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I am grateful that this group exists. It really helped me to make decisions that were so difficult, and I promised I would share to help too.
I had always had a little fibroid, since I could remember. Luckily, I had a baby and was not impacted by it at all. When I turned 45 though, all hell broke loose.
It started by a regular ultrasound, and learning that I had grown another fibroid, and my original one tripled in size. The doc said it was about 6 cm - and the other one was small. He told me not to worry, and to wait. Can I share, hindsight is 20/20 & waiting
cost 2 years of agony.
The first year went by, and I waited. But I couldn't help but notice how "large" I was getting. At first, I attributed it to middle age and thought that this is what happens when you get older. Truth is, I workout regularly & always eat healthy, so in my mind, middle age made sorta sense. That was how the first year went.
A couple of months after my 46th birthday I got my first bladder infection. It was March and I remember being so uncomfortable - running to the school's washroom literally, 2-3 times an hour. I am a teacher so I was really lucky to have good support to cover my classroom.
I took the antibiotic, and it helped, but it came back in April, July, August and September. Each time the doc prescribed me antibiotics. Convinced it was resistant to the antibiotics, I asked the lab to provide me with the exact bacteria name so I could ask my doc for the right antibiotic. I became my own doctor at that point, and started researching. ibaskef my docif the fibroids could be having anything to do with my utis. He said, doubt it. I shared with him that I didn't understand how I could be gaining so much weight, when I eat healthy and exercise all the time? He told me to cut out carbs. I literally begged him to send me to a gynaecologist for an opinion my fibroids. So he did.
The gynaecologist didn't even physically exam me. He read my ultrasound and told me that the only surgery he would consider was a hysterectomy, because just cutting out the fibroid tissue would be too "morbid". Stunned, I booked for the hysterectomy six months away.
November came and I got another uti. The doc put me on antibiotics, and it went away. I had about a two week turnaround, and it came back! I went back to the doc and even though my test came back positive, he told me he wouldn't treat the infection. I was told to take Tylenol and wait for my own antibodies to break it down. So I did.
By December, I had a mini seizure and ended up in the hospital. While there, a urologist put a camera through my bladder. It felt like rape - it hurt so badly. It was there though that I saw my bladder on a tv screen, with a huge fibroid pushing down on the wall! The doc shared that my uterus was healthy & he couldn't understand why my gynocolgist wouldn't recommend ufe. It was later that I understood that the economics of removing a uterus is much more profitable for a gynocolgist then trying to save it.
So I went for ufe. It was March when I was able to go. Here is how it went:
The procedure itself was okish. The uncomfortable part was when they attached a clamp in my femoral artery. It felt like spaghetti being stretched, but not in a good way.
Recovery over the first week was horrible. I think it was made worse by the opiates they gave me. I developed a reaction to them and needed to be put on oxygen. I do remember some cramping, but for the most part, I have very little awareness because I was so out of it.
After I stopped the opiates, I ended up regaining my mind a bit. By the middle of the second week, I tried to even work out - but I was not good and decided to wsit the extra week. I began working out after a full 2 weeks, going slow and working my confidence level up because I was very afraid of the clamp. I felt it while I worked out (really gross).
I had my normal period two weeks after the procedure. Loads of severe cramping, well contractions really...I saw a bit of grey matter in the toilet, and I figure it may have been some of the fibroid. It makes me feel yucky thinking about it too much. Anyhow, normal blood flow, but extreme cramps.
My tummy went down before I left the hospital. Not all the way, but siginificantly that people noticed. It has been 7 weeks now and I am literally melting without trying to diet. I have shrinking pains because my hips are contracting. Again, I'm not trying. I think it is a combination of being able to pee properly and suffocating the fibroids.
I was supposed to get my period again last week, but all I got was severe cramping. I mean, contractions. Still no period & I am thinking I may have just skipped & I hope that it will come back.
On a brighter note, I have had no bladder infection for 7 weeks!! I can pee again!!! It has not taken away all the discomfort I have had with my. Ladder but about 80%. That's good enuf for now
Good luck with your discison. Know that it is getting better for me and I trust it will continue. I will keep you posted !
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