Am I going crazy on Synthroid?!

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Hi guys,

  I just started taking Synthroid 50mcg 4-5 days ago and I feel like I'm going crazy. I feel like I'm high/stones or something, dizzy as hell, and incredibly fatigued. This is incredibly distressing as my job is very demanding and I have limited sick time left. 

  Did you initially have a hazy period when you started taking Synthroid as well? Is there anything I can do or should avoid? I took sleeping pills (Benadryl and melatonin) but I think that was a mistake. I've been trying to eat dairy/gluten/soy free this past week as I heard those are all inflammation causing foods and I've been having severe swelling. 

  I know when I took the radiation a few months ago it had to get worse before it got better but this is just such a scary, scary time right now and I doubt my doctor will allow me to take medical leave from work.

Anything helps! Thank you. 😫😭😢

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13 Replies

  • Posted

    I tried Synthroid, and was so sick I couldn't move. I switched to a generic, which was mildly better. After two years on thus crap, I was bedridden and in horrible health all the way around. It nearly killed me. If your gut is saying its bad for you, trust yourself. You know your body. I wished I had. 

    On on the levothyroxin, many of my thyroid symptoms worsened. I also had horrible anxiety, greeting and thinning hair among other symptoms.

    There are other medication options. The more natural, the better. Bovine is closer to human than pigs' NDT. But bovine glandular formulas are not available by prescription, so you can just order and pay online. Worth every penny. 

    I found I got as much relief from amino acid therapy as from the thyroid meds. But while the meds have side effects, the amino acids don't, and they also help related thyroid symptoms.

    There are other solutions. This medication is a dud. I've seen a few posts here from people who feel it works (initially at least) for them. Trust that you can use the myriad of information at your fingertips to find a solution that works for you.

    If you find something you feel might work, as people here. Chances are, someone's tried it and can tell you what does and doesn't work.

    Good luck.

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    • Posted

      Thank you, I will bring up the natural with my doc for my next appointment in 3 weeks time. I keep hearing that people are more successful with this than levo/Synth.

      Wow! Bovine huh? I'll absolutely look into this. Is there any site you can recommend please? 

      Did you do aminos without the thyroid meds completely?

      Thank you!!

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  • Posted

    Camden did you feel that way at all before starting the Synthroid?

    I'm on Tirosint 13 mcg and one day I had a very bad dizzy spell.  It happened at night so I went to bed and the next day I was OK.  Groggy but ok.

    I wonder if you just need to start with a lower dose, llke 25 mcg (half of what you're taking now)?

    Rose

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    • Posted

      No! I was totally fine, I mean dizzy a little but I feel like I've been dizzy most of my life sadly. Maybe it's been the Grave's all my life - I'm 31 now, was diagnosed at 15/16?

      The lower dose is a good idea. I think I might try that tomorrow and see how I feel.  Maybe it's too much of a shock to my system. That's a good idea, seriously. Thank you. 

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    • Posted

      So it's either the Synthroid or the fact that the radiation has finally killed the thyroid and that is causing some sort of haywire reaction?  I wonder if you told your doctor what they would say?

      I have read that some people (me included) are sensitive to thyroid meds and therefore need to start low and work their way up.  Unfortunately it makes the almost unbearable wait to get better even that much longer but if it works for me in the end I will be so glad.  Maybe it'll work for you too.

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    • Posted

      I have a feeling it's the Synthroid? I was feeling what I believe to be hypo symptoms before for a week or so - fatigue, sleeping a lot, dizziness, but once I started the Synthroid is when all the madness let loose, lol. Today I took 25mcg instead of 50mcg to see what happens. I also waited an hour before I took it to see how I felt before taking it - which was okayish but not normal. 

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    • Posted

      Hi Rose, I did call the doctor and ask for help, saying I was horribly ill. The doctor didn't even bother to call me back, instead I got a call back from the. nursing staff telling me I'd be fine in a few weeks. This happened several times. Seriously, they totally didn't seem to understand that I was violently ill. 

      There were several contributing factors. In addition to switching from an NDT, and changing the dose...  Mainly, Synthroid contains additives that are very toxic and allergenic, as well, as it is a synthetic hormone. A synthetic hormone is a chemical reagent manufactured in a lab, that is very similar in structure to a natural hormone. The purpose of manufacturing a hormone rather than harvesting from animals is that it is cheap, can be patented which means a company benefits from a monopoly, and is believed to be manufactured to produce more uniform quality products than is possible with a natural product.  Makes good sense, right? Except... Keep in mind that all the many forms of thyroxin in your body are various "flavors" of the same molecule. It's only a tiny difference in chemical structure that separates T3 and reverse T3,Meir example. T3 gives a fast acting, powerful short burst of energy, while reverse T3 binds up excess T3 and takes it out of circulation in the body. Once you understand this, it's obvious to see how tweaking a thyroxin molecule and expecting it to work properly is dillusionwl at best. 

      Because thyroxin is is so crucial to our body's functioning, it affects every aspect of our cells, down to the DNA. With a synthetic hormone, you basically have a tweaked molecule affecting your DNA. Get it? Of course it's going to cause major problems!

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  • Posted

    Also if I could suggest maybe trying one thing at a time, in other words, try the Synthroid only now. Then later try a food elimination diet.  Otherwise you may not know which thing is working/not working and also food eliminations can be very stressful to try to follow.  Baby steps....
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    • Posted

      Of course I am not you and I wasn't experiencing the swelling but from personal experience, trying to avoid 5 types of foods while working with thyroid medications filled me with a lot of anxiety.  I decided I needed to take one thing at a time, for my own sanity.  If the Tirosint bombs out and doesn't work then I will start looking into dietary changes.

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    • Posted

      Understood, but it's still helpful. I feel like without people like you and MtViewCatherine and the online community, a lot of us would be hopeless so all experiences and insight is incredibly meaningful. smile

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    • Posted

      Camden, the swelling is concerning. If you are truly swelling badly, it could be a sign of kidney or liver problems. The levothyroxin has been shown in clinical studies to cause kidney and liver disease. These are very serious, and I can tell you from reading studies that going off the meds after only a month allows for recovery of the liver. Staying on these meds for a long period of time, I can tell you from experience, that it takes a lot longer recovery period, if ever, because the potential for damage from these drugs is so great. It sounds like you're in pretty bad shape now, so risking a continued bad response to this drug is not a good gamble. Just switch tonthyrogold, as us kniwn to have way fewer side effects. You'll have all you can do, just to handle  the dosing.

      You've been through a horrible ordeal, and it's impossible to know what's what, plus you're probably having brain  fog. The truth is that part of your body us dying off, and it's a lot of work for your body to handles the dying tissue which, in addition to the toxic radiation, the organ tissue itself likely contained concentrated toxins that are now being released into the body. Add to this that the thyroid gland is central to the immune system and your body's totally confused bc when the tissue died,Mir released a surplus of thyroxin into the body, so the body had to rapidly respond tontryband regulate this, but also expecting more surplus. But instead, the body no longer can make its own thyroxin, so you've basically got a boom/bust going on. Then your body thinks the thyroxin is a toxin, because it presented in combination with toxic radiation. So your body starts attacking your own tissue. The synthetic thyroxin is then added to an already triggered immune system, soothe immune system goes even more on alert. The body flips out under this attack and starts shutting down "unnecessary" functions, like peeing and pooping to try and preserve energy and save resources. 

      So yeah, you got some heavy duty stuff going on. 

      Get yourself to a good acupuncturist to help alleviate some of the symptoms and to have someone who can offer some support and perspective.

      Look into ThyroGold immediately. 

      Do the best you can with diet and herbs  so you can calm your immune system.

       

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