Posted , 3 users are following.
Hopefully this will work this time. On the 7th it will be 9 months since my diagnosis. I have had mono longer by a few weeks but I use the day of diagnosis as my monoversary. This virus has ravaged my body. I have lost 23 pounds and now have what I hope aren't permanent symptoms. It is a rollercoaster. Some days I feel like my old self. This has been going on since about 5 months in. I would have a good few days and then relapse. Sometimes my relapses were only for 4 days and some up to two weeks. The anxiety this has causes has been debilitating but just like everything else with this, it is come and go. I take small doses of Klonapin when it is bad. I know when a relapse is coming.....I will have an elevated heart rate and severe digestive issues for a few hours to a day.....and then milder symptoms the next day and then I am in relapse. I recently had a severe cold that threw me in to another relapse. With this one the sleep disturbances and the internal vibrating has been my main symptoms. When you have this you really have to learn to live your life day to day. No making plans a few days out.....you just don't know how you are going to feel. The good part is I am finally regaining strength after being bedridden on and off for several months. I hold out hope that someday this will be behind me. Behind all of us. Mono teaches you self care. Slow down.....don't take the good days for granted. My GP isn't very knowledgeable about EBV and especially about recurrence. He didn't even know it was a herpes virus. I have been going to specialists based on my symptoms and none can find anything wrong with me. So I have to believe that this is all just still dealing with the EBV. I have a friend that has been dealing with this just shy of 3 years. She assures me that my symptoms are normal and that someday I will be more better than not. I have to believe that.
0 likes, 6 replies