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Hi all i have been looking for someplace i can seek advice and reasurance as i feel alone ,i have my parents support but they dont know how it is or feels.i am 26 and since my mid teens i have had shortness of breath so i went to the doctors and they put it down to asthma and allergies but inhailers didnt help and anti histermines didnt help either. So i let it go and gave up thiniing it was just me being unfit. Fast forward to abput the begining of last year , i was sitting down watching tv when i couldn't catch my breath so we went to the doctors the next day , they took bloods and did two tests one basic and one detailed , they refered me to have a chest x-ray . Chest xray came back with a mucus mass in the lower part of my lungs, and bloods came back as ok and the detailed bloods came back with a "deficancy" and then i was refered to the respatory specalists at hospital and thats when i learned about ALPHA-1 , so they sent me off to do a lung effancy test , and a 3D CT scan . And these confirmed ALPHA-1. Today i thought i would sit down and do some imternet research on it and its almost as scary as it is interesting. I have taken steps on trying to reduce the effects by going to a gym and inhave a NHS referal trained personal trainer , and he is helping me with this. I have been 4 times now and my fitness has greatly improved cardio is up but my lungs still dont want to play ball . But breathing is a tiny bit easier but not completely. I have started to diet and i have an appointment with the medical and treatment team in april to hopefully find out where i go from there. I was wondering if there is anyone else that could kind of give me a head start on what else i can do ,and what else to exspect in the future.kindest regards tony
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