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Hi, I am 48 years old and been suffering many years with pain all over my body, my hip pain is the worst, closely followed by shoulders, wrists and hands, then buttocks, more recently knees. My history has been a bit of a nightmare - diagnosed first as fibromyalgia, then early RA, then back to fibro, abnormal anti-bodies (auto immune disease). Years ago I complained to my gp about mouth ulcers and was discovered I was low in vitamin D. Two years ago I started suffering extreme head sweats and a few weeks ago I realised that I was still getting mouth ulcers even if I was just a few hours late taking my Calceous Vitamin D and told my gp, adding that I was concerned that I was still low in vitamin D. Blood tests revealed that I am, even though I never miss the tablets, get lots of outdoors when able, eat loads of fish, eggs etc. So, doc thinks its a parathyroid tumour and according to the website the only 2 reasons you would have low vitamin D is 1- if you don't actually get any and 2 - you do have a tumour. So its looking pretty much like this is the reason and I am guessing surgery will be necessary. My concern is, my muscles and bones ache so much, I walk like a very old woman. My life has really been mostly bed bound for the last few years with pain, having to use a stick a lot when I do go out - on good days I will be out as much as possible and walk as much as I can-yeah the consequences are usually the next day in bed, but I try to push it as much as I can. I have put so many things on hold, work and social and missed out on so much. Now, I am wondering - if and when this is sorted out, the tumour removed (if the doc is right and I do believe he is) will my aches and pains go? Will I have a better quality of life? If osteoporosis has set it - can it be reversed? I have also noticed very recently things becoming much worse. If I move my hand in a different way the pain is unbearable and feels like something has just broken - my index finger has started moving involuntary, kind of jumping - is this related to anything?
So many questions!! sorry - I just wonder whether there is anyone that can relate to all of these symptoms and advise?
Thank you in anticipation x
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