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Another sleepless night, bringing me more questions and worry...

Posted , 2 users are following.

kelly_01680
kelly_01680

So here I am again, another night where I'm wide awake even though I'm actually utterly exhausted.

How do I know if it's the tramadol, MS, or fatigue keeping me awake?

I keep saying I need a few nights off the meds to see what happens but when it comes to it, the pain makes me take the meds.

Some nights I manage a pretty good sleep which is why I question it. Surely if it was the meds then I wouldn't be able to sleep every single night? It seems I'll go 4/5 nights with less than 2 hours dozing

The other thing bugging me is the fact that I really don't know what scares me more.... Being told I have MS, or possibly something else wrong....or being told that actually there's absolutely nothing wrong with me and it's all in my head.

Someone please tell me it isn't all in my head! 😔

0 likes, 6 replies

6 Replies

  • wendy80842
    wendy80842 kelly_01680

    Posted

    While no-one here can give you a categorical answer, it sounds to me like you've hit a very commonly hit wall, the point where a diagnosis is ALL
    • wendy80842
      wendy80842

      Posted

      Whoops, all you need. I went through almost the same stuff you've been going through, I was diagnosed with MS in 2004. I had so little sleep in the early days, so much pain and confusion. Whatever you're dealing with it will calm down. I don't suppose it'll help a whole lot, but you have to be pragmatic. Don't worry about your lack of sleep or start comparing nights just shrug off as much worry as you can. Note: it's 4:35am...jus another one of those nights. If you haven't tried acupuncture, it might be worth a try, it's about all that ever helped me sleep in the early days.
    • kelly_01680
      kelly_01680 wendy80842

      Posted

      You've basically told me what everyone around me keep saying....deal with it as it comes along and try not to stress till we know for sure.

      I can handle dealing with things as they come along, I can also handle the realisation of it all, even if I'm also grieving, but what I can't handle is not knowing. I just need to know

      With the sleepless night, it's not soooo bad when the kids are at school as I can nap when the baby does but at mo, because they are off I'm unable to nap during the day. I have one son who has ADHD and he is really hard work. He's on meds but not allowed them during weekends and half terms so his hyperactivity has hit the roof.

      Luckily he's also a very sweet young man and wants to help his 'poorly mum' so if he gets to much o simply shout 'muscles' and he comes to help me do something (usually anything I can think of the top of my head to calm him down)

    • wendy80842
      wendy80842 kelly_01680

      Posted

      I can't imagine how hard it's got to be going through so much upheaval AND having youngsters too. Your son 'muscles' sounds brilliant, but I I'll bet it's chaotic at times, finding things to keep him occupied. My son, now in his late 20's, was a handful, and that was just with him having ADD.

      I definitely don't mean deal with it, I remember only too well what it was like to not know what was happening to me. Being it limboland is torture, I only meant that dumping worries about as many small things as you can, will sometimes clear a little of the weight you have on your shoulders. Having a big health question mark looming over you ISNT something that you can 'deal with', hell you don't even know what 'it' is yet, not to mention that there isn't a set amount of time in which you should deal with whatever 'it' turns out to be. I hope that you can find some kind of outlet for at least some of the massive amount of pressure you're under.

    • kelly_01680
      kelly_01680 wendy80842

      Posted

      Yea it can be really hectic! My eldest thinks the world is against her, so with my son, her moods and a toddler it's a nightmare sometimes. Luckily my other daughter is fab with the 2 year old and sane 😂

      I know you didn't literally mean 'deal with it' it's the only way I could think to explain stuff. I'm really struggling with communication at the moment and can't seem to get across what I am trying to

    • kelly_01680
      kelly_01680

      Posted

      I'm preying for a letter in the post today with MRI appointment
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