Alendronic Acid and side effects - useful reading
Posted , 70 users are following.
Thought it may be of help to get matters in perspective. Do look at the site at **** on bonehealth and osteoporosis. Wish I had read more before I started taking the drug. I have now stopped it, convinced that my joint and tendon problems, racing heart and general and increasing awful feelings of fatigue and illness are linked to the start of taking alendronic acid. I understand now why my GP was a bit reluctant to prescribe it in the first place but I trusted my hospital consultant and believed he would be looking after me for the good. Maybe this trust was a bit misplaced?
[color=green:2d0a158354][size=9:2d0a158354][b:2d0a158354][i:2d0a158354](Sorry but Patient Admin have removed either a telephone number, an email address, a postal address and or web address, from this posting, as it is the policy of Patient UK not to publish these on this forum.
If you wish to communicate directly with people, you should register, for free, with the forum (click Register in the menu list below the green banner above). You and other registered members will then be able to communicate with each other via Private Messaging (PM) or e-mail.) [/i:2d0a158354][/b:2d0a158354][/size:2d0a158354][/color:2d0a158354]
3 likes, 135 replies
Juliefogs
Posted
I have always taken a calcium supplement, as my Mother and Grandmother had osteoporosis. Am now taking Calci chews, which the Dr prescribed.
My problem at the moment is, that I have suffered from anxiety a few months ago, and am now wondering if any of my current symptoms could be that. I wasn't feeling anxious about the pill before I felt strange, so now I suppose I have to sit it out for a week, and see if the symptoms subside.
Don't want my spine to crumble, but can't live like this.
sharon03804 Juliefogs
Posted
Hello - I chose not to take Alendronic Acid after finding out that one of its major side effects are digestive disorders but more worryingly, osteonecrosis (which affects 10% of patients). Osteonecrosis is when your jaw becomes infected and dies! Personally, I was not prepared to take the risk and indeed the American Maxillo-Facial Surgeon Faculty are calling for it to be stopped. Interestingly, my sister also has developed osteoporosis (our dad has it so the doctor thinks it's genetic) but she also has osteoarthritis and when visiting her Consultant a few months ago, she felt that she had to tell him that she had also chosen not to take alendronic acid. He said that he wasn't supposed to say about drugs but that "in the orthopaedic community, they didn't like bisphosphonates". I'm not surprised as they are generally used in the oil industry for fertiliser amongst other things. They also just harden bones, they don't make bones flexible and as such, over time, this can make them more brittle. As I have a number of food intolerances, it was a no brainer for me not to take this drug. However, a friend of mine is a qualified nutritional therapist and of course, it's not calcium that you need to help your bones, it's the following:
a/ weight bearing excercise like tai chi, yoga etc - I now do tai chi six days a week for ten minutes a day and my back is much stronger - it took about eight months. I also walk an hour a day six days a week. Basically, bone makes new bone when it needs to, so if somebody is largely sedentary, this isn't going to help.
b/ the main supplements for bones are vitamin D3 but take a good one (it's a fat soluble vitamin remember), vitamin K2 (which most people get but a good source are eggs) and you should never take calcium without magnesium. Calcium can store in parts of your body if it's not readily absorbed and vitamin D3 helps your body to do that.
c/ remember that mainstrea health professionals (who I think are wonderful) have no training in nutrition apart from 5 hours in 5 years' training. As such, to have help to tailor your osteoporosis needs, you need to see a nutritionist (not an NHS dietician).
d/ I also found when I was first diagnosed, a site called Save your bones. It's run by a nutritionist but I found the site really helped me to understand osteoporosis. It's NOT a disease, it's reversible. The drug companies want you to think you have to be on drugs - you don't.
Guest
Posted
angela00502 Guest
Posted
Guest
Posted
Now I am unsure if the achey back is due to Osteoporosis, or Alendronic acid.
The doctor says go back in 4 weeks, and we can look at something else, but everything seems to have side effects. I know it won’t necessarily mean I will get them, but it is worrying.
Considering trying some extra supplements, as I have read that Magnesium is good for the bones.
It is a nightmare isn’t it! Kind regards, Julie. :o)
Guest
Posted
Thanks, Reguards Max
Madssec
Posted
I was beginning to think that I was imagining this. I'm on steroids and take AA every Wednesday and I always feel awful; achy, flulike symptoms, sometimes upset stomach, shivvering and cold. As I am coming off the steroids I'm hoping to stop tA soon too. I hope you get some answers soon .
U_See
Posted
This is very interesting to me. I have ulcerative colitis and after 2 years of repeated high doses of steroids I have been put on to alendronic acid. i have been taking it for about 4 months and although I have not noticed any acute symptoms I am aware of a burning sensation in my stomach and general queasiness after taking it. What I hadn't linked was the chronic fatigue and fuzzy head as these are side affects of the disease anyway.
What I really wanted to say is that I have found out today that you must not get pregnant whilst taking this or any other bisphosphonates or in fact for at least 2 years after taking it. This has come as a horrible shock to me, I always read the leaflets that come with medicines and I am sure that it did not mention the 2 year break before pregnancy, nor did my consultant. If I had known this I would not have taken it as starting a family is high on my agenda, something I have already been warned might not be easy and require yet more medical intervention.
Hope this information is helpful to somebody.
Spindles
Posted
Apparently the drug stays in your body for 10 to 12 YEARS after you stop taking it! There's speculation that rather than strengthening the bones it can make them more brittle, caused by the fact that it stops the production of new bone and just strengthens the old stuff meaning that you end up with dense but brittle bones. There is a fairly rare problem where people have been on the drug for a while and they get sudden breakages of their femurs caused in an insignificant way, for example slipping off a kerb or shifting their weight onto one leg. One survey found that of all the people who had experienced these breakages, something like 93% had been on alendronic acid. They had reported pains in their thighs for some months before, along with muscle weakness and these are the symptoms that I had been experiencing for about three months. My right thigh would ache a lot when I did more than just walking around the house. As for muscle weakness, I was finding that if I lifted anything heavy one of my legs would give way. The most recent event was when I was putting on a pair of trousers, standing on my left leg while I put my right leg in and it was just as if someone had kicked my left leg from under me and I fell with my right leg raised and landed on the base of my hip joint. Thankfully I don't appear to have broken anything.
I went to the doctor, armed with some printouts from the internet which didn't endear me to her and said that I had been having the pains and muscle weakness and had read that problems can occur after being on them and that five years should be the maximum to be on them. She got out her little drug book and said "Well it doesn't say that here" and I thought No, it probably doesn't as that is more than likely issued by the drug company who makes the tablets! She has reluctantly agreed that I should try staying off them for a while but I intend to stay off them for good. Even if there is a risk that my bones will get more brittle, if the drug is causing me pain and muscle weakness which leads to falls then I'd rather take the risk. I'm not one to suddenly fall over after losing my balance, all the falls I've had, which aren't that many, have been caused by me standing on a chair and falling off, tripping over a carpet, slipping down the stairs because I wasn't wearing any shoes etc. and not just by losing my balance. The doctor, by the way, didn't do anything about the muscle weakness or aching thighs but she did grudgingly order a blood test to check my calcium levels, something they are supposed to do before they put you onto a calcium supplement.
Research on alendronic acid lead me on the finding out about the other drugs I am on. I take Omeprazole for heartburn but apparently alendronic acid can cause heartburn and calcium can cause heart attacks. After popping an Omeprazole every day while on alendronic acid, since I have stopped taking them I have only had one bout of it and that was caused, I think, by stress.
To sum up, I think that whenever people are put on ANY drugs, they should not only read the information leaflet that comes with the medication but they should look it up on the internet when they will REALLY find out about the drug because although the drug companies give possible side effects in their information, it's not the same as getting it straight from the people who actually take the stuff which means that all the niggling things that you thought were just old age are more than likely down to the drugs that doctors seems to dish out like sweets without thinking of the long term consequences. Sorry this has gone on so long but I've got a real bee in my bonnet now about prescribed drugs!
brado
Posted
I was prescribed alendronic acid and calchichew (D3 Forte) a year ago, after my lower lumbar region
severely collapsed. Probably caused by gardening and lifting my wife to a sitting position every morning,
for about 18 months
I have 2 collapsed vertebrae T10 and T12. Since then the arthritis in my ankles and knees have got
considerably worse. I also have itching everywhere, only mild, but an annoyance.
I also get tendon pains in my left leg, when I lie down. This gets worse until I can find a position where it
goes away.
I also get indigestion every night. I mentioned this to my doctor, but was advised to try to put up with it.
It wasn't then as bad as it is now. (3 months ago).
I thought I was on my own with these side effects, thinking that the doctor would know from experience
and would tell me if it was common.
I am now going to stop taking the tablets for a months trial.
To keep the records straight ,I will tell the doctor when I see him next week
Cruiser
Posted
I am 79, and have always been healthy, reasonably active, until I fell and broke my leg about 18 months ago. My doctor referred me for a bone density test, which I had a few weeks ago. The doctor's receptionaist phoned me yesterday to say the results were in, I have signs of osteoporosis, and the doctor prescribed Alendronic Acid and CalcichewD3. I have not started them yet. I had already been taking Calcium with vitamins D and K for a year (buying them myself) I don't know the actual result of my bone density test, but I can't help feeling that in view of my age and the fact that I did break a leg the hospital and/or GP may assume that I am bound to have osteoporosis! Before I broke my leg, I went dancing two or three times a week - energetic dancing like quicksteps and jives - so had plenty of exercise. I am now getting back to dancing although not so often or quite so energetic as before, but this is improving. My broken leg was not the result of losing my balance and it was the first time in my life I had ever broken a bone - other falls have resulted in pulled muscles or sprained ankles. My point is that I defy anyone who falls down a flight of concrete steps -merely by not looking where she was going -not to break something whatever their age or strength of their bones!
cathy_1
Posted
I am an over 60 female. I had a scan after breaking a bone in my foot this summer and have been diagnosed with Osteoporosis of the spine and "thin hip bones" (thank goodness for a layer of cushioning fat, great for soft landings!)
I have taken my 4th Alendronic acid tablet this morning. I have noticed aching limbs at night, more than is usual for me. Now, one leg is aching and I know I will have trouble sleeping tonight. Again. I have had to take Paracetamol Plus in the middle of the night to ease aching bones since taking these tablets.
I had read the leaflet already, but looked on line and found this forum. Having read this thread, I am resolved to ring my GP in the morning!
I also take Calcichew D3 Forte twice daily (although I keep forgetting them, not yet being used to the regime and being rather forgetful!) Hopefully these will do no significant harm.
I wonder what my GP will have to say...
pat24839 cathy_1
Posted
yvonne8
Posted
.....going Thursday, I wonder what the GP will say too.,...
angela00502 yvonne8
Posted
Anhaga angela00502
Posted
Please note that this post is old. Over a year old. Why not start a new post then maybe more people will see it?
Sorry I can't help with medication thoughts as I've never taken any OP meds.