Am I being hoodwinked ?

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I get DLA  re: classic heart failure symptoms for the disability found needing antibiotics to prevent sepsis re : utis acute 3 weekly .This  dyspnoea  was  used too target me into early medical retirement  when monitoring appts Cut in the 70s, & antibiotics had been  withheld as Policy from GPs taught no longer in independent medical schools .They had been chosen by call centres  on criteria they did  not comprehend.so  directed to act unsupervised by the medical  . Where are the doctors coming from if   says one thing at a time .Have  they not heard  of care plans , personal health budgets  & the NHS Constitution they are obviously concentrating  on betraying confidentiality online  with the admin.as I know good ethical behaviour when I see it??!!

So heart failure with AF & PAH  was  not diagnosed  till last year even though I had died &  was revived x3  12 years later after over 30 holter monitors with an angioplasty to revive!  When haematuria found by the hospital Prof of 40 years ,he said it was not his remit to refer on just back to the GPs be continually neglected & blamed for costing too much

By this time ,because Doctors said not taught about disability,  a neurogenic bladder had been found & keyhole urethrotomy performed for reflux .It was known I couldn't catheterise  because of the cellulitis  so targeted antibiotics with operational microscope  found regularly 4 bugs  & sepsis .When my spinal spasticity spasms related to sepsis it was not the Profs remit or Primary Care  as Surgeries continually intimidated me out of borough to another even  though the authorities  were  joined .They did this by saying Was costing too much money as if I was in charge   so were not  going to Test,refer or give antibiotics or a Plan .Were they ignoring their Hippocratic oath I wondered .Continual protests via  Dla Appeals meant they gave took it away so to this day am not accessing Social Services - .DLA yes all of which is spent on

health & care to find the same p/t Drs working in the privates sector wanting to send back to NHS they know is discriminating after only arranging to see  me after contacting GP ?

How can this be a second opinion or a good , fair standard of practice ? Why did not of processes of raising issues resolve   as investigation was not reasonably investigated  even by Doctors in A&E   who went to many times to be  abused by negligence deliberately delaying to this day.

When I started to suffer septic boils  at first they drained with anaesthetic  then they lanced with none .I can feel it to this day.It is now 40 years later.

Even with Expert Witnesses Legal & Social  they experienced how so not fit for purpose the Royal Courts of Justice deliberately  lost the papers for an Independent review I wonder why ? At the same time my Late parents Father a pharmacist were experiencing the same on other side London re : social care  even though he had had skin & prostrate cancer & Weak heart valves  & RA .My Mother with the most severest  multi infant dementia had it left till she could not speak , understand, remember hoisted  everywhere unable to swallow before she was given  Continuing Care as only the home could claim.Then the assessment & Independent Review a disgrace as the Board of 12 were all employees of LA .how can this make sense?for which there is only provision if you have it as a secondary of breast cancer.never mind if you have rare forms of cancer  prostate , womb & ovarian.When our elected representatives were the most notable  you have to ask what was going on when they allowed Strict Protocol to have no discretion so the cash strapped LAs dictated  their admin by remit  unreasonably. ripping off .

Did anyone mention the Personal Health Budget    I had contacted 1000s of help organisations & so call Charities as new it concerned everyone else ?Only found out about it when Specialists in London  decided had to get the Local Drs who have rudely ignored since appts were not transferred 5 years ago.This has caused me to change Surgeries 7 x here in the west . Does anyone ask why ? Now they  are saying  one thing at a time when reminding  them of my history as have been refused a Plan  with others directing the so called responsible Dr   to change what you had  decided  together .

Yet the admin & Drs behind my  back have libelled  & maligned  which is surely illegal yet the law & justice have been  extinguished by  not fit for purpose call centres as my expert witness informed me fore the cardiac arrest

The disability was found re; chronic, utis acute 3 weekly since childhood as the kidneys were scarred  but had had penicillin since birth & the usual illnesses now vaccinated for  plus scarletina & broncho pneumonias as was cellulitis connected to lips-lymphoedema my breathing problems which should have been found with Cardiac arrest [ MI] were found 12 years later due to units run by  the not medically qualified  ignoring blaming   even though had raised this formally that the CPAP machine had no effect . It  was  only found on the Reveal Device on implantation revealing afib .yet still to this day  I am & have been refused emergency assistance  making me wait all day at 5 places on same system employing  the non medics yet all  betraying confidentiality to punish.

Rather than not diagnose stable /unstable angina so can get assistance i feel continually discriminated against trying to access urgent, open rapid & monitoring  assistance.could it be  because of disability recorded  in my online record but stated  as of no consequence when most people with spina bifida die early ?Why does the NHS think it knows it all when health is continuing to develop as the numbers increase  without the funding to give fair access.

Why on earth decentralise  & pretend  it is solely lifestyle ? 

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  • Posted

    Hi Julie,

    I think you may have posted in the wrong section, this is a benefits advice forum. If you need some help regarding benefits then i'll do what i can to advice.

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