Ankyloseing spindylitis

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I have been diagnosed with as waiting for both hips to be replaced my ankles knees wrist shoulders and spine are all affected by it no matter what I take doesn't seem to work I am taking sulferfusane 500 mil 2twice a day and 10 mil of pregnisone did try methetrexsate was no good any ideas how to stop the pain

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  • Posted

    Hi Dwayne,

    I’m sorry to hear that you’re in a tough spot.  I’ve been there, too. I usually just keep trying many things until I find something that helps. Often, it’s a combination of several things.  The NASS site has some great ideas and exercises, too. https://nass.co.uk

    Looking into biologics is a good idea. For some it can take away all AS symptoms, prevent more damage, and even reverse some past damage.  

    There is much more you can do in addition to medication. Exercising (low impact only)  is very important to keep down pain levels.  Stretching, gentle yoga and the pool work best for me now. I’ve also enjoyed benefits from acupuncture, meditation (stress reduction), anti-inflammatory diet, music, and laughter. I got a puppy 18 months ago and he really makes me laugh!

    I hope this helps.  What works for me may not work for another. I hope you find something that works for you and brings some relief. 

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  • Posted

    sorry to hear this too Dwayne. For me going onto Cimzia helped moderate the pain. That and NSAIDs coupled together when I'm extremely bad has helped to moderate the pain. Maybe speak to your doctor/rheumy there's a fair amount of Anti TNF meds which are available.

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  • Posted

    Did you know that lectin in foods, and likely gluten, have indigestible proteins that find their way to the joints where they attach to collagen fibers and set off immunological inflammation?
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