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Pernicious Anaemia

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  • stephanie98078 1

    Tiredness after my B12 injection

    I've had B12 deficiency for the last 4 years but I've recently found that my injections do not seem to be making a difference, this has only come to my attention the last 12 months. My life style hasn't changed and I still eat well but I have noticed a loss of pigment in my skin colour and I am losing...

    1 reply 1 vote Last reply
  • frances1987 1

    Could it be the pill?

    I have had a blood test that shows my B12 levels are very low, my doctor initially suspected Celiac disease however a test for this came back negative. I am currently awaiting the results of a test to see if my intrinsic factor levels are normal as my doctor now thinks 'some other autoimmune disease'...

    2 replies 1 vote Last reply
  • connolly1975 2

    B12 injections

    Hi, Just want to find out some information, I've been feeling very tired and have been getting. Ulcers and sore tongue.. my doctor did blood tests and came back that my b12 was 127 my iron was 17 and my platelet count was 121? Anyone know anything if b12 causes all thi Any help would be great I've...

    6 replies 2 votes Last reply
  • melissa42241 2

    Is my B12 level low/deficient??

    Not been well for about 2 years. 41 years old. Previously a pretty active person walking lots and attending gym classes. Symptoms are; - Extreme fatigue - weakness (carrying bags now a struggle) - breathlessness - constipation - Sensitivity to light and blurred vision (only appeared recently) - depression/intolerance...

    15 replies 1 vote Last reply
  • julia61380 1

    Hi new to this yesterday

    I have to have 6 injections over the 2 weeks . I'm on 2000mg of metformin a day . What should my B12 levels be if normal . Thankyou .

    1 reply 1 vote Last reply
  • limara 87776 1

    B12 low, depression

    Hi I've had low b12 in the past had injections then my levels were high, so didn't need anymore injections, have been feeling very low recently and having 3 young children by myself am finding it difficult, had bloods done last week, and doc rang to say I've to come bk in one month for testing again...

    2 replies 1 vote Last reply
  • Williamm 2

    Cyanocobalamin and Thiamine taking together?

    Is it safe to take cyanocobalamin and thiamine together? Recently I got a blood test through my doctor and the results showed that I am low in vitamin B12. The doctor said I don't have a vitamin B12 deficiency but it is still low enough for tablets. So my doctor put me on a 3 months supply of cyanocobalamin...

    1 reply 1 vote Last reply
  • samantha54632 2

    High mcv/mch

    Hi recently had bloods done. Only thing abnormal is evevated mcv and mch which doctors were doing nothing about. My b12 serum was ok as well as folate in fact doctor commented that b12 was at the higher end of normal. Do this leaves the mcv mch unexplained. A b12/ folate def would explain my symptoms...

    2 replies 1 vote Last reply
  • erin1597 1

    Recent Half Diagnosis?!

    Hi all, I'm new here! Around two weeks ago I woke up feeling absolutely dreadful. Fatigue, dizziness, almost like the flu without the cold. I at first put it down to catching up on sleep from my second year at uni, but after a week of no improvement I booked a doctors appointment. I explained to the...

    1 reply 1 vote Last reply
  • Emru1996 2

    Numbness in legs

    Hi, I was diagnosed with PA on October 2016 and have had my initial round of injections and now get one injection every 2 months. However for the last 3 months I've noticed that no matter which way I sit and no matter what type of chair I'm using, my legs go numb. Is this normal? It's not even when my...

    3 replies 1 vote Last reply
  • chloendaisy1990 2

    Vitamin b12 injections scared to have them

    Really scared I have my first injection in half n hour I suffer from bad anxiety and agoraphobia and don't even take paracetamol or antibiotics because just incase they make me feel strange of different I am so scared of these injections because I don't want to feel a way I don't like and not be able...

    14 replies 0 votes Last reply
  • brooke57838 2

    heart palpitations.

    Im 29. I went to the doctor on may 11th. My heart would feel like it was going to come out of my chest. I could just be sitting on the couch to bending over to tie my shoe and I would be out of breath and heart pounding. I was told my b12 was 158. I just had my 2nd weekly injection after the 4th I...

    7 replies 1 vote Last reply
  • Justhormonal 2

    Low B12 = Pernicious Anemia?

    Hello all, Last winter (2015-16) I was sick, sick, sick. Anytime someone would sneeze near me I would catch pneumonia, bronchitis, or at least sinusitis. In the spring my doctor ran a whole bunch of blood tests and one of the things that came from that was that I had low B12. She didn't say it was causing...

    6 replies 0 votes Last reply
  • alarna03814 2

    Low B12 Levels.

    Last year I was told by my doctors that one of vitamin levels were borderline so they refused me any treatment they wouldn't even mention what that vitamin was. Then January this year I had blood tests done which revealed my b12 levels were low. My doctor put me on 6 booster shots within two week then...

    11 replies 1 vote Last reply
  • Pinkstang23 2

    Am I anemic or not?

    Hi! I'm new here and I'm searching for people who have gone through this long diagnosis process like I have. For years (like 15) people have told me I'm anemic. I've always been underweight. I have severe depression and anxiety and I'm exhausted all the time. Last May, I got to a point where I was tired...

    9 replies 1 vote Last reply
  • ramsya 2

    Off balance last six months😢

    Constant Off Balance Male, 27 I have been having constant off balance for last five months now, most days this is severe in mornings​ upto 10am. And sometimes having in night also that time i feeling dry mouth , heaviness in head and tired face , fatigue, increased heart beat, and two times i felt i...

    8 replies 1 vote Last reply
  • angela36821 1

    Recently diagnosed

    Hi everyone. Looking for support and advice if possible. Diagnosed two weeks ago with pernicious anaemia. On week two of having three b12 injections per week. Not feeling any benefits at all. Is this normal? Ridiculously tired, I could honestly sleep standing up! Feel like I am in my own little bubble,...

    2 replies 1 vote Last reply
  • rico48906 1

    Struggling with lightheadedness low b12.

    Greetings all, I am a 25 year old male living in the netherlands and i suffer from a couple things that make my day to day life not enjoyable. I have been struggling with b12 for some time now. The first time i experienced low b12 was over a year ago. I felt weak and was constant lightheaded/dizzy....

    3 replies 1 vote Last reply
  • Anka1918 2

    folic acid and b 12

    Hi my daughter is 23 and has had burning feet at night for many years.....doctors could nver understand why. He live in ireland and she is at university in rochester. Recently she has been complaining of hair loss generak depression burning feet tiredness and she had to come home even though her finals...

    13 replies 1 vote Last reply
  • Gnomebottom 3

    B12...confused?

    Hello All, I was diagnosed with B12 deficiency this week and began daily 5mg folic acid treatment. This was done briefly by phone so I didn't get the chance to ask much about it. It might sound ridiculous...but I seem to have been even more tired since I started on the folic acid?!? (I read elsewhere...

    7 replies 1 vote Last reply
  • eleanor133 2

    Receiving B12 injections but still tired

    Hi,  I was diagnosed with a B12 deficiency about 5 years ago and have since been receiving injections every 12 weeks. I have always struggled with tiredness, and thought receiving the B12 injections would solve this. I am still feel very tired, often needing to go to bed straight after work and sleeping...

    25 replies 3 votes Last reply
  • emily10675 1

    pernicious anemia Always getting sick

    Hi my names Emily I'm 22 and was diagnosed with pernicious anemia 4-5 years ago. I get b12 shots every. 3 months but sometime every 1 -2 months dependent on how I feel. My question is does anyone else with pernicious anemia get sick a lot e.g flues and virus? And when you do get them do they hit your...

    3 replies 1 vote Last reply
  • allison10593 1

    Dx'd with "Vitamin B Deficiency"

    Hi everyone, Recently I got a blood panel done to check my vitamin B, D, and thyroid levels. I was told (via voicemail) that my D and thyroid levels were normal, but my white blood cell count was slightly elevated (might just be normal for me) and my vitamin B levels were "very low," at a 7. Now, I've...

    2 replies 1 vote Last reply
  • nicola80752 3

    large red blood cells?

    My son is 19, he's 6 feet tall and was obese. He's lost 8 and half stone over last two year and looks great! He has occasionally felt dizzy when standing up quick and fainted just once about one year ago. Recently he was at doctors for something else and doctor asked for bloods. Next day they rang and...

    8 replies 0 votes Last reply
  • tracey51815 3

    Can symptoms get worse after taking B12 1000 mcg tabs?

    Hi there   I started off with a numb foot for past 4 months.   I then take 2-3 days of High Dose Vitamin B tablets,   2 days later I have a whole host of ghastly neuro symptoms completely out of the blue,   dizziness, confusion, eyesight problems, extreme anxiety, insomnia and nerve tremors in both legs. ...

    15 replies 1 vote Last reply
  • ains2593 2

    B12 problems... again

    Hi all,  I suffer from a condition called ulcerative colitis around the time of my last flare in September last year I had blood work done which showed low B12 and folic acid. I was given oral tablets for both after they did the intrinsic factor test(not sure if thats excatly what is called) It came...

    3 replies 1 vote Last reply
  • jen60696 2

    Low B12 or something else

    I have had constant dizziness/off balance, headaches, fatigue for three months now. I have had an MRI and catscan which were normal. I have been researching and have thought that I am having vestibular migraines so am being referred to a headache clinic. I also asked to get by B12 levels checked. They...

    4 replies 1 vote Last reply
  • lassie12B 2

    I have Pernicious anaemia..but am allergic to injections

    i was diagnosed last summer and have been having injections since then..five loading doses in aug and every three months since then, it took until oct/nov to feel better..although i felt much better generally i still do still not have enough energy to say.. go to a cycle (annoying) anyway, since getting...

    4 replies 1 vote Last reply
  • Georgia12345 2

    B12 side effects

    Hi, My B12 was low so my gp started me on injections. I had the loading dose, no problems but after my first maintenance shot I started experiencing numbness and tingling in my hands and feet. I didn't have them before. My levels are now quite high and I just wondered if anyone else has had a reaction...

    7 replies 0 votes Last reply
  • vicky37447 2

    B12 is making me tired all the time

    I have had tests four times for b12 after my sister was diagnosed with pernicious anemia. The results are varied between 160-200 at the moment it's 160. Had an injection yesterday and taking b12 tablets after that. How long will it take for the injection to work? Why would it drop from 180- 160 in a...

    7 replies 2 votes Last reply
  • jason82712 2

    Oral b12?

    So I was diagnosed with b12 deficiency around 8 months ago. At first, I received injections of b12 every other day and now I take them every 20 days. Can I switch the injection with oral b12? I don't really like going to the clinic and receiving injetions and was thinking of using the oral b12.. I have...

    4 replies 1 vote Last reply
  • kymberly 1

    shortness of breath along with many other symptoms

    I was cooking dinner one night and became out of breath out of no where. this is still going on 2 months later. i requested blood work that has been done twice and is in normal range. I then asked my dr. to do a vitamin d test along with vitimin b1 b6 and b 12. she argued with me and said because my...

    2 replies 1 vote Last reply
  • FJ1994 2

    Recently diagnosed b12 deficient...insights appreciated!

    Hi all,  I've recently been diagnosed as having a b12 deficiency and am still looking for answers to a questions. I know I should ask the doctor but our time slots for the injections are so short I never seem to get the time. A bit of background: the reason I was initially sent for blood tests was...

    2 replies 2 votes Last reply
  • Passey64 2

    How long until I feel benefits?

    Just wondering how long it could take for some of my symptoms to go or at least improve. Brain fog, muscle pain, headaches, tiredness to name a few. I know their is no timescale to this but just after a general idea of what to expect, I have only being supplementing with a good quality sublingual for...

    17 replies 1 vote Last reply
  • ATI2D1 2

    OUCH, OUCH, OUCH....SEVERE LEG PAIN

    MY LATEST B-12 LEVEL IS 208 NG/L, IN THE PAST I HAVE EXHIBITED NEUROLOGICAL SYMPTOMS ONCE MY LEVELS NEAR THE 300'S. NEEDLESS TO SAY, I HAVE NEVER HAD A LEVEL IN THE 200'S AND THE LEG PAIN I HAVE BEEN EXPERIENCING IS BEYOND EXCRUCIATING!!! I HAVE RHEUMATOID ARTHRITIS, FIBROMYALGIA, AND PERIPHERAL NEUROPATHY...

    4 replies 1 vote Last reply
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