Posted , 7 users are following.
Has anyone out there had an allergic reaction? Been on Pred for 14 months and am now at 5 1/2 mg and have started itching some hives on my upper torso. Sometimes stomach area other times on the back. Can't just stop taking Pred so wondered if others have experienced this and what you have done?
0 likes, 7 replies
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EileenH Poupe
Posted
I doubt it is an allergy to pred - I think it is far more likely that the higher doses of pred were combatting an allergic reaction to something else and now the dose is too low to do that. If it were the pred it would have happened at higher doses.
At the same time as I developed PMR I also developed an allergy to something in the structure of modern highly commercialised wheat starch - which caused me to itch. Avoiding wheat dealt with the problem and then, after I was put on pred, at the higher PMR doses I could eat wheat. As I reduced the itching returned if I ate more than a small amount although it had improved with the time not eating it.
In my case it isn't gluten - I eat gluten-containing grains with no problem. I can eat spelt, kamut and rye - but not modern wheat. The GP asked the local coeliac specialist who suspected an allergy and basically said if I could manage it with diet not to worry about it and it is possibly part of the autoimmune part of PMR. Antihistamines do help a bit, by not eating wheat most of the time I can manage fairly well - even eating the occasional real pizza (I ive in Italy) but can't do it more than once in a month without an itch.
BettyE EileenH
Posted
Eileen, is it all wheat?. I react to white flour but not wholemeal. Also I'm not sure whether I'd be able to tolerate organic white or would react to non organic wholemeal. In other words, is it the flour or the sprays? My stomach has been trouble free for so long I'm not about to experiment!
EileenH BettyE
Posted
Any commercialised wheat - wholemeal, white. Though I do seem to be able to manage proper sourdough better. And French bakery (in France) is OK. Spelt and kamut are OK. It is something in the structure of the starch we think - I reacted to gluten-free flour in the UK, made by Juvela, washed wheat starch (oh yuk, chemicals). I suppose it COULD be sprays - but rye is fine here, wheat isn't.
BettyE Poupe
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Silver49 BettyE
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EileenH Silver49
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Silver49 EileenH
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