Another question
Posted , 6 users are following.
do any of you ever get off all the pain meds?
0 likes, 13 replies
Posted , 6 users are following.
do any of you ever get off all the pain meds?
0 likes, 13 replies
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tiswas24537 Minnie57
Posted
Bee70 Minnie57
Posted
I was only on various anti-inflammatory meds at the start of my pains over 20 yrs ago and have not really taken any meds for the padt 15 yrs. My own personal choice as I refused meds as wasn't too keen on the side effects.
I am trying herbal remedies at the moment and I have noticed a slight reduction in pains but it's still early days.
Staying calm and positive is far better for me than to take meds prescribed by a GP. They have a diificult time explaining Fibro so I can't understand why they give us meds and not a proper solution.
That is just my opinion !
Maggers Minnie57
Posted
I tried various meds but nothing seemed worth the trade off for side effects, which is why I am seeking to try alternative treatments such as hynotherapy etc. Warm baths, trying to stay stress free and eating only fresh foods cooked from scratch seem to be helping but it's early days and I need to see what works for me.
TeresaJS Minnie57
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Minnie57 TeresaJS
Posted
TeresaJS Minnie57
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tiswas24537 TeresaJS
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what i am trying to get to
,is . are the more nasty side effects more likey when people are using it for opiate withdrawal . or is it in general .its so hard to get to the truth .dr chris steel says its very safe yet the info says differant .i a m just confussed . but thanks for trying to help me .
TeresaJS tiswas24537
Posted
Hi Tiswas.
I'm e starting my 4th week n LDN so I don't know about long term side effects. However the maximum dose of LDN is 4,5mg/day and that's less than 10% the standard 50mg dose for drugs and alcohol rehab which may go up to 300 mg/day.
People that start LDN should start on very minimal doses of 1mg/1,5mg a day for 1 week and slowly increasing 0.5mg a week until the adequate dose is reached (no more that 4,5mg/day though) . This helps minimise side effects.
For the past 4 months I've read Stanford’s University clinical trials, + loads of information available online very thoroughly, and heard many statements (many on vimeo and youtube) and I’ve decided that, because my health state was deteriorating so much ( not just FiboM, but many other things, from food intolerances, severe allergy and respiratory issues, depression, skin problems, you name it…) I had to do something.
I also believe that my GP has finally accepted to prescribe it because there’s clinical literature about it and because he also got out of hope on how to help me. He saw me turning from a vibrant, energetic, smart women to basically a wreck, a shadow of myself.
That’s how I got to LDN. I can’t take any of those pain killers and meds they usually prescribe for FibroM because I have IBS and extreme stomach sensitivity and I’m coming from a family of bowel cancer patients, so…
So there wasn’t a lot of choice. Side effects for LDN are minimal compared with all the other meds and because it’s being prescribed for many other diseases, including cancer, it’s reputed for having a positive effect on overall heath. We’ll see how it goes but I am keeping my fingers crossed because my life has been put on hold by this condition.
tiswas24537 TeresaJS
Posted
you are most helpful
i to have food intolrences which drive me mad i started loosing interest in food and eating because i cant eat the lovely foods of my choice i would much rather eat a duck egg with a salad or have crunchhy salad sandwich but all of it including many other foods are a no no for me causing wind and cramps constipation and then diroeeh .
yet give me a big mac and fries with a doughnut no problems at all how bloody crazy is that , i dont have them often because i know how much crap is in them , but every now then i go what the hell .
i would much rather have fresh cooked chicken with assortment of mushrooms and a side salad but i would be on the floor in agoney the chicken is fine just the rest.
my fav thing i miss is cucumber and beetroot and spring onions all in a sandwich with radish yum . but no the pain is awful .
i eat a lot of cooked brocli and cauliflower and cabbage carrots there all ok so i am getting some good stuff
just that with summer i crave salad .its so unfair , i feel like stamping my feet , and screaming like a naughty child
. i also cant take pain killers i took 2 codien after 2 months with broken ribs , i ended up hospital .
people just dont understand how cruel this condition is how we long to be out and about doing things having a life. and how much we miss our old selves . i seriously would give up a limb if it meant i could get rid of all the problems that fibro has dumped on me . at least you can still get about and have a social life . and not be as sleep all the time or in pain all over . .
my father died from bowl cancer his uncle died from stomach cancer my grandad died from lymph cancer normal only effects the young . so i am hoping i dont follow the male side .i wish you well and will you keep me upto date with how your doing .please
TeresaJS tiswas24537
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You're a serious LDN candidate!
I'll keep you posted on my progress! XX
tiswas24537 TeresaJS
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sorry if i have come across a bit full on .didnt mean to put pressure on you just would like to know how you get on .
regards tis
TeresaJS tiswas24537
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tiswas24537 TeresaJS
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