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Answers Anyone?????

Posted , 4 users are following.

WalkingMiracle
WalkingMiracle

Hello fellow sufferers and recover-ees!

I have been quite poorly for the last 4 months. I noticed my stools had become pebble like and completely white/cream in colour. I was sent for an ultrasound to check for gallstones and that was clear. End of tests. The stools persisted and my GP was not interested and tried to blame all my symptoms on post natal anxiety?? (because anxiety can TOTALLY turn your stools white yes?? ugh) The pain in my kidneys and under my ribs (right side) has persistently gotten worse and I decided enough was enough and paid to see a private gastroenterologist who said the symptoms were not normal and sent me for an MRCP to check liver/bile ducts/gallbladder etc. Results are still pending on this but I'm pleased I'll at least have peace of mind either outcome.

However today I noticed the pain in my kidneys has become increasingly worse and I have urine test strips at home and decided to test myself as I have felt extremely poorly all day.

I am too scared to visit my own GP as they seem to think everything is post natal related so don't want to go and be told im a hypochondriac and not have any tests done so wanted to share the results with others on here as I'm a little concerned.

My Leucocytes are completely dark purple 500+++

Nitrate is negative

UGB Normal

Protein is 300+++

PH is 6.5 normal

Blood is completely dark blue positive BUT I am currently on my period so think this altered the result

Bilirubin is completely dark brown +++ positive

Glucose normal

Ketones normal

I am concerned over the LEU, PROTEIN and BIL results as I'm sure theyre not normal. Im not a doctor but I know my own body and the pain im in isn't normal but I really am too scared to visit my GP now and it's difficult with the baby too getting out and about.

Any help would be appreciated at all.

0 likes, 12 replies

12 Replies

  • Guest
    Guest

    Posted

    It's called Cholestasis, the MRCP should have answered what's causing it,, I dunno where the report is though confused
  • WalkingMiracle
    WalkingMiracle

    Posted

    Do you think the urine results would point to Cholestasis also? Or do you think it could be a completely separate matter or maybe a simple UTI along with the biliary problems.

    Unfortunately it's called the NHS. You wait months for a scan then wait more months for a result! I did however pay to have the scan immediately.. youd think the results would be equally fast!

    Thanks for your help!

  • Guest
    Guest

    Posted

    To me that scanty Urine test says you're bunged up with Gallstones (Bilirubin and Leukocytes), Cholecystitis... But on the other hand the test is crap and you need some proper Blood tests, the best person to see for these is your GP,, who knows the results from the MRCP could be sitting on their computer,, I've NEVER had a GP surgery ring me up to tell me test results are in (but lucky for me my Hospital send me copies of every letter) smile
  • Guest
    Guest

    Posted

    I know you are scared of being labeled a hypo but frankly f*ck what they think, YOU know you aren't a doctor botherer and that you feel genuinely ill wink
  • Fanny_Jane
    Fanny_Jane

    Posted

    Hello There, you must pluck up the courage to go back to the gp. Is it a practice where you can ask to see a different and perhaps more sympathetic dr? I know it's difficult but your health for you and your family is top priority.

    I had a similar problem many years ago, came out of the blue. After lots of tests I was told I had an overabundance of bacteria in my gut along with too high cholesterol, which was the inherited kind.

    I was advised to cut out all sugary stuff, trans fats and dairy for a while and eat natural plain foods with lots of oats. I was also given a statin to take. I had side effects from them so now I only take it every other day and my chloestrol levels are now normal.

    I then slowly went back to a normal diet but using flora pro active instead of ordinary margarine and avoiding too much fatty stuff and sweeties.

    It's never come back as it was that first time, occasionally a bit paler than normal, which I ignore if I've just had fish and chips!

    I'm not saying you have the same problem but it is a possibility. The kidney pain could be an infection that may be separate from your other problem, only a doctor can check it out for you.

    Hope you get an answer and feel better soon. Good luck.

  • WalkingMiracle
    WalkingMiracle

    Posted

    Thankyou both of you for your lovely comments, it has reassured me greatly.

    I was fed up of getting no answers so booked a private ultrasound yesterday and the results were exactly what I'd expected. Im totally bunged up with gallstones, the technician said to wait for MRI results as the MRI would offer more insight into size and amounts/location etc so still waiting on those results before anything else happens.

    They also found a large cyst on my left kidney which needs investigating as for my age and health history isn't "normal" so a report has been sent to my GP on that so not sure what will happen next regarding that.

    AND to top everything off they found a fair few cysts on my right ovary which they didn't seem too concerned over but still causing me pain.

    So basically gallstones + kidney cyst + ovarian cysts + acid reflux + hiatal hernia + a very demanding 6 month old baby = a very poorly mummy! But were getting somewhere now finally so im very glad!

    Just hope this bloody MRI hurries up now...

  • Fanny_Jane
    Fanny_Jane

    Posted

    Hi walking miracle..good name for you I think. So pleased you are in the process of getting yourself sorted out and VERY CROSS that you had to go private when your gp should have picked up a genuine problem.

    It had to be gut related somehow. Try not to worry too much about cysts on organs. I have both kidney and liver cysts, mine are due too having a lot of steroids in my life due to rheumatoid arthritis.

    I have had them for years and unless they become a big bother you just live with them. They can be removed if they become bothersome. I was very worried when they were first found, about 20 years ago but have come to realise that they are ok to live with. I hardly give them a thought these days.

    Please make sure you keep on top of all the tests and get any treatment that you need. Your gp should be ashamed of himself/herself, makes you wonder how many people out there get fobbed off when they have a genuine problem.

    The removal of gallstones these days is a routine and fairly quick op. I know several people that have had it with complete success.

    I hope that you have good family/friends support and some help with your little baby. I wouldn't be surprised if your pregnancy has accelerated a problem that you already had.

    Good luck and keep on top of those docs, take care of yourself ,shall be thinking of you. Fanny Jane

  • Guest
    Guest

    Posted

    Glad to hear that you have got to the bottom of your condition / s, hopefully you'll be back to your old self relatively soon smile
  • valerie21605
    valerie21605 WalkingMiracle

    Posted

    gaul stones  Hi everyone! I have just discovered this forum, and would like some help! i went for an ultra sound scan on friday as i have been very poorly for nearly 2 years now, and in a lot of pain. the scan showed that i have gaul stones, i have been advised to get my gaul bladder removed completely as even if they're desolved, they'll keep coming back. meantime, what foods and drink to help with the symtoms?  also, do you feel much better after the gaul bladder is removed?  please help!
    • jayne10080
      jayne10080 valerie21605

      Posted

      Hi Valerie I had my gallbladder removed 5mnths ago and I have never looked back . The dreadful pain that I was having under right side of ribcage used to double me up in pain..Anyway had an ultrasound and found lots of little stones advised to have gallbladder removed. My diet has not been affected I did,nt gain the extra weight that so many people say they have once they have a gallbladder removal. If you still have your gallbladder stay away from spicy food and greasy food, thats what used to trigger my attacks...I wish you good luck jx
  • valerie21605
    valerie21605 WalkingMiracle

    Posted

    Hi Jane!  Had my gaul bladder removed a  fortnight to-day not without its problems, as it got stuck, then, they discovered that i   had 5  stones left in the bile duct so i  had to go back on the monday and have them removed.  Since having the op i  haven't looked back, and can eat anything, and so far, haven't put any weight on.  don't regret having this done as i'm completely free from pain its wonderful!
    • jayne10080
      jayne10080 valerie21605

      Posted

      Really pleased Valerie that you are now pain free after you gallbladder removal, considering the problem with the stones in your bile duct. I too have never felt better for having the surgery. All the very best..
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