Am I having a flare?
Posted , 7 users are following.
i got down to 10.5 mg pred about 3weeks ago and had a blood test on the same day .went on holiday and had a little shoulder pain but it went away after 3 /4 days but did feel absolutely shattered over holiday .Did do a 4mile walk to start with , after that short walks because so tiered .So probably my fault ,however went to see doctor for blood test results one week later .The inflammation level had levelled out the previous times at 33 but the new doctor (her first day ever ) was surprised that my previous result to this one had dropped to 24 but this particular result had gone back up to 37 .Because severe neck shoulder pain had returned plus a full body flip straight into the bushes (Unfortunately alone ) which has either damaged muscles or agrivated artheritus I have put my self upto 11mg pred . Am I being defeatist or wise .I am taking a neighbour away Monday for 3 days and have chosen to drive as I am more comfortable driving than being thrown around as a passenger .Any helpful and encouraging comments would be gratefully received as must admit confidence is wavering as do not have my husband there for the little support he does give when he feels in a charitable mood
1 like, 14 replies
tina-uk_cwall carol16456
Posted
Eileen's go slow and almost stop regime could be your way forward even if you have not reached the 10mgs level yet, by that I mean the regime is a sort of way of conning your body into no knowingly accepting a lower dose.
I use this regime (only reducing by .5 and not 1 mg at a time.
hopefully in the morning some more experienced members will offer better advise, as I have no medical training. All the best, christina
Mrs.Mac-Canada carol16456
Posted
If that was me I'd be down and out for the count😔. It really sounds like you're doing way to much and likely asking for trouble. If I was you, and you can't get out of driving Monday, I'd be doing very little until then and hope your PMR is patient with you.
Best wishes coming your way,
Diana🌸
Oregonjohn-UK carol16456
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EileenH carol16456
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If I understand the chronology of your story you were probably already hatching a "flare" at your previous dose, allowing inflammation to reassert itself because the dose wasn't enough to manage the symptoms. I think you possibly need a few days of more than 11mg to get it under control quickly before you go away again. I sympathise with your prefering to drive - it wasn't the being thrown around more as a passenger but the driver's seat has a lumbar support and the passenger one doesn't and that is what makes the difference for me. However - do have breaks while you are travelling. Are you going far? And don't plan anything at all energetic, especially on the first day.
I'd also suggest - what a surprise - can you find a Bowen therapist locally? I think that might help the damage you have probably done to back muscles and their stability - not damage in the sense of injury but they are protesting at what you've been through and that gymnastics has just topped it all off!
It is surprising what even a minor fall can do to PMR and confidence - I fell off a bike after going out to see how I got on with cycling to introduce as an alternative exercise. The ride had been fine and I was looking forward to more of the same - then I fell and scraped my knee - the result was out of all proportion to the damage done.
carol16456 EileenH
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EileenH carol16456
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In this sort of situation a bit more is preferable to a bit less - you have a commitment and a bit more will make doing it easier. It doesn't mean you will be there for ever. I also find that dealing with the "add-ons" separately with Bowen or physio - or a useful daughter - often makes the oral dose you need for comfort lower. I do know the feeling, believe me!
If you can get even one session with Bowen person before you go away you may well find that you enjoy June more than if you wait for July - do think about it.
carol16456 EileenH
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EileenH carol16456
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You are sure the tramadol is OK aren't you? There is a national recall of all unexpired 50mg Tramadol capsules:
Emis Moderator comment: See links below about the recall.
https://www.gov.uk/drug-device-alerts/tramadol-50mg-capsules-risk-of-fungal-contamination
https://patient.info/forums/discuss/tramadol-recall-402944
EileenH carol16456
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Google it
EileenH
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carol16456 EileenH
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a little about everything to get by .The first doctor I saw did not understand the importance of not taking the preds for PMR .Because of the intensity of pain I had had ? I had been very sick on the prolonged journey , so they wouldn't let me take them after I got to hospital .Eventually When I was allowed to take the pred by a nurse many hours later ,of course I had no protection and had been given some codene in a drip for pain the result was being extremely ill bringing up blood ,so if anyone needs stomach protection don't forget to take it .
Anyhow my ESR was 18 and BM 5.9and CTI scan good . They diagnosed trygeminal neuralgia with multi migraines .What I would like to understand is why was my first ESR level 60 which went down to 33after about 5 months suddenly dropped to 24. Then next time went back up to 31 and now it is 12 .
Was looking at contra indication between the one you let me know about begging with (t) and found it is an opeoid so can interact with codene and amtriptileen so a message to every one bother to read the small print .Early night for me in my own bed again thankfully .
EileenH carol16456
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carol16456 EileenH
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EileenH carol16456
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Sorry its been so long - I couldn't get onto the site!!!