1. Community
  2. Bones, joints and muscles
  3. Scoliosis and Kyphosis

All these years

Posted , 4 users are following.

Stobban
Stobban

Hi, All my life from the age of twelve my spine has always been painful and it wasn't till I was aged 60 when I was told I had osteoarthritis of the spine and oh! did I know I had Sciliosis! Probably born with it. The problem is obviously parents and most grown ups believe if children complain with back pain they only want a day or two off school, and I bet this rings true with many who read this, so mum or dad never take you to the Doctor.

Now I'm still in terrible pain but now at least I'm on potent painkillers. I also read of one person who wrote that any Sciliosis pain is constant and worsens when walking, sitting, standing still, bending etc, etc and I know this to be to be 100 per cent right. I also have the pain whilst in bed.

So if I had been diagnosed early in life maybe, just maybe life could have been a little pleasanter.....

All the best. Ron.

0 likes, 4 replies

4 Replies

  • Gabrielle_Barnard
    Gabrielle_Barnard

    Posted

    I have been suffering with scheuermann's scoliosis for 13 years from the age of 12 i am now 25 and was fully diagnosed at 16. I am on a cocktail of pain killers to help with the pain and have had problems with depression because of my pain. I have trouble with prolonged walking, sitting, standing and I have trouble sleeping at night due to the pain. I get numb spots and get pins and needles in my legs, feet, arms and hands. my pain specialist thinks I have carple tunnel but I am not convinced and think it is due to my curved and twisted spine causing trapped nerves. I have two children but have never worked because I have found life hard and found it hard to find a job to fit my condition as I have days when I am in so much pain I am vertually paralised. My pain can be crippleing and I cant move due to sharp stabbs that take my breath away. some days I am fine and try to do everything which leaves me messed up days later. This is the first time I have ever shared my experience of my condition have found it quite tearfull. I have been advised to get on dissability benifit but have felt like this is a lable i didnt want but I am having to accept that i do have a problem and pretending its not there is not going to help so I need to get as much help as possible.
  • Gabrielle_Barnard
    Gabrielle_Barnard

    Posted

    I have been suffering with scheuermann's scoliosis for 13 years from the age of 12 i am now 25 and was fully diagnosed at 16. I am on a cocktail of pain killers to help with the pain and have had problems with depression because of my pain. I have trouble with prolonged walking, sitting, standing and I have trouble sleeping at night due to the pain. I get numb spots and get pins and needles in my legs, feet, arms and hands. my pain specialist thinks I have carple tunnel but I am not convinced and think it is due to my curved and twisted spine causing trapped nerves. I have two children but have never worked because I have found life hard and found it hard to find a job to fit my condition as I have days when I am in so much pain I am vertually paralised. My pain can be crippleing and I cant move due to sharp stabbs that take my breath away. some days I am fine and try to do everything which leaves me messed up days later. This is the first time I have ever shared my experience of my condition have found it quite tearfull. I have been advised to get on dissability benifit but have felt like this is a lable i didnt want but I am having to accept that i do have a problem and pretending its not there is not going to help so I need to get as much help as possible.
  • leony
    leony

    Posted

    I found out by accident that i have Scoliosis when i broke my pelvis at 39 when i asked my mum she was really apologetic and said they thought there was something wrong but didn't want to say as my dads first daughter had died of spina bifida years before by his first wife she died of TB many moons ago before he married my mum she feels so guilty told her not to be so silly luck of the draw. Now as i am getting older 56 found out it has affected my pelvis due to the fracture and is getting really painful, now limping on right leg and bad pain in right hip had to give up work and getting depressed, sending me to pain clinic but god knows when, 4 months and still waiting the wonderful NHS for you. Still not going to blame my mum or dad best parents in the world and he had been through enough and just wanted a little girl mind you i think he could have throttled me at times when he was alive.
  • jessie51
    jessie51 Stobban

    Posted

    HEAR HEAR !!     arthritis has joined the scolliosis in my spine,  pain has been a life long companion and there are times when I get so tired of it all.  I do have strong pain relief, and I was for years on Diazepam to relieve the spasms,  this has been stopped and brought a whole new set of problems to my life.

    Do take care of yourself and I hope you manage to get lots of walking done,  even if it means taking a small stool or shooting stick around with you for rests as required, mine is a fishing stool attached to a haversack,  which I 'hang' on my shopping trolley,  what ever it takes,  I do not wish to add Osteoprosis to my ails.

    Jessis

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.