Any cures/medication for PPPD??
Posted , 35 users are following.
Plz help
1 like, 112 replies
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Notes on Any cures/medication for PPPD??
Jim_Cliff edward76742
Posted
P.S. You may think you are not depressed. maybe your not and depression med is not your cup of tea.
But, if you don't feel like getting out of bed in the morning, think that life is no fun any more, find yourself thinking that maybe ending it all is the only answer, worrying about little things that grow in to gigantic problems, things that may or may not happen and if they do it will probably be miles down the road and when you are if a frame of mind that will not seem then like an insurmountable task, cry easy about things that may be sad but in your real state of mind would not seem so bad and be things that you can handle p- then you are depressed.
You may think that you can't be, but with this PPPD breathing down your neck 24/7 believe me you are and it is nothing to be ashamed of. All who suffer from it understand and for those that don't - tell them to spin around for a couple of seconds and just when they feel their brains getting back to normal to spin around and do that all day - they'll get the message and understand how you could possibly be depressed. No one likes to think that they are depressed or have a mental problem that is something to hide but this problem is no joke, nothing to be ashamed of and to do what you have to admit to doing to get rid of it is nothing, nothing you have to hide.
please give the "cure" a try and maybe get your life back. Jim
mark42164 edward76742
Posted
Yes
I am a dentist who has been documenting and treating PPPD for 40 years. When I first started in the 70's I tested TMJ patients with Romberg test and found that when I placed a wooden tongue blade to relieve pressure in the jaw joint patients stabilzed their balance immediately. I could see it and they felt it. At that time a positive Romberg sign was attrituted to cerebellar lesion now PPPD is recognized as a proprioceptive disruption. on is lost. With ones eyes closed the vestibular system needs to feel the floor to orient itself because visual orientatiion is lost. At Stanford they do physical therapy and knew that problems in the cervical and throacic vertebrae lead to positive Romberg. They did not realize that the trigeminal (jaw) nerves were involved. It is as it i on the upper part of the proprioceptive tract of the spine - the dorsal tact. The simple way to test this on yourself is to test your balance by standing with your feet close together and arms out in front of you and close your eyes. I recomend having someone to "spot" you. Then place solid object like a butter knife, or cut a piece off a carboard box or if you have access to tongue blades. between your front teeth and try the Romberg eyes closed test. see if there is a stabilization. You can try two pieces one on each side of the back teeth. If it is a propioceptive dysfunction caused by the trigeminal activation blocking proprioceptive information from coming up from the feet and the relief of pressure in your jaw quiets the triggering of nerves allowing the proprioception to get through you know that it is coming from your jaw TMJ. You will note that with this one usually has a direction to the imbalance and this may shift but if you move the support of you jaw by moving the tongue blade etc you will find the best support to stabilize you. I would recommend a dentist knowledgable in TMD TMJ to make a lower flat splint that you test for stabilitity for treatlment.
Berger54 mark42164
Posted
are you still active on this forum Mark?
dianne55421 edward76742
Posted
Hi I was diagnosed with Mal de debarquement syndrome after a cruise in May 2018, In November 2019 I suddenty got PPPD its horrific I dont know what to do I am always swaying and feeling dragged backwards and forwards I am seeing someone at the Vertigo clinic very expensive and I do lots of eye and other exercises. My head feel awful heavy and spinning
I cant read, or watch TV and only on this computer with large writing for a short period.My life doesnt feel like worth living.
I am 78 and was suffering anxiety anyway.
I am already on effexor and take lorezopam at night otherwise nothing else. The Doctor tried me on everything when I had Mal De Debarquement Syndrome .
I read where if you have one type of vertigo its usual to get pppd.
I have just found out I have neuropothy after tests recently and so havnt been able to walk for months.
mary99679 dianne55421
Posted
Hi Dianne,
I'm so sorry you are going through this. I have suffered with dizziness for the last 24 years, so I know what you are feeling. Two years ago it got worse, so I changed my diet and really cleaned up the chemicals in my personal environment. I eat a low histamine whole food diet and I am dairy and gluten free. This has helped me tremendously. I work hard at trying to get a colorful variety of fruits, veggies, leafy greens, seaweed, lean meats, wild fish and seeds and to get good nutrition. I avoid table salt, processed foods, highly processed meats, sugar, dyes and all gmo foods as they all add to my dizziness. I also have a bit of Mal de debarquement. I have to sit a few minutes before I get out of the car. This helps me not to feel as woozy. Remember there is always hope. For me personally, I pray a lot and read scripture and the Lord reminds me daily that he is with me and this always gives me renewed hope. If you are okay with it, I will pray for you, as I know this journey is very hard and it is easy to get discouraged. Keep holding onto hope!
dianne55421 edward76742
Posted
Have any of you found any relief and is there anyone in New Zealand on this site I live in Mount Maunganui Tauranga would love to talk to someone who understands how I feel.
I didnt know how to put my own discussion on here without making it a reply to someone
Does anyone else have touble with their eyes as soon as I read a line in a book I go extremely dizzy , I have put the writing up large on my computer and phone buty I am better off not reading at all as get worse the minute a do.
Do any of you have to use walkers or get any special help . ?
yvonne77089 edward76742
Edited
im new to this group. Started extreme dizziness & imbalance end of Feb. Came out of the blue, along with feeling of "low blood sugar." Er visit-no brain bleed (history of cavernous angiomas in brainstem)
5 months later, Vestibular therapy is helping but still can't drive or work(teacher). EnT doc thinks PPPD. Started Sertraline-50mg., bu made me horribly dizzy. Vestibular therapist doesn't believe in PPPD.