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I am in the UK. I have been experiencing breathlessness for 4 years but GP thought I had late onset asthma, however, I became extremely breathless over several days and was eventually diagnosed with a PE about 5 weeks ago, D dimmer level was 500, diagnosed of clots confirmed after a ct scan. No signs of DVT, however experience groin pain.
Throughout pre diagnosis my ECG, BP and sats remained at normal level and until my lung started to spasm I was finding it difficult to be taken seriously, the D dimmer test was only done at this acute stage.
Docs suspect clots Had been there for some time and I was immediately prescribed Apixaban And discharged from hospital after pain was managed. As the doc suspect the PE may be autoimmune related I have been advised I will get a follow up appointment with a hemotologist but have heard nothing since.
i have been experiencing ongoing lung pain and was seen by docs. They have explained pain is related to damage to lower right lung and that as I am on Apixaban, and provided I take it exactly as prescribed, I cannot get another PE.
the last couple of days I have become breathless again, especially when active or speaking and I went to see the doc. He checked me over but said everything appeared normal so left it at that. This has continued, no sign of infection etc. As my levels were all normal previously I am not reassured by that.
What I I want to know is can you get further PE's while on Apixaban and should I push the doc for further investigation?
At the last hospital visit I was advised that follow up appointments will be slow time as I am already on the medication they would give me anyway and still on the treatment dose of 5 mg twice a day.
i kind of feel abandoned on Apixaban and can't help feeling warfarin might have been a better option just for the contact and support you get post PE?
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