And I thought I would do better.
Posted , 10 users are following.
Hi all, haven't been on for a while as we have had a few small problems unrelated to PMR etc. Over the past 9 months I have tried to reduce preds from a high of 25mg and am currently at 13.5mg (now 3 weeks since my drop from 14mg). The itching etc that I was getting every 4 to 6 weeks has stopped completely which is great, but once I dropped below 15mg the aches in my upper arms and lower legs have increased significantly and I am now scared to drop any further. I wouldn't say that it was painful but I now find it difficult to raise my arms above my head and I find walking makes me much more tired. I have been dropping by 0.5 per month for the past 3 months and was ok at 15mg althought I had the odd ache here and there, so can anyone advise if this is normal or should I simply stay at 13.5mg for a few months and see how things go
I have had PMR for a year now and had hoped to be down to around 10mg by now but that dream has gone by the wayside now. Your feedback would be appreciated. (PS Have a good holiday Eileen).
2 likes, 7 replies
Mrs.Mac-Canada tavidu
Posted
I wonder if your recent "problems" have set you back a bit. I wouldn't reduce, even using the DSNS method, if I still had symptoms. Maybe going back to where you were comfortable might be worth a thought. None of us like taking pred but the real goal is to get to a dose that manages our symptoms. Gotta keep that little PMR guy happy and hope he/she gets bored with us and goes away sooner than later.
hope your feeling better soon.
Diana🌸
tavidu Mrs.Mac-Canada
Posted
ptolemy tavidu
Posted
tavidu ptolemy
Posted
tina-uk_cwall tavidu
Posted
I've had 1 flare and believe me it takes longer to get flares under control than it did to get the original PMR under control with the first dose.
i saw my rheumatologist 3 weeks ago for my 6 monthly check up. He was over the moon with my progress and reiterated that slowly slowly gets us there in the end. You've come on in leaps and bounds please don't ruin things simply because you're not where you had hoped to be this point in your recovery journey. All the best, christina
tavidu tina-uk_cwall
Posted
Thank you to all that have been kind enough to advise me, what would I do without your support, regards Dave (tavidu)
MrsO-UK_Surrey tavidu
Posted
Have you perhaps been overdoing things recently, such as manoeuvring the caravan, that might have upset things? It is really important not to overwork those muscles as they can be very easily injured whilst battling PMR. Are you also taking special care to rest and clear the decks for a week or so around every reduction to give your body every chance to adapt to the new dose?
Perhaps, as well as raising the dose, you can get your GP to refer you to a good physio who understands PMR and will use some gentle massage and heat treatment on the problem areas to give you some relief.