Another failed smear test attempt

Posted , 3 users are following.

I did a discussion a month or 2 ago about how it was in 2014 the only option to discover cervical cancer was to have an intrusive and often painful smear test. Well since writing that I have had bleeding between periods so had to go for a smear. I read on anohter discussion that there was a virgin speculum that you could use as it was smaller and did not cause as much discomfort. I bought 2 online and took them with me to the appointment. I explained I had trouble having smears, and now as I have been diagnosed with PTsd it was near on impossible to have them but I realised that now I had symptoms I had to have it. The Dr said due to my weight I could not use the virgin kit, plus it would not be suitable to get an acurate result. She also called in a horrible practice nurse who had tried to get me to sign a wiaver when I said I could not have a smear due to the trauma of it all. Anyway she couldnt get the speculum in and asked how, if I could have sex I couldnt manage to get this speculum inside me. Once again I explained that she was a stranger, attempting to shove a foreign object into me, which was met with distain. So now I am being referred to a gynaecologist (like that will make a difference)to have to go through it all again. I know I will end up having a general anaesthetic but if thats what it takes, so be it. Any words of wisdom of your similar expereinces will be gratefully received. (A spell check would be good on here too, apologies for any mistakes)

0 likes, 13 replies

13 Replies

  • Posted

    Oh D

    that is awful! Did you know that many female medics decline smear testing due to its lack of benefit? might this be bleeding associated with ovulation?

    • Posted

      I did not know that, this is why I post on here, people like you and eliz kindly inform us of hidden facts. I am seeing my diabetes consultant and he is an expert on everything so I might mention my problems to him and report back.
  • Posted

    It's awful to read this sort of post, so many women go through hell with this testing and it's mostly completely unnecessary.

    For a start you need a new GP, symptomatic women do not need screening tests, they need diagnostic tests, so it's good you've been referred to a specialist.

    There IS something better than pap tests, much better, that's HPV primary and HPV self-testing. Those women who prefer self-testing (no speculum exam) can simply test themselves reliably and easily. The new Dutch program will replace their 7 pap test program, 5 yearly from 30 to 60, now they'll offer 5 HPV primary tests or self-test with the Delphi Screener at ages 30,35,40,50 and 60 and ONLY the roughly 5% who are HPV+ will be offered a 5 yearly pap test. (until they clear the virus) MOST women are HPV- and having unnecessary pap testing and many end up having excess biopsies and being over-treated. It should be a scandal, so many women worried and harmed unnecessarily.

    I've heard of women considering a GA to have a pap test, that's seems like madness to me when the risk of cc is remote, it's always been a rare cancer, lifetime risk is less than 1% (0.65%) There is probably greater risk with a GA.  

    At the very least women considering a GA should self-test for HPV first, most will be HPV- and therefore cannot benefit from pap testing.

    Many women could just self-test once and if HPV- and no longer sexually active or confidently monogamous, might choose to stop all further testing.

    The new Dutch program will save more lives and takes most women out of pap testing and harms way.

    I'm 56 and have never had a pap test, the numbers didn't work for me, near zero risk of cc or 77% lifetime risk of referral for colposcopy and at least a biopsy, I'm not prepared to accept much risk at all to screen for a rare event. Now I know I'm HPV- and cannot benefit from pap testing.

    I'd urge every woman to get informed and understand what you're agreeing to, I doubt many women would then agree to a GA to have a pap test or put themselves through hell with this testing. Older/post-menopausal women often suffer with speculum exams, the pap test can be intolerable. It's cruel not to offer these women HPV self-testing, almost all will be HPV-...all women should be free to self-test, if that's their preference.

    I think perspective has been lost with this testing, the risk of the cancer has been exaggerated and there is enormous pressure to test, it's rarely promoted as a choice, more an order. There are far better ways to deal with this remote risk for those who wish to screen, but politics, hype and vested interests will ensure this misery continues until enough women walk away and demand something better. The law and proper ethical standards says screening is our choice, informed consent is our legal right.

    Good luck with the specialist.

    • Posted

      Thanks once again eliz52, I mentioned HPV but all the GP kept repeating was that it wasn't avaialble on the NHS. I hadn't mentioned getting it on the NHS, I am prepared to pay if it stops me having to have a smear. GP's and practie nurses need to be reeducated on these things as they seem to "sing from the same hymn sheet". 
    • Posted

      A brilliant piece eliz...thank you so much!

      I would like to bookmark this. Where else are you operating on this site? We're having a horrible time on the LS site at the mo...stuck in the mud types have been preventing reference to alternatives. Have to say I kicked up a fuss and got the alt med section set up....but all over the site people have discovered alternatives ..in particular intestinal permeability ...seems theres a fever about it ...brilliant...but a clamp down due to reference to products ....but this is what people want to share with each other, these are resources. Its a good site but more leaway needed.  

  • Posted

    Hi Mrs D, not surprised the doctor fobbed you off, our doctors get target payments for pap testing, not helping you source another testing option. I understand UK doctors also, get target payments for pap testing.

    Tampap is available in the UK, I understand that's a tampon-type HPV test.

    Also, the Netherlands is not far from the UK, you might be able to source the Delphi Screener. I know some Aussie women who've ordered it by email and then posted their sample back to Singapore. The Screener is available in a few countries now.

    We have a local distributor now, but it's been kept very quiet and you have to access the Screener through your GP, this makes some women nervous as some doctors would simply use this as an opportunity to pressure you into pap testing.

    I know one of my colleagues plans to continue testing when she's working in Singapore so she's not pressured to join our program. 

    Of course, if you have symptoms, you don't need a pap test, but need a proper assessment. 

    If women are worried about this rare cancer, then they should find a way to test for HPV, then you know where you stand, HPV- or HPV+

    HPV- women cannot benefit from pap testing and might simply re-test in 5 or 10 years time (depending on your age) to check for a new infection, unless they're confidently monogamous or no longer sexually active, in which case they might choose to forget all further testing.

    • Posted

      Thanks Eliz - I have found a home HPV test online service, £50 but well worth the cost if it saves us from painful and intrusive "assault". Email me for details.

       

  • Posted

    I got my HPV test results a few minutes ago, I am HPV free. 
    • Posted

      Congratulations D.

      That is wonderful news. So happy for you. Now what about the rest of your issues?

  • Posted

    PTsd....and interval bleeding? is that what initiated your concerns? Or you ok now?

    What is PTSD please...the acronym...i may know the condition....but not necessarily of course!

    oh ok post traumatis stress disorder. You have had an incident or some shock to the system?

    • Posted

      Oh yes! PTDS I have counselling for that and the bleeding hasnt occured since, but I am experiencing warm feelings inside, which may be menopause symptoms or thinking about Mr D cheesygrin
  • Posted

    oh how sweet.....! well i'd say you're all fixed up.

    congrats

    love m xxxxxxxxxxx

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