Am I in remission??
Posted , 3 users are following.
Hi all its been about a year now when my doctor diagnosed me with fibro. I have tried a lot of meds I was on lyrica for months with no affect. My symptoms of fibro were extreme pain specially in my neck, shoulders and back. I got shooting pains regularly down my legs and arms. However I struggled with extreme fatigue I was just tired and sore all the time. I couldn't plan anything as I needed a daily nap or I couldn't work as I do morning and night shifts as a Carer.
A few weeks ago everything changed! My gp put me on meds called Amitripyline 20mg at night. I am also taking 25mg in the morning and 75mg at night of Lyrica a day. and about two days later I needed my naps less often and today I don't need naps at all. I am still in pain but I can deal with that as I am able to carry out daily activities without been so tired I break down and cry because pain feels so much worse.
The question is has anyone gone in to "remission" I'm starting to question if I have fibro and I'm in remission (for now) or it is something else I have as I have read so many stories and most of them have extreme symptoms all the time that don't seem to ease off?
Can someone tell me their story?
0 likes, 9 replies
tina46759 victoria93835
Posted
Hi Victoria I think most of us have times when we feel in remission and then it hits you out of the blue the main reason for this is usually do to over doing things because you feel better , also you could have found a good combination drug wise for you for me I now feel that Jo meds are working m currently using morphine patches but have been on most meds and the meds you are taking . The best advise I have had is to pace yourself even when you feel well still pace which is really hard and I'm currently suffering for having a good couple of months I'm now in lots of pain but I know I have to rest and gave cone to terms with doing that which has taken me a long time to do I have just heard that I've been awarded ill health retirement at the age of 52 while this is a huge relief it's also another thing to come to terms with . I wish well xx
victoria93835 tina46759
Posted
Thanks Tina for your reply, did you have a few good months or did it only last a little while? I have been good for about 2 or 3 months I am loving the fact I can do things like I had to wait two years to get. Iv just bought a house and I painted every room myself. Now it bloody hurt but my energy levels were good so I cracked on with it. I was delighted with myself thinking and praying I haven't got fibro that I'm cured
tina46759 victoria93835
Posted
Unfortunately I've not had months of remission but I also have osteoarthritis so double trouble fingers crossed your fibro is manageable or better still you've been miss diagnosed I have a friend who has fibro but manages work etc she has a selection of medication but she can still live a normal energetic life x
victoria93835 tina46759
Posted
I was doubting myself if I had it or not because I'm doing so well. Or it that I'm just delighted that I am not so tired. I feel a lot of pain but funny enough I can deal with that cause I'm so used to it but the tiredness killed me. I was starting to feel very depressed and hopeless that's why the doctor tried these new tabs. In saying that I'm sleeping much better so that helps. The pain in my shoulders used to wake me up at night. One night I was awake half the night with pain in my finger now that just goes to show how bad I was
victoria93835
Posted
Please god it won't come back with a vengeance. When I was put on lyrica it worked for awhile then it did nothing so hopefully things are settling. I'm Xanax for my anxiety also. The fibro fog is terrible I do struggle to concentrate specially when someone is telling a story. Do you get that?
tina46759 victoria93835
Posted
victoria93835 tina46759
Posted
Yes I have to set reminders on my phone for simple things or I'll forget all about it. It's horrible and embarrassing when someone is talking and I zone out regardless how hard I try to listen.
I suppose I'm just good at the moment and just starting to doubt myself. I'm going to enjoy it while it lasts
Callaloo victoria93835
Posted
victoria93835 Callaloo
Posted
I'm so sorry for the late reply callaloo. My own doctor prescribed me lyrica about two years ago it worked solo for awhile then it just stopped working it went on like that for months till I was nearly in tears telling him how hopeless I felt and I can't cope so he put me on Amitripyline 20mg a night. And it worked great nearly from day two. I have been really good. Since I have wrote this a few weeks ago I have felt a bit more pain and the tiredness is creeping back more every day. So I'm not so positive that my high is going to last much longer. I felt like a energising bunny but now I feel like the battery's are running lower each day!
I'm staying positive and I'm still going to enjoy the last of my battery life lol