Agglutination

Posted , 11 users are following.

Hello all,

I thought I had LS under control but I noticed recently that my labia is disappearing.  Everything is caving in and getting smaller.  Should I use the Clobetasol more often than twice a week?

I know many brave women have faced worse so I'm trying not to feel sorry for myself.  But where will I be in 20 years is what I worry about.

Any suggestions?  I'm seeing gynecologist next Monday for advice.  

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  • Posted

    I agree that I don't think increasing use of clobetasol will change anything. Like I said in earlier post, when I saw LS specialist six months ago she mentioned that one of my labia had syarted to flatten (that is what she called it) But did not seem concerned and did not tell me to increase my use of clobetasol. I have been using it once a week like ordered and it has kept redness away but what I call "melting" evidently continued as I only have ridge left on right. Will see her again in about three weeks and have list of questions I hope she can answer.

    Yes it is a scary disease and what is even scarier is that not much is known about it. I am so glad I found this group! I was feeling so alone before but now have all you to talk to and learn from. Thank you all so much!

    • Posted

      It will be interesting to see what your dr says so I will keep following the thread.  Loss of ridge that's a good description, I think we are experts on this now and what looks correct for us might not be for someone else.  I see my dr January next but use clob once a week.  The clob does help with the redness you're right x

    • Posted

      I just got call from LS specialist office saying they need to cancel appt for Sept 18 but good news is they gave me an appt for Sept. 5th. So hope fully I will have some answers sooner then expected. That is if she has the answers! And you are right I think all of us are different. Will keep you posted.
    • Posted

      Would you able to tell -  Is it the labia minora or the labia majora that is meltin away? 
  • Posted

    Hi

    I have been trying to tell as many woman as possible. I have had LS for 30 years or more. I only recently thought of looking on the Internet to see if anyone else had the same problem!!! Yes, taken me 30 years to think of this. On this website I came across the following mixture which is just unbelievable. I haven't had an itch for over 3 weeks. 4 tablespoons of organic castor oil, 2 DROPS of Lavender Essence Oil and 1 DROP of Lemon Grass Essence Oil. Be careful with the drops and don't exceed what is stipulated. You can also use baby cream like Fissan paste or Desitin as much as you like and I personally wouldn't use the steroid cream more than twice a week as it will eventually make your skin very thin.

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