Posted , 6 users are following.
Hi, if you put covid 19 in search bar on nras then scroll down to frequently asked questions, there is an update,( by the way it said the other day if you have RA you should self isolate, which I am) if you scroll down there are two charts you can click on, one says I score a one, 55 on Methotrexate, lowest category, on the other chart it says moderate which is quite strict, can anyone help with this please
0 likes, 11 replies
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linda23834 carole90704
Posted
Hi Carole, i have just looked at the same chart. Im on immune suppressant injections weekly and think i scored 1. I didnt see the other chart. Presumed i would just have to be careful and social isolate. Stay safe.
vanessa74034 carole90704
Posted
Hi, I scored a 2 on the chart. Its a pity my employer doesn't understand the implications this has on my health 😦
carole90704
Posted
hi the two charts are
Guide to social distancing for rheumatology patients ( I was moderate) but on BSR COVID-19 Risk Scoring Guide ( I only scored a 1) the two charts don't seem to go together or is it me?? these charts are together on NRAS as I previously explained in my 1st post, thanks for any replies
EileenH carole90704
Edited
They are to be used by the doctors and in combination - methotrexate is used in a lot of things, not just RA. So you combine the disorder and the medication. Generally the disorder takes you to stringent social distancing at the very least, but more often high vulnerability, then adding any DMARD then takes you to high vulnerability and self-isolation.
Anyone on immunosuppressants automatically becomes high risk and should be self isolating. A rheumy colleague was quite keen that these charts shouldn't be accessed by patients because they didn't have all the background to using them.
carole90704 EileenH
Posted
Thanks Eileen..are you a doctor?
EileenH carole90704
Posted
No, my background is in medical science, but I am also a patient research partner with a rheumatology group in the UK.
carole90704
Edited
my Rheumatology Department has asked patients to just refer to the chart which I scored one..think to reasure people..but surely they need to use both...they still trying to go through patients records to send letters out..thanks for that great explanation eileen
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carole90704
Posted
by email I might add
carole90704
Posted
Hi,
The chart I was refering to has now been removed from NRAS however the score chart remains, this chart is supposed to be used in conjuction with the chart that has been removed, so confusing
timothy11402 carole90704
Posted
I live in the USA and have been looking online for the risks of covid complications and methotrexate, which I take for RA. Unfortunately, there are some contradictory statements being made. So I have been on self-isolation for a couple of weeks now. My problem is the need to get to a drug store in the near future. That will be a challenge.
EileenH timothy11402
Posted
Not sure how you can contradict the fact that mtx inevitably reduces your immune response so you are at increased risk, especially together with RA itself. You are quite right to be stringently social distancing at the very least. Is it drug store or pharmacy requirements? Do you not have a neighbour/friend who could pick it up and leave it at the door?