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Ohrammer
Ohrammer

Background - wife has had epilepcy for some 45+ years, she has numerous types (Grand mal, peti mal & absense etc)

for the first 15 years it was badley controllled and she spent a long time "in the system" then she started to get comntroll with her meds to the point where she would have one fit a year although would have lots of small jumps& Jerks this lasted until three years ago when the fits came back witha vengence. they have tried new meds (Keppra etc) increasing meds decreasing meds and sent her for a week in the video telemtry unit.

it transpires that some of her fits are NOT epileptic????? snce then her Non epileptic fits have increased to a point last week were the emergency services were called (shee had three 5min+ fits one atfer the other) she is now having 3-10 fit per day all non epileptic. According to the nero specialist on the phone it may be due to too much meds??????

We are to see the nerologist on Tuesday so hopefull get some answers and my wife some rest..

2 likes, 17 replies

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  • karen26258
    karen26258 Ohrammer

    Posted

    Ohrammer, this is so sad, although it's suspected that they're NOT epileptic fits, then what are they? Especially when they are happening on a regular basis. Has your wife had an MRI? I have a variety of seizures that's because my epilepsy is not left temperol lobe but they are coming from many different areas in my brain. This has lead to me having a VNS device fitted, 5 weeks ago. It's a type of pacemaker for the brain, and I am hoping I can start living soon. It's 44 years since I was diagnosed!

    I hope you can get some medical help soon. All the best Karen

  • Ohrammer
    Ohrammer

    Posted

    Thanks for all your kind comments 

    We have managed to get a appointment for Tuesday and I hope that they wil keep her in for the med changes, hopefully I will get my wife back with out all these fits.........

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