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Posted , 6 users are following.

Minnie57
Minnie57

do any of you ever get off all the pain meds?

0 likes, 13 replies

13 Replies

  • tiswas24537
    tiswas24537 Minnie57

    Posted

    i never started them although at times i wish i had something for the pain but the side effects always put me off . 
  • Bee70
    Bee70 Minnie57

    Posted

    Hi Minnie

    I was only on various anti-inflammatory meds at the start of my pains over 20 yrs ago and have not really taken any meds for the padt 15 yrs. My own personal choice as I refused meds as wasn't too keen on the side effects. 

    I am trying herbal remedies at the moment and I have noticed a slight reduction in pains but it's still early days.

    Staying calm and positive is far better for me than to take meds prescribed by a GP. They have a diificult time explaining Fibro so I can't understand why they give us meds and not a proper solution.

    That is just my opinion !

  • Maggers
    Maggers Minnie57

    Posted

    Hi Minnie

    I tried various meds but nothing seemed worth the trade off for side effects, which is why I am seeking to try alternative treatments such as hynotherapy etc.  Warm baths, trying to stay stress free and eating only fresh foods cooked from scratch seem to be helping but it's early days and I need to see what works for me.

  • TeresaJS
    TeresaJS Minnie57

    Posted

    Hi Minnie. Besides the people that use LDN, only a few people that change their lifestyle completely, diet, mind, everything report remission and meds withdrawal. It also helps to go past all stages of menopause because there seems to be a connection between homones imbalance and FibroM.pain. I have an aunt that has FibroM too and she takes a lot of....crp. She is making me her guine pig: if LDN works for me she'll go for it too. X.
    • TeresaJS
      TeresaJS Minnie57

      Posted

      “Naltrexone” is a prescription drug available in the UK, and in most countries,  for opioid and alcohol detox.  There’s some info. here: https://patient.info/medicine/naltrexone-for-opioid-dependence#nav-4  To use as LND, that is “low dose” your need a prescription and ether to compound it on a chemist or have it through a alternative medicine doctor. As far as I know in the UK it isn’t  sold in liquid form but  I’ll be sending you a message with a few links you can check for yourself. 
    • tiswas24537
      tiswas24537 TeresaJS

      Posted

      thanks teresa ,you are helpful on this its a night mare trying to find the truth i looked on a site of people taking it for fibro ,and a dozen people all reccomended it saying it was all good and only minor nausea and disturbed sleep, 

      what i am trying to get to

      ,is . are the more nasty  side effects more likey when people are using it for opiate withdrawal . or is it in general .its so hard to get to the truth .dr chris steel says its very safe yet the info says differant .i a m just confussed .eek but thanks for trying to help me .

    • TeresaJS
      TeresaJS tiswas24537

      Posted

       

      Hi Tiswas.

       I'm e starting my 4th week n LDN so I don't know about long term side effects. However the maximum dose of LDN is 4,5mg/day and that's less than 10% the standard 50mg dose for drugs and alcohol rehab which may go up to 300 mg/day.

      People that start LDN should start on very minimal doses of 1mg/1,5mg a day for 1 week and slowly increasing 0.5mg a week until the adequate dose is reached (no more that 4,5mg/day though) . This helps minimise side effects.

      For the past 4 months I've read Stanford’s University clinical trials, + loads of information available online very thoroughly, and heard many statements (many on vimeo  and youtube) and I’ve decided that, because my health state was deteriorating so much ( not just FiboM, but many other things, from food intolerances, severe allergy and respiratory issues, depression, skin problems, you name it…) I had to do something.

      I also believe that my GP has finally accepted to prescribe it because there’s clinical literature about it and because he also got out of hope on how to help me.  He saw me turning from a vibrant, energetic, smart women to basically a wreck, a shadow of myself.

      That’s how I got to LDN. I can’t take any of those pain killers and meds they usually prescribe for FibroM because I have IBS and extreme stomach sensitivity and I’m coming from a family of bowel cancer patients, so…

      So there wasn’t a lot of choice.  Side effects for LDN are minimal compared with all the other meds and because it’s being prescribed for many other diseases, including cancer, it’s reputed for having a positive effect on overall heath.  We’ll see how it goes but I am keeping my fingers crossed because my life has been put on hold by this condition.

    • tiswas24537
      tiswas24537 TeresaJS

      Posted

      thank you teresa once again 

      you are most helpful smile

      i to have food intolrences which drive me mad i started loosing interest in food and eating because i cant eat the lovely foods of my choice i would much rather eat a duck egg with a salad or have crunchhy salad sandwich but all  of it including many other foods are a no no for me causing wind and cramps constipation and then diroeeh .sad

      yet give me a big mac and fries with a doughnut no problems at all how bloody crazy is that eek, i dont have them often because i know how much crap is in them , but every now then i go what the hell . eek

      i would much rather have fresh cooked chicken with assortment of mushrooms and a side salad but i would be on the floor in agoney the chicken is fine just the rest.eek

      my fav thing i miss is cucumber and beetroot and spring onions all in a sandwich with radish yum . but no the pain is awful . cry

      i eat a lot of cooked brocli and cauliflower and cabbage carrots there all ok so i am getting some good stuff cheesygrin

       just that with summer i crave salad .its so unfair , i feel like stamping my feet , and screaming like a naughty child mad

      . i also cant take pain killers i took 2 codien after 2 months with broken ribs , i ended up hospital . sad

      people just dont understand how cruel this condition is how we long to be out and about doing things having a life. and how much we miss our old selves . razz i seriously would give up a limb if it meant i could get rid of all the problems that fibro has dumped on me . at least you can still get about and have a social life  . and not be as sleep all the time or in pain all over . .

      my father died from bowl cancer his uncle died from stomach cancer my grandad died from lymph cancer normal only effects the young . so i am hoping i dont follow the male side .i wish you well and will you keep me upto date with how your doing .pleaserazz

    • TeresaJS
      TeresaJS tiswas24537

      Posted

      Gosh!

      You're a serious LDN candidate!

      I'll keep you posted on my progress! XXlol

    • tiswas24537
      tiswas24537 TeresaJS

      Posted

      is it to much for you . 

      sorry if i have come across a bit full on .didnt mean to put pressure on you just would like to know how you get on .

      regards tis

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