An article in a newspaper made me sit up and and say "t
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An article in a newspaper made me sit up and and say "thats me!" It had a description of exactly how i was feeling (and still do feel). The article was about underactive thyroid, and it got me seaching the web to find out everything i could about the condition. Armed with all the information i could find i went to my doctor and after expaining everything requested a blood test to see if i was right. My doctor agreed that all the symptoms pointed to underactive thyroid and agreed to do the test. Two weeks later back to the doctor i went, only to be told that the my thyroid results were "within the acceptable level". However being told that has not made me feel better, nor has it relieved any of the symptoms. I would dearly like to know what are "acceptable levels" considering everyone is different, and every"body" is different. I am still fighting with my doctors to be taken seriously as they seem to believe that the blood test is the be all and end all. Somehow i have got to get across to them that blood tests DO NOT ALWAYS TELL THE TRUTH!! Wish that i could afford to go to a private specialist, and maybe the truth will out!! unfortunatley funds dont allow, so i suppose the fight will go on. But i would like to finish this by saying that, if you feel as though the symptoms point to what you have got, and you are convinced, and you have done ALL the research you can do then don't give up..........i am still fighting and hopefully in the end i find a doctor that will listen to me instead of relying on the "inaccurate" blood tests
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Anyway a few months ago after going to bed yet again hoping that I wouldn't wake up as I felt so awful all the time and sad that what I feel should have been the best years of my life (I'm 39 now)had been wasted. I decided to take action, I read up on Thyroxine and ordered some off the internet I started on the lowest dose and have been gradually increasing it every 4-6 weeks, I know this seems irresponsible and could be dangerous but it's a chance I'm willing to take, and I feel like I've got my life back! I don't fall asleep in the afternoon or evening anymore, I can think straight, I'm gradually getting the house sorted, we've had our first fortnights holiday since our son was born and at last I feel like me again, I haven't lost any weight yet, but I feel so much better that I don't care, when I feel I've got the dose right I'll go to my GP and see if they'll prescribe it for me and monitor my levels properly.
I'm not advising others to do this, but I honestly feel if I hadn't then I wouldn't be here writing this now!
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I once asked a consultant who decideds on what "within normal range" is. I know my own body and i know when its not right. Everyone's body is different so what is normal for you may not be for me. Anyway the normal range is said to be between 0.3 - 1.6, this is "normal" my levels at the moment are a very bad 0.02, so i dont really feel very human at the minute, i have been taking thyroxine for well over 12months at a rate of 150mgs per day, after recent blood test my gp lowerd my dose to 125 per day, i dont really understand why as my levels are really low at the moment but hey im not the doctor. Hope this has helped you
nicky
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I know from the Internet that the thyroid is a particularly complex gland but there are tests that target specific aspects of it's functioning. Next time you got to the doctor take a friend for support to make sure you get the attention you deserve. Good luck, Joyce
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My English GP still mantains that I was ok and I bless the day I went to France - so if you really want results - go and stay with a friend in France and get the French system to help you - you do have to pay but believe me it's worth it - acceptable limits my ******* acceptable to whom!!:magic:
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Reading the comments about things not improving after the medication has compounded my feelings of despair. I have an appointment at the endocronology dept in May and am now not confident with what the outcome will be. I have paid to see a homeopath who was perplexed by what was wrong. I have had accupuncture - relaxing but no difference. I would and will pay anything to get this sorted ... but as so many people here have said, nobody seems to really understand or care.
The only thing I know is that somehow I have to find a way of sorting this out and getting my life back. And that's how it feels at the moment - like it's fighting me every step of the way. You get to the point where you are scared to eat, scared to not eat, too tired to care anyway! Good luck all of you - you're in my thoughts!
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