Am I the only one that feels dizzy 24/7?

Posted , 7 users are following.

Does anyone feel dizzy all the time?

I've had vertigo for 12 years but dizziness for the last 3 and I can't tell you the last time I really felt good.

I always feel "off". Like I'm 50% not sick and 50% sick, if that makes sense. It's as if it never really goes away.

It's getting old.

Am I the only one?

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12 Replies

  • Posted

    No you are not the only one. I was constantly feeling off for about 5 or 6 years. It's only the last year or so that I've been back to my old self.

    For me the dizziness caused secondary conditions like anxitey and depression and I became a bit of a recluse, I stopped driving, stopped going to pubs, restaurants and so on. My avoidance behaviour just made things worse.

    things I do or have done

    I take fluoxtetine everyday - this has kicked the anxiety and depression.

    I take propronol everday - this has kicked my silent migraines. I no longer get headaches or that foggy head feeling.

    I got my eyes tested and switched to varifocal glasses

    Bit by bit, I started to do things again.

    There is nothing I won't do now, I've got my life back but if you read through my posts you'll see the crap I've been through,

    All the best,

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    • Posted

      Hi DizzyDarren

      I was interested to read that you found that varifocals have helped?  How have they helped you and did it take long to get used to them.  How do/did they help your dizziness/off-balance

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    • Posted

      Ever since my balance was off, I knew that my eyes were over compensating and that came with it's own problems. While at the same time I was flicking between distance and reading glasses which wasn't helping. Switching to Varifocals helped, they soothed my eyes if that makes sense? It took me about a month to get used to them and I believe they were a factor in my recovery.

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    • Posted

      Thanks for that DizzyDarren - my eyes get tired too and also my legs feel heavy if off-balance has been bad.  Great to hear that you have improved and that you are socialising again.  I always feel better if I have gone out with friends - it tkes your mind off of yourself if nothing else.
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    • Posted

      Yes I have th anxiety and depression as well. I also think I have silent migrainesthat haven't been diagnosed. My sensitivity to light is so bad I can barely walk outside anymore in the sunlight.  I also have Ménière's. 

      Thanks for replying.

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  • Posted

    Hi

    I'm sorry you have had this so long. I know what you mean by the 59/50 feeling. I have it on most days, but I find myself thinking sometimes I don't feel 100%. I'm getting days now where I feel good or should I use the term normal all day. I know this may sound weird but during the last year I've been so afraid of the dizziness and thinking it's something much worse and the docs where missing something. But then I went to a psychologist and she helped me understand that it's MAV and that the inner ear is off because when I move and do things think bending forward, vacuuming, mopping and turning to fast, anxiety, stress, not enough sleep are causing the dizziness. My acceptance has helped me with the stress, worry and the anxiety it causes. Sure I still get anxious with it but I've learned to calm myself and now I'm getting days of no dizziness. On my bass I take a 1/2 if a .25 Xanax and it helps a lot to get me through that anxiety it causes.

    Has the doc given you a diagnoses? Maybe you could go back and talk to them about it and how your feeling and see if there something more that can help. I hope you find some relief and feel better

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    • Posted

      thanks Patty. I just don't feel good anymore. I don't even have normal days. I just have "not so sick" and "sick" days. 

      I was was siagnosd with Ménière's. 

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  • Posted

    I am so frustrated as well.. I feel good for about a week then the dizziness, spinning and off balance starts again. Oh and I have tinnitus in my right ear.

    These episodes stop me from doing things with my family especially my grandchildren. I am so over it . I use ice packs so it doesn't get worse by having a panic attack , something for the dizziness and now I am bed all day.

    Does anyone have any suggestions.. ??

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    • Posted

      I'm sorry to hear how long everyone has had these issues.  I was misdiagnosed with Meniere's for years and just three years ago was diagnosed with silent migraines that caused tinnitus.  Fortunately after taking 50 mg Amitriptyline for the past 3 years I still get the odd painful migraine, but for the past 14 months have not had any silent migraines or tinnitus.  Unfortunately last Sept I had an episode of Vestibular neuritis that destroyed 83% of the balance on my right side and am still dealing with all the 'wonky' head, dizziness that comes from that.  But I digress... I wanted to tell you about an App on the iPhone that can help with tinnitus!  It's called Tinnitus Pro and if you like to listen to music it can be a lifesaver.  It has worked very well for me.  I am retired, but I love working with Stained and Fused Glass and I always listen to music.  Instead of me explaining it, here is the definition from their site...Tinnitus Pro Music Therapy is a treatment aimed at reducing the loudness of tinnitus through listening to individually tailored music. The app identifies a one-octave band around the patient’s tinnitus frequency and removes this swath of frequencies from the music’s energy spectrum. In time, tinnitus sufferers should experience a significant reduction in the loudness of their tinnitus.

      Hope this helps, even a bit.

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    • Posted

      Hi Elizabeth,

      Were your silent migraines vertigo episodes or continuous "dizziness"? I was diagnosed with hydrops at first and put on a diuretic and low sodium diet for 3 vertigo episodes and then every day "dizziness" with moving, walking, turning around, etc. No major tinnitus or ear fullness or hearing loss. The diuretic and diet didn't help my complaint of wooziness when I move to much (but driving I almost feel normal) so now they think it's migraines but I get them infrequently and I do get dull daily headaches a lot.

      im on Zoloft for it bus and so far it's not working, 5 weeks. sad  I'm wonderful if I should've started amitrytiline?? The tinnitus app sounds interesting.

       

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    • Posted

      Hi Lisa

      My silent migraines would occur 4-5 times a year.  The shortest time was 3 days and longest was 6 weeks, most of the time they were about 2 weeks. The doctor I had at the time said it was Meniere's and said that there wasn't anything I could do, even the specialist I saw at the time basically said - sucks to be you and after a 15 minute appointment dismissed me. Years later I find out it was in fact Silent Miagraines. I didn't have any vertigo with them at all, no positional vertigo no dizziness at all.  It was what my current specialist calls 'foggy brain' and  tinnitus, just felt like I was in a fog, (hard to think and concentrate) and then the drooning in my ear.  I've tried eliminating various foods from my diet with no results. With the amitriptyline I started at 10mg and every two months would increase it another 10mg.  It wasn't until I got to 60mg that my silent miagraines went away, my last one was Apr 2015 so it was a long process. I wasn't sure it was going to work.  I'm now trying to reduce the amount and 50mg is where I am at the moment.  I'd like to go to 40mg in a few months to see if that still works. Kinda don't want to press my luck though.

      I also have a great medication for painful miagraines called Rizatriptan. It works so well, I always carry them with me.

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    • Posted

      Thank you, Elizabeth. I hope you're weaning off it will be successful for you! 

      Ive heard and read that ami works for many people for vestibular migraine to help with the brain fog, tinnitus, headaches, but also they're sensitivity to head movement, self motion and seeing motion in busy environments, basically a level of motion intolerance whether self or observed. 

      Ive Effexor is also popular but my neuro doesn't prescribe it as much because of the side effect profile. He mainly precribes lexapro but since I had started Zoloft right before I saw him he said to continue that since it works similarly to lexapro. I do think I've got an anxiety problem but never had it bad enough for medication. I was always able to mentally "deal" with it but now I think my body, being muddle aged (46) female hormones and having young kids, my body said "okay, I need help! I'm done compensating for your worries and anxieties" LOL!! 

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