Allergy to Clob perhaps?
Posted , 7 users are following.
I think somewhere there is a thread about the possibility of an allergic reaction to clob, was it Morrel? Anyway, I am thinking I may be ... Have only been on it six weeks after taking Mometasone for a year. The gynae changed me to the stronger drug as a flare I have been going through just never seemed to get better after three months. Right from the start I had such bad burning with the clob that I couldn't do the regime she recommended which was twice a day for two weeks then once for two weeks etc tapering down to every two days till I saw her again. It seemed to burn for hours afterwards. Recently I have been just applying it twice a week, but two days ago the minute I applied it after 4 days I got intense burning and in a lot of pain since. Very red all around vulva and clitorus and my urethra is bright red and of course urine stinging. It's so frustrating as the last week I have been improving and able to go out and even swimming in a salt pool.
I will need to go back to my GP, who won't know what to do with me 😒 But am waiting another three weeks for dermatologist in another city.
Anyone out there who can't use the Clob and is there anything else? I am rather desperate and have taken a antihistamine and of course using soothing tactics like b.soda baths and creams although even the emu oil isn't helping right now.
Thanks in advance.
Lynne
1 like, 15 replies
bennetta lynne1945
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lynne1945 bennetta
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What a horrid condition this is! Grrrr
bennetta lynne1945
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bindey bennetta
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mborr lynne1945
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I couldn't use the clob... It was giving me a non- stop burning sensation... My gynno doctor change it to Triamcinolone a less strong steroids and I have been using it 2x a week for more than a year now with no problem... As a matter of fact my LS is under control and if it was not for the fact that I am still using the meds I wouldn't even noticed that I have it. I also use Estrace 2x week and I rub Vaseline daily. Any "oily" product would give me the burning feeling.
If I feel like a "flare" symptoms is coming I just increase the use of the steroids for a day or two... And the feelings subsides.
You have to find what works for you, your unique body... I have tried a lot comfort measures until I found what is working for me... At least for now..
lynne1945 mborr
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Oh what envy I feel for you with your symptoms under control for now. It's been almost four months for me with ups and downs but mostly downs.
The Clob definitely doesn't help me in the short term, no matter what the long term effects. If I have to spend two or three days out of seven burning my nether regions off even more than the LS causes the same I'd be better off with with nothing. It's a puzzle and a constant daily worry trying to do the 'right ' thing and not cause a flare. I worry about my soap, my knickers (is the 5% elestane in the cotton causing problems?) I think far too much about it all the time but it's ever present right now.
Thanks again and good health
mborr lynne1945
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Morrell1951 lynne1945
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lynne1945 Morrell1951
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She told me not to use any more, which I had already decided, and see doctor which I will do tomorrow.
Protopic, another thing to look up.
kimmiesue lynne1945
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lynne1945 kimmiesue
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But I agree with you that you need to see a different doctor, and if you can a dermatologist specialising in vulval health. We haven't one in my city so I will travel to another an hour away in a few weeks time. It can't come soon enough.
I did get hold of the gynaecologist today as my burning and swelling continues and told her about the Clob and my reaction. She said oh dear! and said to stop using it but made no further suggestion. I asked her if an antihistamine would help and she said no. It's really only helpful for itching. So that's it and boy am I glad I am going to the dermatologist soon. Do you use antihistamine KS? You sound as though it would be helpful for you. You evidently need the ones that make you drowsy as they have the ingredients required for LS relief. That's what I read her anyway.
Good luck with it KimmieSue X
kimmiesue lynne1945
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bennetta kimmiesue
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bennetta lynne1945
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kimmiesue bennetta
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