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All Fibro sufferers

Posted , 2 users are following.

Enigma5678
Enigma5678

If you are having problems with GP's reconizing your Fibro, then please read my reply to youngatheart's. I have struggled for 35 years with Fibro and receive help from my GP, my local hospital and the Fibro group I joined a few years ago. Also if you Google FM uk you will see lots of information about Fibro. Pain is not good, neither is lack of sleep, but there are lots of fellow sufferers our there who you can get in touch with and we all support each other. We live with Fibro, but I have always been determined that it will not rule my life (Well it does sometimes :-) ) Take care and look after yourselves.

1 like, 5 replies

5 Replies

  • pollmadoll64
    pollmadoll64 Enigma5678

    Posted

    I have had Fibro for 8years but have decided to think postively and do things that make me happy and not take any medication.Having hot baths helps. But I am 6 weeks post shoulder surgery and due to Fibromyalgia it is taking double the time to get better .My biggest problem is lack of sleep! !!!!!!!!!!!!
    • Enigma5678
      Enigma5678 pollmadoll64

      Posted

      Hi! I've also found that no matter what other type of illness we have, from the common cold to an operation. Fibro always seems to run in tandem with these other complaints. It takes twice as long to recover. Warm/hot baths do help, but was advised by the Pain Clinic to find warm water pools the location. I found one at my local swimming pool, albeit the childrens pool because it's warmer than the adult pools lol. Find out when the children are not using the pool and do your stretching and strenghening exercises in the warm pool. The water takes our weight, so we are not putting our bones/muscles under too much pressure. At first, I was doing this on my own, but it didn't take long for others to join in. The other problem of lack of sleep is awful and the only way I have found out of this, is to take sleeping tablets. It isn't something I wish to do, but it's absolutely necessary. Without our sleep, we cannot function and just increases the amount of pain.
  • houses
    houses Enigma5678

    Posted

    One of the worst things I find about FM is the problem that more than 50% of doctors believe that as it doesn't bleed it cannot be hurting. Looking back there are many illnesses that were thought of like that which are now recognised illnesses, I think we will all feel a lot better when FM is found to be damaged nerve ending, or whatever, and we dont have to creep into the doctors surgury appologising for having something beyound his/her understanding. 
    • Enigma5678
      Enigma5678 houses

      Posted

      Hi! before I was diagnosed with Fibro, I also used to creep to the doctors. The reason being, I was in awful pain in different parts of my body and because of this, my life was becoming more and more narrow. The Doc's looked sympathetic, but didn't understand the problems. Finally, I was diagnosed and I no longer creep. I am now far more positive on my visits to the Doc's and Hospitals. Mainly because, Fibro is now accepted and reconized by the medical professiion.  Also, my Doc sent me to the Pain Clinic where they explained all about Fibro and the type of help that is available. It doesn't stop the pain and all the relating problems, but it makes you stronger and more determined to demand (Yes! I did say demand lol ) all the help and advice which is out there. Being positive and determined made me feel more confident and more in control of my life. Hope it works for you too.
    • pollmadoll64
      pollmadoll64 Enigma5678

      Posted

      We were asked that very question' how did we feel when we were diagnosed?'. At the Fibromyalgia management course, I did at the Mineral Hospital Bath and all of us said that we were scared,angry and relieved that finally we had a diagnosis which meant a recognition and support team for us. The worst part for me was two years of having no idea what I had,having seen four neurologists who said sorry sometimes one cannot diagnose something. I was about to have a lumbar puncture but then luckily saw a Rheumatologist 6 years ago who diagnosed me straight away. Then 4 years ago I got a frozen shoulder which was exacerbated by the Fibro.I am not taking medication as I am a single mother with two young sons and found the pills were making me very spaced out and unable to function properly.Let alone drive! ! I am now 6 weeks post shoulder surgery. And it has doubled my recovery time!!!
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