Posted , 6 users are following.
My husband has just been diagnosed with hemochromatosis. I’ve noticed for a while that his alcohol tolerance has lessened. He is only a social drinker, maybe goes out every couple of weeks but Before he would have a few pints of beer and be fine but now he seems to be getting drunk very quickly. Is this coming connected to the condition
1 like, 14 replies
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sheryl37154 sally32983
Posted
Is he big around the middle? If he has a fatty liver - hard to avoid really - elimination of sugars and starches helps.
sally32983 sheryl37154
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ellen12819 sally32983
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One glass and I am done, my tollerance for alchohol in now gone. Being as it is the worst thing anyone with Genetic haemochromatosis can do is drink alchohol I wouldn't be trying anymore anyway. But it was always a joke , watch how quick Ellen gets slaughtered ... I was only diagnosed in the Summer and they do not think my liver is bad, but I am alchohol intolerant.
eric89660 sally32983
Posted
framac sally32983
Posted
eric89660 sally32983
Posted
ellen12819 eric89660
Posted
Alcohol is a major factor in cirrhosis, which, once you have it, your liver is not recoverable. The fact is ... it will make your liver worse if you drink. Liver damage is the one main thing we all are trying to prevent. You need to find something else to help you rest. It is a s****y condition but we need to eliminate the possibility of death and deal with what's treatable. Take care Eric.
eric89660 sally32983
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sheryl37154 eric89660
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If you are diagnosed with HH and follow treatment diligently, you should not develop cirrhosis of the liver, unless you are a heavy drinker even after diagnosis.
I have one red wine with dinner - for me it is medicinal (as well as enjoyable!). Sugar and starches knock me about and make me very tired. I eliminate these foods as much as possible. Beer is high in carbs so that may be why it affects you more. I have read in medical research that we do not process sugar and starches very well which explains my problem.
My dr took 9 years to diagnose me and I ended up with a lot of problems, damaged liver not being one of them. My C282Y/C282Y is aggressive (as described by my haematologist), and I load iron very quickly, so I am not one of the less affected ones.
I am not going to die from it now that I am treated and maintain that very diligently.
ellen12819 sheryl37154
Posted
Hi Sheryl, happy new year to you.
You have set me on another quest looking up about polyphenols now, i would love a glass of Rioja occasionally . Cutting the sugar makes sense; the specialist didn't tell me that ... but i will now .
We have to find out so much ourselves, six months in and still I learn more every day. Mine took eight and a half years and like you its rubbish but no liver damage (touch wood). Thank you for your response it has been helpful to more than one person.
sheryl37154 ellen12819
Posted
It was funny - after writing the above, I succumbed to a cookie with white chocolate and cranberries - who could resist? Within minutes, I was slumping over the table and in bad need of a good lie down. Once again a self promise to never do that again!!!!!
Maybe I should have a red wine instead whenever I am offered such goodies.
ellen12819 sheryl37154
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I have a need to treat myself to fizzy sour sweets after my ven ... then wonder why I am awful for hours after. Time for my once a week treat of tangtastics to be renamed poison in my head and left on the shelf. I am an acute anaphylactic so my list of treats has diminished to nill as of today 😕😢 sad but true. My treat needs to be... a film or magazine or maybe just not one by mouth. But your cookies sound amazing.
sheryl37154 ellen12819
Posted
What I have found that works in waking up my brain when I am tired is chewing peppermint gum - the sugarless kind. "Extra", if you have this brand where you are.
By the time I am dressed for going out, I am lagging and it is hard to get moving. The gum really helps. When I have to attend a meeting (where sitting makes me go to sleep), chewing gum helps keep me awake and concentrating. I think it is the combination of peppermint and the movement of the chewing action. Disgusting I know, but better than disgracing myself in front of people who don't understand the symptoms. I don't have to chew constantly, only when I need a wake up.
Would you be allergic to that?
Pudding80 sally32983
Posted
sally32983,
I have never drunk a great deal of alcohol following getting drunk and feeling really ill when I was 16 but I have always enjoyed certain spirits and liqueurs on special occasions, wine with nice meals and cider occasionally.
Since I was diagnosed with HH (C282Y homozygous) and have had venesection treatment I rarely fancy alcohol. I noticed it within a few weeks of starting treatment - just over 3 years ago now.
At first I thought it was because I felt a bit rough from having once-weekly venesections and maybe my body was just protesting at an added burden but now I am on maintenance this hasn't changed. I don't always have wine when I go out for dinner which is particularly unusual for me.
At the same time, I have stopped liking quite a few foods which I previously enjoyed (e.g. I used to like broccoli and now I hate it) and I have started eating a couple of things that I previously couldn't stand (e.g. sardines on toast). This was more of a surprise to me.
It is a peculiar condition with its combination of common and individual issues.