1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

Am so lost with this

Posted , 10 users are following.

Whisper2003
Whisper2003

I have reached 9mg/10mg on slow reduction and appear to have woken my adrenals! Having effects that go straight to my bladder regularly throughout day and night with a feeling of fear. not pleasant! Last time this happened I ended up in resus! CRP on blood test is up to 14 and GP says to stay on current dose. Pain in upper arms, neck, jaw,head, hips buttocks and thighs. GCA/PMR diagnosed Feb 2014. Recent rheumi appointment he said atypical PMR and not GCA.

1 like, 22 replies

22 Replies

Prev
  • jean39702
    jean39702 Whisper2003

    Posted

    Predisone definitely increased the frequency and urgency of needing to go for me. That fact was proven when I switched to taking prednisone in the evening a while back.  I'm up every 1 1/2 to 2 hours every night.  Things settle down during the day.  This is the reverse of what was happening when I took the pred early in the morning.  FYI, I switched to evening meds to avoid the foggy brain and fatigue I was suffering at the time.
  • joey2
    joey2 Whisper2003

    Posted

    Since childhood, I have always had the urge to urinate.  Mom use to say, I have a leak in my bucket. I learned to live with it but seems like more than a problem now. Must always know where the bathroom is. And it seems that the more my inflammation goes up that the urine smell is awful. I have had it tested so nothing really wrong but the frequency & smell is so disheartening! Good luck to you all.
    • Whisper2003
      Whisper2003 joey2

      Posted

      Yes I have a problem with the smell too! What was tested? There must be a reason for it and I bet it could be discovered with the right test! If only dogs could talk they could tell us!!
  • joey2
    joey2 Whisper2003

    Posted

    They thought, I could have urinary stones or an infection which can create an ammonia-like odor. If I were Diabetic, the smell would be sweet, because of excess sugar. Actually, my smell is hard to describe.  Just know it was pungent.  Don't know the name of the tests that were taken. Sorry!
Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.