Allergic reaction mouth ulcers breathing problems,severe stomach reaction leading to multiple operat

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Went to doctors with breathing problems thought it was chest infection which I got every year in the autumn was diagnosed with copd lost my temper then told I had high blood pressure ,was placed on ramopril which I took for 2 years, my breathing deteriorated was taken to hospital on a number of occasions to be told it was the copd chronic pulmonary disease .Started getting swollen legs swollen face , glands and body,developed severe mouth ulcers and was unable to eat because of them .Started with internal bleeding and told had got stomach ulcers and a fistula which required operations. Severe depression. Lots of pain. Emergency readdmitted to hospital after 2 years on ramopril and being operated on , specialist conducted blood tests and lung capacity tests he said had not got copd and the original diagnosis was wrong and had masked the fact that I was allergic to the ramopril and this is what had caused the symptoms. Stopped taking the ramopril and started on losartine went into analphytic shock stopped everything.Now 2 years later still suffering still requiring more operations and still under treatment for the damage to the stomach and on going internal bleeding told could be an induced form of Crohn s disease but doctors afraid to confirm for fear of litigation.

Have talked to other people on ramopril and told they also developed the ulcers, my mother was on ramopril and had been for some time, she developed the mouth ulcers and stomach problems she died in hospital unable to eat or drink unable to talk for the ulcers,the diagnosis was dementia which ment they wouldn't peg feed her ,she had been addmitted with a mild stroke .Has anybody else had these severe reactions ? Sorry this reads like a book but hope it might prevent anybody else going through what I have.

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  • Posted

    Dear Sandy, Read your post and I am so sorry for the suffering you have had to go through. I was on Ramipril for some months before I attributed my muscle pain to the drug, I was lucky enough not to have all the other problems you had. I made the decision to come off all blood pressure medications and work on lifestyle changes instead. Of course when you come off any medication there is some anxiety that you may be increasing your likelihood of having a stroke or heart problems but in my case the medication was affecting my quality of life and I am not somebody who likes taking any medication. I do keep a check on my blood pressure with a home monitor and I take natural supplements that are purported to lower blood pressure. I also read a lot of articles that have researched into blood pressure medications. If you look at some of the research that comes out in favour of medications it is nearly always funded by drug companies which definitely causes me concern. I was so sorry to hear about your mother as well, that must have been a horrendous time for you both.

    I really hope that your symptoms and your general health improves so that you can enjoy a better quality of life. I hope you will get some comfort from reading the comments from other users of this forum.

    Good luck to you.

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    • Posted

      Thank you for your reply.I am also looking into natural remedies alternatives to drugs, a lot of people advice turmeric to help with inflammation and the pain, going to give it a try will post results. Some say for blood pressure use beetroot juice my partner used it and it worked for him but with me and my problems it could be asking for trouble.
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  • Posted

    Oh, Sandy, what a terrible time you have been through.  I feel so sad for you.  I have been on Ramipril for only 3 months - have the cough side effect and increase in frequency of migraines.  I do hope you get sorted out soon and can get on with your life.
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