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All MTX patients should read this. I nearly died last night

Posted , 10 users are following.

Lisa_Batts
Lisa_Batts

My doctors say 'they don't manage my methotrexate my specialist does'. My specialist took 8 days to return my call. In the meantime I contracted a urine infection and was prescribed TRIMETHOPRIM by my doctor. The doctor would not actually speak with me herself but my questions were passed through reception. They make me feel like I am being a nuisance. By chance my specialist returned my call which I had made 8 days ago and I told him I was now on the above medication for a bladder infection. He told me to go to A&E immediately. This should never be prescribed with MTX. I had only taken 2 of the 6 when he phoned. I wonder if I finished the course whether I would even be here to write this. I have been told I will feel very unwell for some time. So please take care. It has frightened the life out if me that my doctor is 'disinterested' and my specialist took 8 days to phone back and on the basis of this I could have died. I feel very scared and alone and have no idea how to go forward but I am sharing my experience so that you are all aware that to mix these two drugs is life threaten

5 likes, 70 replies

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  • dot04702
    dot04702 Lisa_Batts

    Posted

    Great idea Lisa.  Guess how many pills in the bottle is a great one.  I saw another GP the other day and when mentioned coming off MTX she told me it would have to be decided by my Rheumatologist.  She said the only thing would be finding a suitable alternative!!  Maybe a trip to the Caribbean would help, especially if sunshine is good for RA.
    • Lisa_Batts
      Lisa_Batts dot04702

      Posted

      😂😂😂 I think laying on a Caribbean beach as a group supporting each other would be better than any medication and who doesn't like a bit of sunshine? Mind you I've never seen an unhappy penguin.......don't think that climate would help us though! 😂😂😂 hope you are doing ok this week. Lisa xxx
    • johnfs49
      johnfs49 Lisa_Batts

      Posted

      You mean to tell me that the bikini top hasn't enough support and you need a group ???????????????????????

      But then who bothers to put the top on these days.

       

    • johnfs49
      johnfs49 Lisa_Batts

      Posted

      redfaceredfaceredface Me a cheeky monkey ??????????????

      I just know you had a smile when you read it and probably when you replied. rolleyes

    • Lisa_Batts
      Lisa_Batts johnfs49

      Posted

      😂😂😂 of course I did John, then I sighed a lot thinking oh if only I was in my 20's again... Or even 30's! 😂😂🙈🙈🙊😊
    • johnfs49
      johnfs49 Lisa_Batts

      Posted

      biggrinbiggrinbiggrin 20's or even 30's ??????????????

      I would like to be in my 40's or 50's again, then i coulld chat you girls up on here. lollollol

      Being over 60 ( Not telling how much over ) has it's advantages though.

      The freedom pass, free prescriptions, free eye tests, and that winter fuel grant from Mr Cameron.

      Also being able to be a cheeky chappy with the check out girls at the supermarket.

    • Lisa_Batts
      Lisa_Batts johnfs49

      Posted

      Are you sure you are not my Dad? 😂😂😂

      Sounds just like him especially the girls at the checkout! ☀️☀️

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