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All I have is pain

Posted , 11 users are following.

gilly2111
gilly2111

hi all. Iam sorry b4 I start. My fibromyalgia is the result of everything. ,,  so the docs say.  For nearly a year now I have had groin leg and back pain with pins and needles and numbness. The pain is unbearable and it is so debilitating iam off balance so much I don't want to even go shopping because iam scared of falling... I have head sweats for no reason I have had mouth ulcers cold sores face rashes constantly  and nothing is helping. All the doc says. Is that it's all part of my FM/ME/ CFS. Iam so miserable and depressed and fed up of all the pain. 10 years of pain has finally got me giving up on everything. No support or friends to turn to and my docs are a waste of time. Sorry for the first ant but I don't know who to turn to for help. Xxx

1 like, 25 replies

25 Replies

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  • Creola
    Creola gilly2111

    Posted

    Big gentle hugs to all. I have been feeling very down myself, so tired of this pain. But I try to remind myself how lucky I am to have found a doctor who has the same condition. He has made it his life work and set up a clinic in Reno to help us. At least he experienced first hand what frustrations we go through. I start at the clinic on the 23rd and will keep you posted. They use as many natural treatments as they have turning to meds if they have to.

    In the meantime I'm using homeopathic, supplements and essential oils for some help. Not to mention the 5 1/2 hours of hell in the ER for the worse pain.

    My Christmas wish is for all of us to have a pain free day.

    • loxie
      loxie Creola

      Posted

      Good luck Creola - I really hope your clinic is able to provide you with some realistic long term benefits and answers to questions.  Here's hoping 2016 is a much better year for you. xxx
  • leeanne35
    leeanne35 gilly2111

    Posted

    Hi I understand where ur coming from and how you feel on a daily basis I suffer with fibro and the same I get numbness in hands and feet pins and needles and unable to even walk my dog go shopping my hand lock up on me the pain is so bad I just wish I could have my normal life bk I'm 35 and was active happy go lucky person now I spend most ov my time in bed I suggest u ask ur doc if u could have carpole tunnel as my pain doctor told me I did after months ov my normal gp telling me it's all down to my fibro x
    • gilly2111
      gilly2111 leeanne35

      Posted

       thanks hunny. I used to be the life and sole of the party. Always out and about doing things worked a 42 1/2 hrs week loved my life work family friends  ect ect ect. This fibro has taken everything from me apart from my kids and grandkids who I love with all my heart. I hate what it's done to me  

      I can cope with the illness but the constant pain it drags me down thank god for sites like this . Merry Xmas and Thankyou x

  • ingrid19972
    ingrid19972 gilly2111

    Posted

    I have had fibromyalgia since 2005 and now have arthritis in. Groin feet and hands.i recently broke up from a relationship and can't believe how much better I feel I have no stress and have started doing things I like and relaxing more.i suddenly found that being relaxed and happy really does help the pain.
  • gilly2111
    gilly2111

    Posted

    Thank you to everyone who has replied to my post..

    had fibro/ me/CFS for ten yrs. then last Xmas had groin leg back pain numbness my scale spasms and I knew it wasn't fibro related. But no the docs put it down to fibro. I had Mri scan last week after a whole year of agony so waiting on results.. I have found comfort in all your replys. So Thankyou everyone..hope you all have a pain free Xmas and new year xxx

    • currychic
      currychic gilly2111

      Posted

      Let us know how you go with results Gilly , Have a great xmas
  • diagnosisisalie
    diagnosisisalie gilly2111

    Posted

    If f its not working, stop what your doing. I found acupuncture helped me the most.
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