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Hi, I have had colitis for nearly 20 years, it isn't fun. I have a pouch for nearly 10 years. It had never functioned properly. I was on the forum a few month ago asking for info regarding g going back to a stoma. After lots of faffing about my surgeon agreed to the surgery if I tried one last thing. I saw the Gastro team who put me on high doses of metronidazole and ciprofloxacin. To be followed by a course of VSL3, 4 sachets per day. The antibiotics made me feel dreadful and when it came to the VSL, I couldn't find it anywhere. Has anyone else been able to locate a supply. I think there has been manufacturing issue. Has VSL worked for anyone. Do you have to take it on a permanent basis. I have only been able to locate small amounts so haven't really been able to fulfill the second part of my treatment. The other option was permanent anti biotic treatment for chronic relapsing pouches. Has any one done this. I have to say I am very anxious about that prospect, incantation be good to become resistant to antibiotic treatment. Maybe I am misunderstanding. Any advice or experience would be greatly appreciated. I am seeing the Gastro team on tuesday. I want to sleep at night and not have anymore piano. I am not sure what they are offering is going to help. Thanks for taking the time to read, sorry its a bit disjointed, I am very tired indeed.
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