Alternatives: Lymph Drainage
Posted , 4 users are following.
Has anyone had success using "alternative" treatments ? Things like accupuncture or supplements. I have read things about extra magnesium and potassium being useful, I have seen videos about Lymph Drainage, chiropractic for cervical vertebrae and so on.
I am particularly intrigued to know if persevering with Lymph Drainage would be something worth doing. I am pretty sceptical about all kinds of treatment conventional or otherwise, that feeling is further muddied by the "different strokes/different folks" aspect of dealing with Menieres and the difficulty in getting a diagnosis nailed down from the start in any case.
Why intrigued by Lymph Drainage? Simply the first couple of times I tried the self-massage head/ear routine it did seem to calm the tinnitus. I suspect, since the effects don't build and compound into a permanent improvement that the effects were either coincidental, or just the "time out" spent thinking about the massage wasn't time concentrating on the tinnitus, therefore stress reduced and so tinnutus reduced.
Who knows. Maybe you do......based on your experience.
Rich. (NHS Patient, SW UK )
0 likes, 7 replies
christina64557 rich
Posted
I am having physiotherapy for my head as I've been told that my Menieres has reached the burn out stage. My understanding is that I will have no more bad vertigo attacks as my balance system is badly damaged. I still suffer giddiness and a feeling that I will fall over if I am off the perpendicular. This brought on bad giddiness in bad resulting in me not being able to lay down but thankfully the Epply Manoeuvre sorted this out. Each morning I wake up feeling I have a bad hangover despite not being able to touch a drop. My consultant recommended the therapy which is a lot of exercises moving your head quickly during a two minute spell designed to make my eyes compensate for my lack of balance. The first set has worked well but moving up a gear has left me quite nauseous. I'm told I'll feel worse before I feel better but I'm determined to see it through. I don't know if this diatribe is of use to you but I offer it as another perspective of this miserable disease.
rich christina64557
Posted
Carry on with diatribes and venting: it all helps, there's always something useful, even in a vent ! The rapid movements thing sounds like Vestibular rehab without actually calling it that. I had it when they were still thinking BPPV. I am not sure it did any "good"....and the stuff I have been able to find is that for Menieres it is not used anyway ( my physio pretty much gave up once the provisional Menieres was mooted, and the literature tends to suggest it is useless for something like Meniere's which is progressive. However, having said that, some people on here note that BPPV can run concurent with Meniere's so I am glad I was taught the techniques, and glad that it taught me not to STOP moving the head -over resting after a bad day of nausea/dizzy - because being static is just about the wort thing you can do. You never learn to compensate if you do that.
Also funny you should say waking with a hangover. I now keep a diary, and find pretty much that nausea/dizzy is always worse in the morning, is just like a hangover without the fun bit, and can wear off in the day. I suppose that is down to moving the head and compensating again.
I wonder if other Meniere's sufferers are worse at that time of day?
Best wishes
Rich ( SWest UK NHS )
emma90918 rich
Posted
I take buccastem under my lip when I get an attack.
The hangover feeling I get after the attack , I think, is from the meds?
rich emma90918
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Sorry to say, but in my experience the hangover feeling is not the meds, it's part of the disease. I have not found found anything which shifts that general feeling yet, though I am still looking. I have only recently started on Betahistine, maybe that will do something if it calms down the inner ear and associated tinnitus.
Rich UK SW ( as you are UK too it is likely you will be on/offered Betahistine )
emma90918 rich
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I am on SERC 16mg x3 per day.
Really sad to learn the 'hangover' is normal😞
rich emma90918
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I am still on a low starter dose. Not sure what to expect of it. I'd settle for a miracle but don't think that is likely. I have sent a PM to you because I would be keen to hear of your Betahistine experiences in detail...if you'd rather respond here so others can share too that's good.
Regards Rich ( SW UK NHS patient )
emma90918 rich
Posted