Age

I'm 26 now but was 24 when I believe this all started (though you never know when it really starts as can be non symptomatic for a while). My gyno didn't mention scar tissue, I am hoping I have caught it before that.

If you research on this condition it says you can get this from a young age and sometimes with medication it goes completely

I am 34 and was diagnosed a year ago but I believe I had this for years just undiagnosed. I don't recall my doctor mentioning scar tissue. Although I was so upset during my exam with him. I also saw a dermatologist for her input and again do not recall her saying scar tissue. They may have but so much was being said during those appointments. When I first saw my gynecologist I already researched myself and 100% knew I had it. Obviously from reading online and looking at pictures I was terrified so basically cried my whole appointment once he confirmed.

I am 32 also, and was diagnosed about 4 years ago. I've had fusing and the scar tissue. Look into the thread "An experiment with Borax" and read through it. This is what I've been doing for about 4 months since finding this site and that thread and it's made a huge difference in my LS. Hang in there!

Hi i'm 21 and was diagnosed when i was 19 with LS. I don't have any scar tissue, does your doctor mean the white patches of fusing when he mentions scar tissue?

from what i have been told regular use of steroid ointment should keep this from progressing. There is a post on here called 'an experiment with borax' and many people have tried borax solution and had positive results with reduce in fusing and white patches

Hope this helps

I was recently diagnosed with LS. Although I am much older I wanted to tell that I had all the symptoms; itching, biting, burning, tightness and fusing. As another person mentioned, find the forum "an experiment with Borax"! I did and as soon as I started the treatment my symptoms completely disappeared! I am now working to hopefully release the fusing that happened. I have not had to use the Clobetasol since the second day and that was over six weeks ago. There are also good articles on the web about "medical uses for Borax" that I would highly recommend. There is a lot of hope and help on the forums and the net and you were diaeatly which is a Hugh blessings

! Read everything you can ... Blessings

Sorry, "diagnosed early" which is wonderful

I think the important thing Kimberly to know is that you have this condition. Possibly hereditary. Since my mother is so old and can't remember anything I cannot rule out that she did not have it early on. Also I have noticed, that everything she has I got 20 years earlier than she did. From arthritis to the second toe on my left foot. Injuries surgeries and no resolution. Have you been able to talk with your mom about it a lot of people do not know they have it. Like I did not know I had no idea. I was told for years ago that I had it. They told me what to do but they did not tell me what might happen besides it could be pre-cancerous. Now I'm having an extreme case of thickening and a sensation of being cut which is almost unbearable.

Hi Kimberly, I just posted also. I'm 28 and started having symptoms earlier last month but this is definitely what I have. Due to all of the itching I did when I was half asleep at night I think I caused some of the scarring, or fusing, as well and I certainly made everything worse in a matter of days. Now I'm using a few natural remedies and hoping this doesn't get any worse.