick67069
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He did however help me learn proper way to squat and get up, and use my arms in better form which helps minimize pain in shoulders.
Just be ware.
EileenH nick67069
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The exercises you can do should be restricted in terms of weights used and reps done and rest periods are essential in between. It is often difficult if not impossible to exercise on consecutive days because the muscles have not yet recovered from the previous activity.
Layne's physio claimed to know about PMR - obviously NOT the PMR we have! If they had, they would have been well aware it is the only form of management of the pain and stiffness. So you do need to cross-examine anyone who says that sort of thing.
I am not saying you CAN'T exercise and train - I'm saying you have to be very careful with building up what you can do. It took me from early December to late January to get to being able to ski all morning - I still could not do a long run in one and if I had one hard morning I needed the next day to recover. Short runs interspersed with the rests on the lift meant I could ski much more as did having a day rest between ski days.
Kdemers EileenH
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paul45653 nick67069
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paul45653 EileenH
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nick67069 EileenH
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Do I have your permission to copy your message before commenting on it?
nick67069 paul45653
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EileenH nick67069
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constance.de paul45653
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pauline36422 paul45653
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paul45653 pauline36422
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EileenH paul45653
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My suggestion would be to start by looking for a Bowen therapist and see if they can give you any relief. I know people who have gone with a back problem - and then realised their knees were a lot better too. Or a good (probably private) physio or a sports massage therapist. These are all easily available without having to beg for a referral - and in the case of muscle problems far preferable IMHO to doctors. I was told by an orthopod that my low back pain that eventually matured into the sacroiliacitis was wear and tear and I'd have to live with it - I couldn't walk or stand for more than 1/4 hour without severe pain so it really wasn't very practical! The pain clinic doctor and physio were horrified - but orthopods are orientated on problems due to bones. Muscles don't show up on x-rays so they then conclude there is no problem.
As nick says - they are all connected. Spasmed back muscles can cause referred pain into the buttocks, thighs and even as far down as the knees. They also put stress onto the surrounding muscles which change their position minimally to accommodate the pain and reduce it - and it can have effects as far down as the feet.
EileenH
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