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  3. Polymyalgia Rheumatica and GCA

Another Polywhatsit joins the team

Posted , 9 users are following.

spiritgirl
spiritgirl

Hi, I'm a 51 year old woman from Australia who was diagnosed with PMR 2 months ago. It literally came on overnight. I woke up one morning very stiff and sore and had trouble getting down the stairs because it seemed my inner thighs had seized up. I was also having a lot of pain across the shoulders which no amount of professional massage could fix.

Luckily it was only 6 weeks before I took myself off to my GP. He started me on 20mg of Prednisone and within 6 hours I could get up from a chair without hobbling like an old (110 year old) woman!

MY GP asked me to reduce to 15mg after a week which brought back most of the pain. I found this amazing site and decided to take matters into my own hands. I went back up to 20mg, and have slowly reduced to 16mg with some shoulder pain but I'm getting used to a bit of pain in the first few days after reducing.

I also have Fibromyalgia and a couple of other auto-immune issues.

I take great comfort from everyone's posts. If you guys can live happily with PMR then so can I!

Waves from Down Under

0 likes, 21 replies

21 Replies

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  • MrsO-UK_Surrey
    MrsO-UK_Surrey

    Posted

    Hi mrsk and Spiritgirl

    I'm probably guilty of boring everyone with my several recommendations but I'm not guilty of passing the lemon juice one to you mrsk :lol: although for more years than I care to remember my first drink of the day has been warm water containing a few squeezes of fresh lemon. I have done this because it is said to be a great detox at the start of the day plus I'm sure it is a great help for keeping the skin clear. Perhaps this is the secret of why I have never suffered from reflux problems for, as you have said, although it is highly acidic it does have the great benefit of turning to alkaline in the stomach.

    Also, of course, (at the risk of boring everyone yet again :roll: ) I thoroughly recommend and swear by my daily yoghurt with my breakfast to line the stomach and protect it from the steroids - it should be LIVE, of course.

    MrsO

    xxx

  • mrs_k
    mrs_k

    Posted

    Mrs O

    Good job I did not put your name in our Newsletter - just gone out - its under Tips Corner.

    I can now breathe easy for a while.

    Got plenty of the white stuff, anyone want some?

  • EileenH
    EileenH

    Posted

    We've got enough of our own here for a change - although they are saying it is to rain up to 2000m and above tomorrow and then the temps will drop by 10-15C again and the wind will get up! Lovely! We normally get about 300 days a year sun - it seems to have gone missing in 2010!

    EileenH

  • MrsO-UK_Surrey
    MrsO-UK_Surrey

    Posted

    Hi again mrsk and much as I'd love to help out I really don't want any more snow even though it's forecast for us here again on Wednesday! :snowball: :roll: Eileen might want to relieve you of the white stuff though for her skiing.

    As for your Newsletter - so informative - how do you do it? Makes me feel lazy and incapable - not even clever enough to even post an image as you have done, although we're not allowed to see it yet! :lol: :roll:

    I expect you're eating lots of hearty soups to keep warm - we've just had some pea soup at the Garden Centre - hubbie reckons we're in for a windy afternoon - can't think what he means! :wink:

    MrsO

    xxx

  • Guest
    Guest

    Posted

    \"Hello Spirit girl. I admire your cheerfulness in dealing with this horrible illness we have. I do not know if it would help about heartburn. I have been prescribed from the beginning of taking Prednisolone, a capsule of Lansoprazole, a gastro blocker, which I take before the Pred tabs. I have not experienced any problems with this. I take my tablets everymorning at 7am, with a bowl of cornflakes, sliced banana, raisins,some sugar, and lots of semiskimmed milk. Then I sit down and watch the Breakfast news, with a nice cup of coffee. I then go and wash and dress, and get ready to do what I am allowed to do by my poor battered body.....Not a lot...but I can get a nice meal ready for my husband and I in the evening. Sit down and watch a video or listen to some music....and then to bed at about 9 or 930 pm. I am down to 6mg a day, from 20mg. Plan to get off Pred as soon as my body allows me....I am not very brave. I admit to feeling angry about it...miserable...and very fed up.....and ashamed of feeling so.....Take care of yourself. M.[/quote][/i]
  • sparklin
    sparklin

    Posted

    Hello spiritgirl I have also only been here a little while and have already been reduced from 15mg to 10 which on reading all the posts here I wonder if the drop is a little to much to quick. Still time will tell. wishing you well
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