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Ankylosing spondylitis and sun

Posted , 7 users are following.

As68742
As68742

I was diagnosed with As for 2.5 years ago. I'm on biologics.

Today we've been in the beach the whole day. Now my knee hurts really bad, I can't hardly walk.

Does anyone of you with as recognize this? Is it common that as is more problematic during the summer?

0 likes, 6 replies

6 Replies

  • As68742
    As68742

    Posted

    No we weren't IN the beach... 😂

  • dwayne17652
    dwayne17652 As68742

    Posted

    Sorry to hear your in painI have had as for many years and yes it can hurt all year round some days when I have a flare up my hips knees and ankles spine dont want to move and are pain full like my rumi said either you move it or loose it
  • garyjm3617
    garyjm3617 As68742

    Posted

    Had events like yours that I thought was AS, actually was tendon problem, another not in knee but back, turned out be osteoarthritis. My AS didn't move from sacral joints. Still hasn't according to xrays . Ha've AS for 35 yrs. Left sacral joint is partially fused. My stiffness and pain more pronounced in the winter here in In. Hope knee is non-AS which means hasn't moved.

  • lilly29834
    lilly29834 As68742

    Posted

    Perhaps it could be something in the water that you are reacting to since your immunity is lowered by the biologic drug. Once my knee swelled so much I had it aspirated after being in a hot tub. But it was just a one time occurrence. I've been in water, beaches before without any problems.

  • BobbiDi123
    BobbiDi123 As68742

    Posted

    There is such an explosion of information on autoimmunity. Really hope you find the ten minutes to read this paper on lectins, an indigestible protein in common foods that create intestinal bleeding, gain access into the bloodstream, attach to glucosaccarides on the surface of cell membranes in the joints, and cause immunological inflammation (https://www.selfhacked.com/blog/elimination-diet-safest-foods-people-sensitive-everything/).

    • garyjm3617
      garyjm3617 BobbiDi123

      Posted

      Thanks Bobbi, read info. Interesting Lectins effect TNF which all of the biologic drugs modify to lower immune reaction (exception Cosentyx). One easy change outlined in article is to pressure cook to lower Lectin count in veggies. Take care.
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