Alendronic Acid and side effects - useful reading

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Thought it may be of help to get matters in perspective. Do look at the site at **** on bonehealth and osteoporosis. Wish I had read more before I started taking the drug. I have now stopped it, convinced that my joint and tendon problems, racing heart and general and increasing awful feelings of fatigue and illness are linked to the start of taking alendronic acid. I understand now why my GP was a bit reluctant to prescribe it in the first place but I trusted my hospital consultant and believed he would be looking after me for the good. Maybe this trust was a bit misplaced?

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  • Posted

    I am a (just) 70 year old woman and had been taking AA for eight years and read that you shouldn't take it for more than five years (after years of being told that I needed to be on it for life)   I did a lot of research and was horrified to find out the affects of taking it so told my doctor I wanted to come off it but the doctor was reluctant because I had been diagnosed with osteoporosis in my spine several years before by the Twin Research Unit in London that I go to.   It was eventually agreed that I should stop for a while, mainly because I had been getting lots of pain in my thighs and a weakness whenever I lifted anything heavy one of my legs would give way. I found out later, whether true or not, that AA stays in your system for TEN YEARS after you stop taking it. 

    By the way, I had been on the tablets for a couple of years or more when my doctor read in the notes that I had been prescribed calcium D3 tablets but had never been told or given a prescription for them so I'm on them as well.  Unfortunately there are problems with calcium as that can build up in your body and interact with other medication.

    It wasn't long after stopping the AA tablets that I slipped in the garden and broke my femur clean in half.   Apparently a study was done in another country and it was found that of all the people on the study who had fractured their femurs from minor falls etc. 90% of them had been on AA!  The stuff doesn't strengthen the bones by making them denser it just hardens what's already there, making them not strong but brittle.  This, as well as causing your jaw to crumble away (osteonecrosis of the jaw) was another reason for me giving it up.   Unfortunately, after my break I was told that as it was two years since I came off them the "holiday" was over and I should start taking them again.  I am reluctant to as my thought is that what's the point if I can break the strongest bone in my body by a simple fall when I'm on the tablets so why take them.

    One interesting thing I found out after a CT scan for an abdominal pain was that I had sustained a compressed fracture of one of my vertebrae some time previously.  I hadn't known this but put it down to when I slipped on the stairs and went down a few on my bottom, this was a couple of years before I broke my femur.  Painful at the time but wore off.  What's the point of taking the tablets if they don't seem to protect you from broken bones?  I wonder if the doctors get paid for every person they prescribe the AA to? 

    • Posted

      Can you go my thread, "Are we being lied about the side effects of AA?" 

      as people need to read what you have written.

      Breaking your femur is a side effect of AA as you have said and they know that.

      It is awful what has happened to you and there are other people this has happened to too. 

      Please go to the the thread I have mentioned.

       

    • Posted

      So sorry to hear about Spindles!  This is dreadful. Everyone who is told that they should take AA needs to read this as you say Kathleen. They need to make informed decisions. I am so glad that I subscribed to this forum but it is devastating to hear about so many people who have suffered from such dreadful side effects.
    • Posted

      The problem with calcium and D3 in isolation is that more than the Vitamin D is required for proper absorption into the bones.  The health issues arise when calcium is deposited onto the walls of arteries causing cardiovascular problems, or into organs, causing for example kidney stones.  One additional nutrient which is helpful is Vitamin K2 (not K1) which is the vitamin that guides calcium into the bones.  ecause of our corrupted food supply most of us are now deficient in it, but it is available in many bone supplements, or as a separate supplement, derived from Japanese food called natto.  There are other things we need, but most of them, like magnesium and boron, should be available in the diet.  
  • Posted

    Very interesting discussion.  These posts should be read by anyone considering taking AA on the off chance they might get an osteoporotic fracture.
    • Posted

      Hi Anhaga

      Thank you very much for the interesting discussion of AA. I am on AA 70mg once a week and AdcalD3 Caplets 750mg/200I.U. On it for nearly eight years now. I had one bone density scan to find out if I had osteoporosis so it proved that I needed to have AA and adcalD3. I had another bone density scan after four years of AA and adcal it didn't show much improvement. So I am still on AA and adcal. Will ask for a bone density scan next week when I see my new doctor and see what he says. 

      by the way it didn't give me any bruises or problem with the skins. 

      Many thanks to the info.

    • Posted

      Hi Kathleen, I can't find your post "Are we being lied about the side effects of AA?"  Any chance of a pointer or link please?
    • Posted

      Try going to the weekly email where they list them. It names some then invites you to click down a further list. Let me know how you go. 
    • Posted

      Another way is to click on my green box to the left and you can see what I have posted.
    • Posted

      Found it, thanks Kathleen.  I had been that way before but memory suffered temporary paralysis. Seems to happem more often these days. Busy wading through books, they make interesting and almost compulsive reading. Expecting to be much better informed when I finish them.
    • Posted

      Yes, I don't have her books but read what was online.

      I have added prunes to what I have to help my bones now from her recommendations. 

      Also, I took onboard her advice not to worry so trying to be more upbeat.

      I guess stress affects everything, so why not the bones as well!

  • Posted

    I am sure the doctor should send one for the bone density scan and blood test for vit D insufficiency before he should prescript the AA and adcal. The only downfall is they forget to follow up the cases and patients just taking drug wishfully hoping for the recovery. This is a wake up call. And thanks to Anhaga
  • Posted

    My doctor insisted I take this after a DEXA which stated I had mild osteopenia normal for my age.

    The first time I took it resulted in projectile vomitting. Thought I may have a bug but the same thing happened the following week. I cannot tolerate this stuff so do not take it. I lost two teeth (crowned roots) because of prednisolone. The first one was difficult as half way through the extraction the dentist found the tooth had fused into my jawbone. She asked if I would like to go to have an emererncy surgury at the hospital or would I allow her to saw through my jawbone to release it. I told her to carry on. I think she was really scared. However it was successful and she told me she had never seen such dense bones in any age person before. She asked if I had ever taken AA and I told her what happened. She is always willing to see me now and is a very nice dentist. I think I gave her an experience she'll never forget. I have stopped prednisolone and at the last recent checkup have very healthy teeth and gums.

    • Posted

      Mild osteopenia would not even warrant considering AA or any other drug for your bones. And you have dense bones! So much for needing AA! Glad you are off it.

      All the best.

    • Posted

      Hi Christine,  I believe that the current recognised thinking is that if you have low BMD (Osteopenia) then you shouldn't take AA unless you have already had a fracture attributed to your bone problems. Your doctor may need reminding that it is your body and you should not be bullied into medication without adequate justification. It seems that your body knew best.

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