Alternative social life

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I thought I would start a thread about things we do now to replace some of the things we used to do.

I for one was a big fan of the :bubbly: not to mention the :cheers: I also used to go clubbing and dancing and frequently staggered home via the night bus in the early hours of the morn. My partner and I always said we would see more theatre/music/dance but there always seemed to be a pub/bar/club to go to first.

Anyway, since this horrid old business we have been finding alternative things to do when I am able, some of which have been lovely. I wanted to share one with you.

Last night we went to the Albert Hall for a prom. You can get £5 tix to go right up high in to the overlooking gallery where everyone sits on the floor. The best thing is that lots of people take blankets and sort of bed down - so you can take food and a blanket and just lie down and listen to the music. This was great as the journey there really wore me out, and I spent a nice couple of hours flat on my back listening to Vaughan-Williams.

Admittedly I was shattered by the time we got home and am paying for it a now, but over-all i think it was worth it to be out of the house doing some beautiful :D , even though I dont think I could do it very frequently.

I know that for some of us that would be an impossibility sad and I know that Im lucky to even be able to do that. But I wondered what other things people had found to get them through?

T xx

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8 Replies

  • Posted

    thanks for starting this thread Trees.

    For me it is dog walking, every time. I couldn't walk in the early days of the illness, then after my mum died I got Max Dog. He makes such a difference. He gets me up in the morning because he has to have his breakfast whether I feel like it or not. He has to have exercise whether I feel like it or not. If I am not well I will drive him to the field and sit on a bench and throw a ball for him, or if I am ok we will walk through the woods for 20 minutes which is so mentally restful.

    I used to be a cyclist and would cycle up to 12 miles in one go. I loved my bike and the freedom it gave me. Nowadays i cannot push the pedals round and my daughter has got my bike, but my little Max Dog more than makes up for it. :D

  • Posted


    I've just spent the last ten minutes typing a post for this thread and it just disappeared :evil:

    I have to say, it was the most amazing piece of work too ........ and now it is gone forever ........ as I can't remember what on earth I was writing about :roll:

    I could say some very rude words :evil:

    Will try again later ..... have gone all tired now :roll:

  • Posted

    I used to cycle to and from work (10 miles in total) every day, but now i don't think i will get too far, can't even jog/run :cry:

    I do go with my mum to take the dog out sometimes at the weekends, thats just over a mile :shock: :D

    Other than that, although i'm not getting on as fast, i still do 3D modelling on the computer but with the lack of concentration, it's now a real struggle to think of how to make something where as before i used to just do it.

    This is the worst thing that this illness has taken partly away from me :x

    Katie, one of the things i try to rember to do before hitting the submit button is when i have typed it all out, i select all the text, 'copy' it, then hit the button.

    that way, if the page plays up, i still have the text in the clipboard to 'paste' it back in.

    Just tell me to shut up and bugger off....... :twisted: :roll: :run:

  • Posted

    No James, that is a very relevant point, and one that I am aware of yet never remember to do. :roll:
  • Posted

    Oh thanks James ..... that's really useful smile

    I'll have a go at doing that. I've really only been using a computer for the last ten months when my hubby bought me a laptop (to keep me out of mischief ..... hee hee, little did he know :lol: ).... so I'm really very much a new girl to all this technology. :doh:

    The one I used at work was all set programmes so was easy peasy smile

    But the very first thing I tapped into my brand new laptop was CFS .....

    and the rest, as they say, is history :magic:

    Boy, was that my lucky day :wow:

  • Posted

    Everyone on here seemed to have come across this forum by accident :roll: Why don't G.Ps have information on things like this :?

    Gettin back on topic - unfortunately i have not been able to take up new activities, just been a lazy slob :lol:

  • Posted

    my GP had never heard of it either. someone should tell them about this!

    back on to the topic - i wouldn't advise scrabble as a replacement for anything sad I've never been that great but last night I lost atrociously. Kept forgetting the words I wanted to put down. ah well...

    Trees x


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