Alternative treatments for inflammatory arthritis.

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I have been diagnosed with PMR, then rheumatoid arthritis. I am on prednisone 5mg, methotrexate 20 mg per week and sulphasalazine 2000 mg per day. I would love to manage my condition successfully without drugs. Has anyone been able to do this?

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  • Posted

    Very difficult. Thousands of us have tried, though.

    Forget acupuncture or homeopathy for starters. Practitioners of both have told me they cannot touch RA.

    Diet can relieve the pain somewhat.

    On another thread a woman is reccommending very high doses of fish oil.

    I'm a mainly-vegetarian anyway and tried non-dairy, no caffiene, no wheat, acu., homeo. family constellation and voice dialogue, and eventually, after 9 months of suffering, I surrendered to big pharma.

    A healthy diet is always going to help. Weight loss very important to reduce the stress on the joints anyway. Exercise where it's not weight bearing is very good.

    Best of luck!

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    • Posted

      Though I'm sorry we are all in pain, but kind of nice to read what you've tried Light. Easy to get so discouraged. Just wish inflammation would subside.  My diet is so limited, I've lost I think too much weight. I fear not getting nutrients. 

      Nice to see LisaLisa post below about juicing.  I just might try that.

      Murray, I too have PMR. I drove 100 miles yesterday for my Bowen treatment and find the driving makes me worse. Wish I had a driver, ha.

      i know I need to get in a warm pool, but can't get gumption to go! 

      So hard to find line between not doing enough and doing too much and being in more pain. Bummer. 

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    • Posted

      "So hard to find line between not doing enough and doing too much and being in more pain"

      Yes it is, but you will manage. I also lost a huge amount of weight at the start. I could see my skeleton (fasinating!).

      t will come back.

      Better to be a bit under than over, but you may need supplements if you feel you're getting undernourished. Unlikely, to be honest. Very rare for Ist World folk to be actually undernourished unless you're anorexic.

      All the best!

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  • Posted

    Juicing. Celery juice, cucumbers, ginger, oranges, apples..they have recipes. Your body will absorb vitamins much faster this way. Look up anti inflammation juicing but definetly celery juice to be included. Diet olays a massively huge role in arthritis.
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    • Posted

      Agree juicing is good but don't mske it a substitute for eating the veggies themselves whole. Especially when it comes to fruit, which is full of fructose of course, so too much ain't a good thing.
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    • Posted

      LisaLisa, do anti inflammatory foods really reduce inflammation or just not cause inflammation?

      Sure wish I could find studies that certain foods really reduce inflammation. 

      My Polymyalgia inflammation is so aweful.  And I hate taking all these drugs that one wonders do they really help. Yes, the Prednisone took it down from the 100% pain to 70 sometimes 50%, but pain is rising.  

      Sometimes just to feel comfort I'll eat some yougert/dairy which I'm not supposed to have, or eat that beautiful apple strudel I see in coffee shop, or drink a glass of wine over the weekend. I wonder if those little indulges are enough to increase inflammation.  sad 

      i went out out and bought a juicer, but fear opening box...I'm also very Reactive Hypoglycemic, so maybe juicing not good for me. 

      Anyone have eave any other words of wisdom? wink 

       

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    • Posted

      Veggies mostly to be juiced. It would only be ine fruit to veggies. I dont know what a reactive hypoglycemic is, guessing low blood sugar. Veggies are pretty tame but you can ask your doctor. You arent foing to just juice ..its a healthy diet and start off in the wm with a 10oz juice. Go online and look for anti inflammation juiceing reciepe..i brt you can even look uo hypoglycemic juice reciepe. Juicing  remives pulp and fibers therby speeding up absorption. Celery is huge in that it is extremly good for the body. Fruits are more a smoothie kind of thing, except citrus are used in juicing but ine fruit to veggie drink. Fruits tend to be high in sugar and bad idea to make a lot of juices esoecially with any sugar issues. Beets also are really good, i havent made a juice with beets for the sole reason i know it dyes everything in its path. It will alter urine to light pink and poop as well. So i havent used them yet but they hve a lot of health benifit. There is a whole world out there of reciepes and uses. It is to absorb vitamins in to your system in a fast and healthy way. It also cleanse out your system pending what items you use. We love it in my family.
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  • Posted

    Hi Murray 2

    I would recommend fasting on vegetable juices for a few days, in particular carrot, celery, cucumber, beetroot and kale - preferably using a slow press juicer because it preserves the enzymes and the juice can be stored for longer. Then re-introduce foods one a day to test if they cause problems, starting with fish, meat and vegetables. Do not eat gluten, dairy products or refined carbohydrates, including sugar, until you have plenty of foods to eat from the re-introduction and then introduce goats or sheeps yoghurt instead of cows milk. It is probably best not to eat gluten at all.

    Yesterday, there were articles in the national press regarding new research funded by Arthritis UK that will look at the effect of the gut microbiome on the development of arthritis.  The idea is that the wrong type or excessive amounts of some gut bacteria can cause an auto immune response and inflammation in the joints and tendons.  Hopefully this research will work out which bacteria cause the greatest problem and how to control them. It's likely that overuse of antibiotics, particularly in childhood, has made the problem worse, but caesarian births and bottle feeding will have also contributed. Also various childhood illnesses caused by bacterial infections, i.e. tonsilitis may contribute - again, overuse of antibiotics and bacteria that mutates and settles in joints and also gastroenteritis.

    It may take over five years before the scientists have any workable answers, but at least there may be some hope for sufferers of inflammatory arthritis, in particular.  I think they will probably suggest that the diet is changed as above, because it seems that the bacteria that causes most of the problems is the stuff that really likes sugar and refined carbohydrates. Also yeast must contribute to the problems as when antibiotics kill of all the bacteria in the gut, the yeast is untouched and grows excessively.

    It may be a good idea to take a good probiotic that has been scientifically tested and provides good amounts of good bacteria, without fructosaccharides that can cause even more problems. Also, it may be a good idea to take a multivitamin and mineral each day (hypoallergenic) and at least 1000mg fish oil and 500mg evening primrose oil as these are anti-inflammatory. These supplements will give you the basics needed to prevent or correct any nutritional deficiencies without doing any harm.

    Peppermint and ginger tea are very good and exercise is crucial.  If you are unable to walk far without pain, it may be a good idea to invest in an exercise bike and try your hardest to keep to an exercise regime for at least five minutes every morning and evening.  And also plenty of sun is needed or Vitamin D absorption and it may be a good idea to take Vitamin D3, say 1000mg during the winter.

    Hope this all helps. With any luck, when doctors see the research coming in about the effect the microbiome has on health, they will able to offer better advice, including the possibility that nutrition has an effect.

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  • Posted

    Here is the link to the source of the newspaper articles regarding new research on the gut microbiome being responsible for RA and other inflammatory arthritis: 

    http://www.arthritisresearchuk.org/news/press-releases/2016/january/microbiome.aspx

    I bought a newspaper on 25/01/2016 because it ran a first page headline on this research but I don't think the moderator will let me say which newspaper! I have taken the link from Arthritis Research UK as they are financing the research.

    Also, you can gain more information about how to balance the gut microbiome by researching the dietary changes needed to alleviate the symptoms of illnesses such as crohns disease and ankylosing spondilitis as changes in diet have been proved to help the joint pains that accompany these illnesses. There are many research papers pointing to an imbalance in the gut microbiome causing illness particularly since the Human Microbiome Project was launched in 2008. It's just a question of waiting to see which bacteria/fungus cause problems and how to change the gut flora permanently so that good health can be managed.  

    As the gut is unable to hold on to "unrecognised" bacteria for very long (i.e. any bacteria that was not introduced in the first 3/4 months as a baby), it's likely that the bacteria will need to be changed by adjusting the diet to specifically encourage the growth of healthy bacteria i.e. no refined carbohydrates and avoidance of individual food intolerances (which can cause gut fermentation due to malabsorption) together with the ingestion of daily "cultures" like yoghurt, kefir, sauerkraut etc. 

    Unfortunately it can take a while to return to good health. If you follow an exclusion diet for a few weeks, work out which foods cause problems, then eat lots of vegetables, a little bit of fruit, good quality protein and introduce a small amount of natural yoghurt and fermented foods, hopefully you will notice a gradual difference and eventually be able to return to a "normal" diet in moderation. Some people have an immediate relief of pain after the first few days of an exclusion diet if food intolerance or allergy is a major cause but it can be very difficult to find the food or foods that were causing the problem and easy to fall back into eating them every day again. Gluten, dairy products, citrus and refined carbohydrates seem to be the biggest problem for most people.

    Alessio Fasano has published papers proving the link between gluten intolerance/celiac disease and a permeable gut wall and I think that research is heading towards this being the major problem in auto immune disease where the body attacks harmless bacteria and toxins that have broken through the integrity of the gut wall and triggered inflammation elsewhere i.e. joints.

    The information is out there.  Unfortunately, doctors will not act unless everything has been put through double blind trials, so meanwhile, they will just follow the present medical protocol because......I have absolutely no idea!!!!!!!!

    Hope this information has helped a bit. Wishing you all the best.

     

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    • Posted

      Wow, bless you devongold for posting this information.

      I hope like heck they continue this research and hope this can help.

      I personally fear my body just gave up and hope like heck my inflammation goes away to not have my pains. It's debilitating. Hope to once again be able to run, bike, swim. 

      I have the odd Polymyalgia Rheumatica, which doesn't seem to really fit the RA realm in my opinion since nothing is helping. I recently read there is some enzyme in the body that takes inflammation away basically can stop working after certain ages, I'm over 50. That was depressing to read! 

      When I over night I got the PMR symptoms, I had 8 days prior eaten pork and stuffed mushrooms from grocery store. My husband and I got food poisoning. That same day I had emergency to drive to for 6 hours, my adrenaline was on overload. I drank large cappuccinos on the drive, had to deal with lawyers that night and had been extremely stressed for year, my poor body was at wits end. Then POW! Sky high inflammation! 

      Saying all all this because I really do wonder if it was my gut.  I had also been over doing it with red wine to de-stress. Knowing what I know now...I'm so sorry to my body! 

      So, a year later, limited diet, lost 25 lbs, size I was over 20 years ago, still in so much pain daily. On Prednisone. Hoping to get off! 

      Good post.

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