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am I getting the right dose of b12

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annette20445
annette20445

Since November I have had numbness in my entire body as well as feeling extrextremely fatigued. My blood tests show I was low on b12 and folic acid. I was given one dose of b12 by injection. Only 2 days after my numbness eased but never fully went away. 2 weeks later the numbness returned to the initial sensation and I felt more fatigued . I was tested for pernicious anemia , the instric factor antibodies came back negative and partial cell was positive. All other possible causes have been ruled out. My blood tests results now show as b12 in the normal range since I have had a monthly injection since November. My symptoms however continue and feel worse. All 3 doctors I have seen in regards to this all say I am not anemic and don't need more injections. They are giving me one more injection and that they say is to do me a favour. Are they right?

0 likes, 8 replies

8 Replies

  • marion29181
    marion29181 annette20445

    Posted

    Your doctor is wrong to stop your injections. Usually we need them for life, and certainly more frequently if we still have neurological symptoms. Have a look at the Pernicious Anaemia Society website for more detailed information and advice. Marion
    • annette20445
      annette20445 marion29181

      Posted

      Thank you Marion, I will have a look at their website, as I will need all the facts I can and will present these to a different doctor.
  • dave56472
    dave56472 annette20445

    Posted

    Hi Annette,

    i too suffer from numbness, but not nearly as badly as you.  It's just in my hands and arms and mostly during the night. But I've found a way to solve it - I hang my arms over the side of the bed and the problem goes away. For a while that is.  And while my eyes feel tired always, I don't.

    i have injections every 12 weeks which seem to be helping ok.

    • annette20445
      annette20445 dave56472

      Posted

      Hi dave

      I sometimes hold my arms above my head but the relief is temporarily.

      Does your numbness actually go away at all? I finally managed to get the doctor to agree to give me a loading dose although he is still convinced I don't need it and still doesn't want to agree to monthly injections. Apart from the first injection there is no improvement. I guess it will take time.

  • dave56472
    dave56472 annette20445

    Posted

    I hadn't thought of holding my arms above my head but I might just try it.  But my method always works for me, especially if I hang them one at a time out of the bed.  Just  3 or 4 minutes and the numbness has completely gone.  I just hope it keeps working.
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