Anxiety or Chronic fatigue Syndrome?

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I've been sick since Christmas, I'm fatigue tired all the time, nausea, my muscle are weak, my legs are weak, spots of blood in my nose every time I blow, I have pressure in my head, I can't sleep because I can't breath correctly and I wake up in a panic with muscle weakness. It started as just a cold on Christmas and then it got worse I couldn't smell or taste anything, I didn't have a appetite. My doctor thought it was a sinus infection and gave me the z pak and well I still feel the same, the only change is I can semi smell and taste things but I have no appetite still, spots of blood in the nose every time I blow it, still weak, light headed, white tongue, nausea, pressure in head, muscle weakness and sleep apnea going on almost a month now. Blood work is all normal, my CT scan of the head is normal but showed inflammation of my ethmoid sinus. I'm going to a ENT tomorrow to see what can be done. But my anxiety is starting up again because I am not getting better. I haven't been able to work due to how sick I feel all the time. I don't know what else to do? Or who else to turn to? Or what other tests to do?

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  • Posted

    I'm sorry you are suffering so much. Without good, deep, restorative sleep, we simply cannot get better. Do see a sleep specialist. Mine is also a neurologist. My last one was a psychiatrist. I've been prescribed Xyrem, (sodium oxybate) and it knocks me out. I take two doses at night. One at around 10:30pm and the next, when I awake, between 2-4 am. I sleep till 6 or 7am. It's fine by me. Of course, I also use a vpap machine for sleep apnea. You might need a sleep test to see how well you breath while asleep. I was afraid to do this, but now I've had quite a few tests and it's easy to do.

    Hoping you will find enough resources to help with your problems. Without sleep we are all anxious. It's natural. Love and Hope, abby

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  • Posted

    Here's the thing: anxiety can be part of ME/CFS, but ME/CFS is not a part of anxiety. So no, your primary issue is not anxiety. And it does sound very much like ME/CFS. My illness, too, started with a cold--a bad cold. If your bloodwork is normal, indicating no other illnesses are to blame, you need to see an ME/CFS specialist, preferably an infectious disease doctor or a rheumatologist. In the meantime, Google "ME/CFS symptoms" and see if the results resonate with you. There are no magic pills for this illness. The best thing you can do is to take it real easy, pace yourself, and above all don't try to push through the fatigue. You can end up making yourself a lot worse, and lessen your chances for recovery. Avoid caffeine, sugar, and alcohol. Figure out a way to de-stress, as stress can greatly exacerbate the illness. I've found meditation to be helpful, but do whatever it takes. Don't let anyone, including doctors, convince you it's all in your head. GP's are especially guilty of this, since they don't understand this illness, and in many cases, don't even believe it exists. 
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  • Posted

    Thank you guys, I saw the ENT and she says all my sinus are good except my left ethmoid and said to start the z pak again. It seems like no one is taking me seriously, the worst is when I try to sleep because I am unable too, I feel more sick and nausea when I try to sleep and also I feel pressure in my head and then I feel like my arms and hands or numb or tingling and wake up in a panic. I haven't been able to get 4 hrs of sleep at all and my head feels so heavy and I feel more tired after trying to sleep. All the blood work keeps coming back normal and the CT scan too. Should I try a neurologist at this point?
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    • Posted

      Hi Jackie,Just thought I'd mention there are no ME Specialists in our area.(Clackmannanshire Scotland). There is only one ME nurse who is based in Fife and another in the Shetland Islands.The local GP's offer no support and treat patients with disbelief.My daughter has had ME since childhood from the age of 9 she is now 37.She is virtually housebound and uses a wheelchair (also bed bound when younger). I am one hundred percent sure this is because she was bullied and pushed into doing more than she was able to do by disbelieving doctors, psychiatrists etc.(against our wishes). She has tried various complementary therapies over the years but none of them helped, in fact quite a few made her worse. I have been to meetings at the Scottish Parliament, had meetings with MP and MSP but nothing has changed. Doctor wont send her to Neurologist or Rheumatologist . (she would have difficulty keeping the appointment).She has not been well enough to get to the dentist since before Christmas. (She has horrendous problems with her teeth) .Wishing everyone all the best.
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